Author Topic: What on Earth is this "Thing" for a Diagnosis?  (Read 5048 times)

beej

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Re: What on Earth is this "Thing" for a Diagnosis?
« Reply #15 on: February 11, 2010, 07:03:37 PM »
Wow, that last post actually cracked me up.  I figure one must do whatever to keep or acquire or fine tune a sense of humor with these kinds of things.  Even dark humor must have a place. 

I am sure that male doctor was extremely uncomfortable telling me this news because he was obviously very alarmed.  He is the partner of the female doctor I see and she'd left the office early that day on personal business, which is why he is the one that talked to me.  When I go back again to my doctor I will make sure it is my OWN doctor and I think she will be better to talk with.

I didn't mention this earlier, but tomorrow am I have my first colonoscopy ever, and it is disgusting to drink down all this nasty liquid prep med.  I figure I may have some polyps because my dad, grandmother and a brother did.  I thought when I scheduled it that this was the worst of my problems, LOL.  I just told a friend, "I don't need any more crap" and didn't catch on right away when he started laughing like crazy...

Rostradamus

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Re: What on Earth is this "Thing" for a Diagnosis?
« Reply #16 on: February 15, 2010, 04:04:34 PM »
Yes; when you try to talk to poeple about Sjogren's (a Swedish name), very few have heard of it and explaining is hard. I say it's Lupus's bigger nasty brother that has most of the same bad habits and then some. A great Mimic of other diseases since it causes symptoms of a dozen other diseases, and is often miss diagnosed as them. Then your freinds will so, "Oh..." and start to grasp it. So sorry you have cause to join this club. BUT there are very good informed and suportive people here.  Now you hopefully won't fell so alone. And early diagnosis and education can help you find ways to protect  against certain damages to systems and buffer some symptoms as well. My advice is formal and comlpimentary med. Many doctors recomend simple this and that to protect nerves, eyes, vascular, liver from the drugs, etc. And don't use just one resource for your information. Cross check as well as talking to different doctors and professionals. Many cases are mild and fairly manageable; I hope you are one.  Rostradamus

Rhonda

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Re: What on Earth is this "Thing" for a Diagnosis?
« Reply #17 on: February 17, 2010, 06:13:24 PM »
Sorry to hear you have this diagnosis.  Welcome to the group.  I had never heard of it either until I was "introduced" to it in April of 2009. Together, we will all get through this - one day at a time!

beej

  • Guest
Re: What on Earth is this "Thing" for a Diagnosis?
« Reply #18 on: February 20, 2010, 08:15:36 PM »
My family doctor still has not located a Rheumatologist that can see me and it has been two weeks.  I'd feel so much better if I could get to one to start taking some kind of responsibility to do what I can to alleviate symptoms and be knowledgable.

jstroble

  • Guest
Re: What on Earth is this "Thing" for a Diagnosis?
« Reply #19 on: February 21, 2010, 06:32:57 AM »
Hi

I'v had Sjogren's for several years but just found this site.  I can attest to the fact that there are wonderful and caring people here who respond quickly and kindly when you need an answer or some comfort. 

Joyce

Patze

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Re: What on Earth is this "Thing" for a Diagnosis?
« Reply #20 on: February 21, 2010, 10:14:05 AM »
Hey Beej,

You probably have, but have you called your primary about it?  I know under my old insurance, sometimes I had to ping a doctor two to three times before he would refer me to a specialist.  Can you self refer to a specialist maybe (if your insurance company allows that)?  Are you around a major medical center or a teaching hospital by chance? 

Good luck and I'll keep me fingers that you'll be able to see a rheumy soon.

Take care of yourself -

Patze
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