Funny you should mention diarrhea: I've had two 'attacks' today. Don't know yet if it's just for today or whether I'm in for a siege. The last time it went on for four months, but wasn't as bad as the first time when I lost 12 lbs. in 3 weeks. When it goes on for a while, I see my dr. because I do wonder if it's something serious. Now I think that for me it's a SjS 'benefit.'
I'm not too bad, though, because i've had only 3 sigmoidoscopies and 1 colonoscopy in the last 8 years; they don't turn up any reason for it. The first time, the dr. said I probably picked up a pathogen they don't normally test for; it was bad, waking me up at 3:00 in the morning, etc. They prescribed Questran powder, a binding agent. When I asked my dr. how it worked, she said it often constipates patients. However, in my case that was what we wanted to accomplish! I gradually eased up on the dosage and the problem stopped.
My GI dr. put in a standing order last fall for me to pick up the little stool-sample bottles to turn in to the lab. He said I may have something that's just below the radar on the lab tests, but that if I have another long-running episode, to take in the samples every 3 weeks - lovely. He did test me for Celiac disease; nothing. Doesn't think I have IBS, either.
I have tried to figure out if it's my diet, but I don't really change it a lot. I've been taking a probiotic since last September but eased up on the dose a bit recently, so guess I'll ramp it up again to see if that makes a difference.