Dysautonomia is a general description for body wide malfunction. Symptoms are hypotension, resulting in lightheadedness, dizziness, shortness of breath, jheadache that is situated in the back of the head and 'coat hanger' area, exercise intolerance, etc.
Other issues are sweating abnormalities, often anhidrosis, but it can go either way, gastric symptoms, esophageal malfunction, constipation, diarrhea etc. Sleep is affected. Dry eyes, dry mouth are caused by neural dysfunction, not necessarily gland destruction, but biopsies will show lymphocytes. Seronegative SSA, SSB, + labial gland biopsy Sjogren's suffers will frequently present with worse neuropathy than seropositive SSA,SSB. It is crazy.
They have yet to identify which antibody does this in seronegative SSA, SSB patients who have + ANA and + lip biopsy. There may be several, and highly individual.
People with + lip biopsy and complete seronegativity may at a later time seroconvert. It may be worth an epidermal skin fiber biopsy if you have autonomic symptoms. These skin biopsies are done at research hospitals. The other diagnostic tests are autonomic tests, such as tilt table, thermoregulatory sweat test, QSARTS, R-R breathing, etc. You need to seek out a research center with an autonomic lab.
All autoimmune disease can cause a degree of peripheral neuropathy of the small fiber variety. It is this small fiber neuropathy which incites all these symptoms. (And we look like hypochondriacs, becuase so many organ systems are affected.) In addition most people with autonomic neuropathy also have sensory neuropathy.
Lupus, SjS and SSC all are associated with PN. PN can also be free standing. But it is important if one gets a diagnosis of PN to try to find causation, since causes can sometimes be treated.
The condition can be mild to devastating. Dysautonomia or its slightly worse variant, autonomic neuropathy causes a huge number of symptoms. That accounts for the wide and often difficult to describe symptoms of people who have this condition.
It is often caused by malfunction of the small fiber nerves. Sjogren's can come with peripheral neuropathy, and it is not just the burning feet people are familiar with, it is also the entire body, becuase small fibers innervate all our bodily functions. Medications can help symptoms, but there is really no known cure. Drinking water if you feel faint is one intervention. Your neurologist can give you more information on interventions. Because some people have kidney disease, I don't want to recommend anything, because kidney issues change things. Talk to your doctor.
Here is a site that gives some information.http://ndrf.org/
The National Dysautonomia Research Foundation.