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Living With Sjogren's / Re: Rheumatologist in Northwest Illinois
« Last post by TTSandy on Today at 12:23:31 PM »
Dr. Diana Sandler with offices in Skokie and Highland Park. 
Very thorough and caring.
Living With Sjogren's / Live Chat tonight!
« Last post by Spring on Today at 09:08:19 AM »
Thursday chat, Live Chat: tonight, March 22! Join the Thursday super-chat 8 p.m. to 10 p.m. Eastern time! ????(7-9 central time). Just type in a unique nickname and click start to join the group and begin chatting!
Living With Sjogren's / Re: Rheumatologist in Northwest Illinois
« Last post by MarleysMom on Today at 07:00:24 AM »
Dr. Kiehn in Lake Forest
Dr. Justin Gan in Vernon Hills.
They are very good and I've met with a few.  They are the only ones that impressed me.
Living With Sjogren's / Re: Doc added Welbutrin. Anyone taking it?
« Last post by Carebear on March 21, 2018, 08:35:23 PM »
Dee, I just want you to know I am thinking of you.  I hope the addition of Welbutrin improves your quality of life.  While I haven't taken either medication, I have suffered with anxiety most of my adult life.  This all changed about four months ago, and I finally have my life back.  I pray your results are similar.

Living With Sjogren's / Re: Doc added Welbutrin. Anyone taking it?
« Last post by irish on March 21, 2018, 08:06:40 PM »
I am so sorry that life is hard and you are suffering so. I did take Wellbutrin years ago. I had one side effect that blew my pshychiatrists mind and ended my taking the drug. My breasts became swollen and I had the pain in my breasts that one gets when you are having let down prior to nursing a baby. I was miserable. Apparantly it affected a hormone in my body and was extremely rare side effect.

This med is not in the same class as the Zoloft and I would hope that it would give you some relief. Also, know that you most likely need to get your primary doctor to treat your physical health symptoms. When we are having all the issues like you mention it is very common to feel so bad that one becomes more depressed.

The only thing that I would recommend would be to ask your doc if you could start out at half dose of the Wellbutrin for a week or so to enable your body to get used to it. I will keep you in my thoughts and prayers through this situation. Hugs Irish
Living With Sjogren's / Re: Doc added Welbutrin. Anyone taking it?
« Last post by SunshineDaydream on March 21, 2018, 07:36:43 PM »
Sorry to hear things aren't going well right now. A lot of the symptoms are stress related, so hopefully practicing some stress relief activities can help.

I don't have input for you specifically regarding Zoloft and Wellbutrin combo as I haven't been on either. I have considered anti-depressants but quickly ruled them out because a possible side effect is dry mouth which I already have on my own. Just wanted you to be aware of that in case you experience increased dry mouth symptoms. If so, maybe inquire about an alternative. I'm not aware of an anti-depressant that doesn't include that as a possibility. Maybe another forum member can provide input regarding that.

Iron deficiency and dehydration can definitely cause low energy and are relatively easy to fix. Might want to check vitamin D level, too, as deficiency there can cause fatigue, too. I hope things improve for you soon.
Living With Sjogren's / Doc added Welbutrin. Anyone taking it?
« Last post by deeindiana on March 21, 2018, 05:58:28 PM »
Ive been on Zoloft 100mg for years and years for anxiety attacks. But in the last couple years my depression has dramatically increased (our youngest son's actions just break my heart). I've now gained 60 pounds and at yesterdays doctors appointment my blood pressure was high, heart rate high, sugar high, iron low, I was dehydrated, had a yeast infection and utterly failed the depression screening. Im a mess. Sigh...  My Rheummy wrote an RX for Welbutrin to take WITH the Zoloft. He thinks it will give me more energy, help lose weight, and help with the fibromyalgia so that I'll be able to get some of these other health issues in hand. Sounds great - but I'm always terrified to start new medications! Like many of us here, my body often over-reacts to meds. So, of course, I'm just sitting here staring at the bottle!  Does anyone else take the combo of Zoloft and Welbutrin?  Any advice or input?
As requested politics aside, there seems to me a need for better advising regarding drug options in general. I have SjS, positive markers, sero-negative RA, OA, neuropathy, etc. It's not just one drug I need to know about, but combinations of drugs and alternative treatments that might prove beneficial.

My rheumy is, fortunately, working with me on drug choice and treatment as are my PCP and neurologist. That said I still feel like the systems are too bi-frucated, docs don't talk to each other (even my PCP and rheumy who are with the same organization), I have to keep each of them informed. I even had to go to my PCP during a recent horrific pain flair to ask which drug  or drugs I should take (many options on the table).

I would also argue that we need better medication advising. Years ago I heard a person speak who had the title Consulting Pharmacist. He is a pharmacist who advises people about drug options that have been recommended by docs, provides info about other drugs that might work or be available, etc.

Finally, I know there are compounding pharmacies because I use one. I would love to know which drugs might be able to be combined so I don't have to take so many different ones.
I'm afraid this discussion is skirting political content, so please keep comments pertinent to the types of drugs becoming available and what you see as a need for them. the developing companies responsibilities and rights, and those of the patients, without comment on the political background or undercurrent if possible.

If this thread deteriorates to a political comparison discussion, it will be removed.
Come now, that's a bold statement considering the previous administration's FDA allowed Mylan Pharmaceuticals to price-fix the Epi-Pen (epically at that).   Or what about the FDA's lack of challenge to Allergan transferring to the Saint Regis Mohawk Tribe the rights to Restasis (Cyclosporine) in a deal to protect it from patent challenges and keep prices inflated.  The  Obama era FDA wasn't exactly friendly to a lot of patient communities, but that is neither here nor there.  Atleast today, they are trying to make Right to Try Federal Law (if Senate Dems will eventually allow it)... for that I am thankful.  The President spent about 10 minutes advocating for it during his State of the Union...  so it does have some forward inertia.

The number one rule I have learned from being a Naval Officer:  You will never be successful if you put your fate or conditions of success solely in other peoples hands.  (i.e. Own your circumstances as much as possible, and advocate for yourself, your own interests (in this case, our health, etc.).  Otherwise, you will be on the sideline lamenting, watching others and wondering why others have it better.

Edit*  On another note, I contacted the SSF to see what there level of awareness and advocacy for this legislation is.  Unfortunately, it's next to nil... and that should not be.  All of the folks I made inquires to did not even know who to pass me on to for further discussion, and had had little awareness of the State Law/Federal Bill.  So that's unfortunate to know that the folks who are supposed to be advocating for us, are missing a big opportunity.  Again, that goes back to my previous statement.  (Until SSF leadership catches on). 
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