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Author Topic: Saw Rheumy - Update on Me!  (Read 335 times)
fluffiebunnie
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« on: November 19, 2009, 08:28:24 AM »
I saw rheumatologist and he is happy with my progress.  Since initial flare up last year things have slowly returned to "normal".  Just slight eye and mouth dryness but hardly noticeable anymore.  No fatigue, no other problems.  He says my blood test is showing up that something is "lurking" but doesnt want to see me for a year unless I need him.  Also, the nerve conduction tests on my hands and the mri of my brain came back normal.

Looks like I am gonna be ok for a while (fingers crossed).  Not taking any medication at the moment either which is good news.

Sorry to be the bearer of good news when so many people have bad news.
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Donna

Sjogrens (on symptoms diagnosis only)
No medication at present except eye drops

Female: 42
Scottietottie
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« Reply #1 on: November 19, 2009, 08:41:48 AM »
Hi Fluffie  Smiley

We are always delighted to read good news in here. I hope it is a long long time before you have another flare.

Take care - Scottie  Smiley
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Nans
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« Reply #2 on: November 19, 2009, 09:26:57 AM »
I'm glad things are going well for you, Fluffie - and I hope they continue to do so!!   Cheesy
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Sjogren's with possible lupus overlap
plaquenil, Lodine (PRN), Omega 3-6-9, biotin, vit D, clonazepam (PRN), imodium
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Katybarstool
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« Reply #3 on: November 19, 2009, 12:57:28 PM »
Fluffie

Lovely to see you. I'm delighted with your good news. As your Sjoggie family, that's the kind of news we  like to hear.

Hugs
Kathyx
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fluffiebunnie
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Posts: 254
« Reply #4 on: November 19, 2009, 02:35:32 PM »
Thank you... I know sometimes it is nice to hear some positive news once in a while... hopefully will give other people hope of better times ahead for themselves. 
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Donna

Sjogrens (on symptoms diagnosis only)
No medication at present except eye drops

Female: 42
harrigan
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« Reply #5 on: November 19, 2009, 02:40:32 PM »
That's so good to hear Fluffie - thankyou for sharing your good news and long may it continue XX Ailsa
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Female, 50
Diagnosed with Sjogrens March 09; Rheumatoid Arthritis February 2010
Meds: Plaquenil, Methotrexate, Folic Acid, Amitriptyline, Frequent Prednisolene, Ozepramole, Tramacet, Glandosane & Viscotears.
lynnmarie219
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« Reply #6 on: November 19, 2009, 06:18:06 PM »
Woooo Hoooooo Fluffie!

That's great! Thanks for sharing your good news with us.....and the others are right...we LOVE to hear about the things that go right for us too!
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MusicGuy
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« Reply #7 on: November 19, 2009, 07:38:38 PM »
That's great news Fluffie! 
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48 male.  Sjogren's diagnosis 2008.  Meloxicam, synthroid, vitamin D.  Dr. stopped plaquenil due to vision test results.  thyroid cancer survivor.

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voiceteacher
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« Reply #8 on: November 19, 2009, 07:42:45 PM »
That's fantastic!!!!  I hope it lasts a long, long time!!!

Voiceteacher
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season nunley
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« Reply #9 on: November 19, 2009, 08:38:12 PM »
Hi fluffy. I'm so glad that you are doing well at this point. My question is, when your initial flare began a year ago, what medications did your rheumatologist have you on and did you take it faithfully? Is there anything else that you think helped you along the way to feeling better? 
 Thanks for sharing.  Season
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Patze
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« Reply #10 on: November 20, 2009, 04:15:03 AM »
Excellent news Fluffie!!!!  Good news is always welcome!  Grin


Patze
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Bucky
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« Reply #11 on: November 20, 2009, 06:37:08 AM »
Fluffie . . . . as the Helen Reddy song goes "we sure could use a little good news today" . . . and your news is great news!!  Grin

Bucky
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fluffiebunnie
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Posts: 254
« Reply #12 on: November 20, 2009, 12:43:28 PM »
Quote from: season nunley on November 19, 2009, 08:38:12 PM
Hi fluffy. I'm so glad that you are doing well at this point. My question is, when your initial flare began a year ago, what medications did your rheumatologist have you on and did you take it faithfully? Is there anything else that you think helped you along the way to feeling better?  
 Thanks for sharing.  Season

The answer to your question is that the rheumatologist gave me absolutely nothing!! I took painkillers of paracetamol and ibroprofen when I was really bad at the start, then stronger anti inflammatories for a bit.  Stopped taking them when the aching/pain subsided further.  Took amitriptylene for nerve pain when that arose, but again I stopped taking it again after a few months...

I did nothing I dont think to get over the flare.. it lasted about 8 months in total.. took a day at a time... didnt have appetite and lost two stone... didnt have energy so rested a lot...

Now I go to the gym and swim four times a week.  Am feeling really well.   I do get occasional pain around my saliva glands/jaw area but not enough and frequent enough to do anything about it.  Random pains in various parts of my body (once a day maybe) are not enough to interfere with my life.

The only thing I still use are eye drops and biotene.  I know it can come back again any day so I am making the most of every good day I have.

I hope that has helped you x
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Donna

Sjogrens (on symptoms diagnosis only)
No medication at present except eye drops

Female: 42
jaygee
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« Reply #13 on: November 20, 2009, 01:44:27 PM »
Hey Fluffie !!  Grin

Great news and long may it continue  Grin    xx
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Sicca Syndrome, IBS, Reynaud's, GERD
Plaquenil, Meloxicam, Omeprazole
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