Author Topic: What makes our Parotid glands swollen  (Read 21411 times)

robin730

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Re: What makes our Parotid glands swollen
« Reply #30 on: March 25, 2010, 10:47:01 AM »
Hi all - this is actually my first day on the site and this is the first discussion I read.  Seemed most appropriate since I am currently sitting with an ice pack on my neck.  I have been having a terrible time with pain starting at my ears and going down under my jawline.  I guess from what I have read that is my parotid gland.  The worst pain right now, though, is actually behind my ears.  I have always had neck pain, but this is higher up into my skull and on each side behind my ears.  It is always painful to the touch and often it will get aggravated and ache throughout the day.  Does anyone else have this?  I was just discussing with my husband last night whether I thought this was more gland related or neck/muscle related.  Thoughts?

beautifulkrissy026

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Re: What makes our Parotid glands swollen
« Reply #31 on: March 25, 2010, 11:50:20 AM »
Joy Cox,
I have actually had a mouth gaurd for quite a while, I definately clench. I guess I should also make sure the dentist is aware I have SJS. I know I told him but sometimes it gets thrown out the window.
Kristine

beautifulkrissy026

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Re: What makes our Parotid glands swollen
« Reply #32 on: March 25, 2010, 12:15:50 PM »
Well I called the dentist he said he don't know what else he can do and wants me to go to a TMJ specialist. Hopefully that is the solution to the problem. I doubt it but it's worth a try. Probably just another thing I have to deal with.
Kristine

Bernice

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Re: What makes our Parotid glands swollen
« Reply #33 on: March 27, 2010, 04:49:46 PM »
Hello Robin,

First, WELCOME!

As far as your question goes? Same here, Sounds like mine!

The TMJ thing? I have heard that too, but this is uite different.

Billydude

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Re: What makes our Parotid glands swollen
« Reply #34 on: March 28, 2010, 08:31:01 AM »
I have constant swollen parotid's but never with pain.   I wonder if something else is going on with those of you with pain.

Julie

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Re: What makes our Parotid glands swollen
« Reply #35 on: March 28, 2010, 03:06:14 PM »
I massage in a circular motion just below the ears where the jawline meets. The amount of fluid buildup in there varies from day to day.  Sometimes putting pressure on there stings like crazy, but I know if I don't express that gunk out of there, it will turn into an infection.  So, on the days that it really stings, I just go at it more gently, but keep it up 2-3 times a day until that stinging goes away.  I can always taste the foul stuff in my mouth afterwards. yum yum  ;)

It's been years...KNOCK ON WOOD...since I've had a full blown parotid swelling. When that happens, it feels like a bad case of the flu, my face looks like a chipmunk and I get a fever.  A round of Amoxicillin and Prednisone is what I've been given to combat it and it takes about a week for the swelling to go down.

Robin, the parotid glands are in front of the ears, so what you are describing with pain behind the ears, makes me think something different is going on for you.

Best of luck and good health to everyone!

Julie

beautifulkrissy026

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Re: What makes our Parotid glands swollen
« Reply #36 on: March 29, 2010, 06:19:58 AM »
Well, I called to make an appointment with the TMJ specialist and they wanted $250 up front at the first visit. Yeah, I can just pull that out of my butt in a month. So much for going there now I really do just have to deal with it. They said I would have to bill my insurance myself but who knows how long it would take for the insurance to reimburst me. For me it's not exactly easy to just go without $250. I hate doctors. There supposed to be here to help us not make us suffer longer.
Kristine

robin730

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Re: What makes our Parotid glands swollen
« Reply #37 on: March 31, 2010, 08:03:43 PM »
Thanks Bernice - always nice to know that at least you aren't alone.  I actually looked up the parotid gland online and found that there is a facial nerve that runs through the parotid and back up under the ear curving back over the skull - exactly where my recent pain has been located.  I don't know a lot about nerves and nerve pain, but I suspect that if my parotid gland is swollen or irritated it may be irritating that nerve and causing the pain behind my ear.  My swelling is never as significant as the pictures I saw online, it is more just tender to the touch and a little puffy.  Really appreciate all the inputs - enjoying hearing many different experiences.

Joe S.

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Re: What makes our Parotid glands swollen
« Reply #38 on: April 07, 2010, 04:38:18 AM »
Robin730, try a cup of peppermint tea and wear a scarf over your head when you go to bed. The difference can be amazing.
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robin730

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Re: What makes our Parotid glands swollen
« Reply #39 on: April 07, 2010, 07:06:12 AM »
Thanks Joe - I will give that a try! 

I actually did ask my neuro on Friday about the facial nerves wrapping through the parotid and causing pain behind my ears.  He said that is not the issue b/c those nerves run from back to front and are not the type of nerves that would have pain sensors like that.  Oh well - just a thought.  He said it is probably muscular and related to the fibro.  Just wanted to clear that up since my hypothesis was wrong  ;)

mac

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Re: What makes our Parotid glands swollen
« Reply #40 on: April 07, 2010, 08:58:53 AM »
About 15 years ago my jaws hurt right in front of the ears.  MIL had TMJ and spent a fortune which I could not afford.  Talked with dentist and he said that wearing one from the sports section could help.  I wore it for years then let off for quite a while.  About 6 years ago pain began again and I would stick it in as I knew I was clenching but the paratoids also were swollen form time to time and could not open my mouth withut pain but only lasted a few hours at first and was always intermittent.  Of course was never swollen when I went to the dentist and he could find nothing wrong.  Haven't had a flare for a year now and was only recently dx'd with SjS. 
I still carry a new plastic guard with me in case of a flare when I travel.  The price is right!  Good luck.  What I did learn from MIL if it is TMJ, a straight posture will really help.