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Living With Sjogren's / Re: Sciatica and other pain
« Last post by MAT51 on July 22, 2018, 10:14:07 PM »
MRI Spine cervical

Normal vertical body height and alignment

C3/4: no significant abnormality

C4/5: no significant abnormality

C5/6: there is broad based moderately large left paracentral and left foraminal disc extrusion projecting into the left exit foramen and causing significant narrowing. The right exit foramen is patent

C6/7: Broad based posterior central disc protrusion with an annular tear which is abutting and slightly flattening the cord in the anterior aspect but there is no obvious foraminal stenosis on either side.

C7/T1: No significant abnormality.

The cord returns normal signal. Normal cranocervical junction.

Opinion: Significant degenerative disc disease involving C5/6 and C6/7. Please correlate clinically
Living With Sjogren's / Re: Sciatica and other pain
« Last post by MAT51 on July 22, 2018, 10:13:18 PM »
Thanks Anita and Irish. I agree with you both on all fronts. In fact I feel really angry that they have had but overlooked or failed to tell me this information about my cervical spine for a few months now. I have been reporting these issues for ages and saying there’s more to this than SFN on its own with me and also asking if something much more obvious, such as osteoarthritis was at work, given I’m 55 and had an early menopause. I agree with you Anita that Sjögren’s often exaggerated the ageing process too.

However I’m not sure if this would account for the extent of my problems in my arms and legs? Whicc really are in the extreme end of ulnar nerve compression now (defintely not carpal as wrong fingers affected and my left arm up to above elbow. I can’t evem turn over in bed and carry a pillow to rest them on if I’m sitting for long as they twitch and quake! Equally my legs won’t hold me for long. Here’s the MRI report of cervical spine in case you’ve had similar:
Living With Sjogren's / Horrible Burning needle pain around neck
« Last post by angeldancer on July 22, 2018, 09:49:04 PM »
This pain in the back of my neck is horrible whereas when it starts up it stabs so hard and I cry out. I know I've started another flare with my glands popping out and extreme fatigue. Stress is getting the best of me as I am doing all the arrangements for my daughter's wedding...

This burning and feeling like multiple pins are around my neck is problematic. Is there anyone else who has had something similar. I'm trying to keep from doing another burst of prednisone. I still have another month to get in with the new rheumatologist and once again start all over.

Thanks for all your help
Living With Sjogren's / Re: Sciatica and other pain
« Last post by irish on July 22, 2018, 08:34:04 PM »
The sciatica and arm issues are probably different causes. I would ask for EMG to check out carpal tunnel and/or ulnar nerve compression. Also, hopefully an mri with dye will show if there are discs in cervical area are being compressed or having other issues.

So many issues come with these autoimmune disease plus as the years go by the aging process tends to take over also Then there is the sciatica. I have had this off and on ince age 21 and sometimes it just wears a person out. I always used to say that it lasts 6 weeks no matter what kind of treatment one does. Good luck. Irish

Of course, I am not a doctor....these are just my experiences!!!

Living With Sjogren's / Re: Mouth ulcers treatment
« Last post by snoweye on July 22, 2018, 08:34:01 PM »
Happylife, you could try:

  • rinsing with salt water (very salty, should sting a little)
  • oil pulling with coconut oil
  • chewing mastic gum

Doing this on a regular basis will improve oral hygiene and might help to prevent ulcers.
Living With Sjogren's / Re: Mouth ulcers treatment
« Last post by snoweye on July 22, 2018, 08:29:55 PM »
as when my symptoms started I had continual ulcers

Same here, and again during the first flare although not as bad.

Are you free from ulcers most of the time now?
Living With Sjogren's / Re: Abnormal EEG anyone?
« Last post by irish on July 22, 2018, 08:20:15 PM »
Better to take the med prior to having a seizure. If you have a seizure while driving and live to tell about it you will probably lose your drivers license until you are on preventive medication and been seizure free for a year or maybe it is longer now. Good luck researching this issue. Irish

Living With Sjogren's / Re: IVIG
« Last post by irish on July 22, 2018, 08:15:50 PM »
Do a search on IVIG on this forum. I have done IVIG for 12 years once a month and have a lot of posts on this forum. You can read my info and a lot of other peoples info that has already been addressed. We just went through this a few months ago with another guest so imagine the info is up to date. Good luck. Irish
Living With Sjogren's / Re: Sciatica and other pain
« Last post by anita on July 22, 2018, 07:01:38 PM »
This makes much more sense then other things they have been considering.  DDD is common as we age, and Sjogren's can certainly speed up the process of damage.  I hope they get you a surgical consult soon.  They have many types of minimal surgical options now to alleviate compression....maybe they can get you some relief with minimal invasive techniques.

Please keep us posted on what the PT tells you and getting you another consult.

Living With Sjogren's / Re: IVIG
« Last post by vrystaat on July 22, 2018, 05:46:02 PM »
I've had one go-around with IVIG a few years ago. I had no complications.
It didn't help me then. Now I'm having a much more intensive course, taking 6 months.
I like the summary on Medscape:

Also, I had many opinions at the time. My main Rheumi did not recommend it, because its effect is so short-lived.
However it does have significant anti-inflammatory effects.
Best wishes
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