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Your GP switched you to something different after three weeks? I'm confused. When my rheumy prescribed the Zoloft for me he said it would take at least three weeks before I even noticed a difference.  Medications are so darn confusing!  But I hope this new RX works well for you!

Two days after starting the Zoloft I developed a horrible cold and am feeling pretty miserable. Or at least I'm hoping it's a cold and not a flair up or reaction to the Zoloft.
Deb

Howdy Ynevar, welcome to the family.  I hope you get your answers soon.  Be persistent with your doctors. write down what they say.  Do your own research.  The Net is a great place to find answers.  When you see your doctors have a written list of questions for them.  You need to be your own best advocate when dealing with your doctors. 

Search this site for past posts on your symptoms.  You will find a lot of great information here.  Any time you need support or just need to vent, you will always find an ear here.

Welcome again
Seeker

Most of 08 and up to Jan of 09 I was on IVIG,, in December of 09 they put me on a loading dose,, 5 days straight,,, I had infusions monthly until April when they thought it wasent doing me any good,,, then the trip to Mayo,, in there recommendations they said no more IVIG,, and no more immunosuppresents,, so thats why I dont get it anymore,, as I have said,, I have only way of possibly getting it,, and that to let the rheummy continue to call it SS,, and possibly have him get me IVIG,,, I see no other way to do it,,, Just so tird of fighting for what I believe should be some decent medical care,,
  My wife is back to taking my keys during the day while shes at work,,I have a pain clinic appt on tuesday,,, I have no idea what to expect from them,, and see the rheummy in Pittsburgh on Wed,, if I get no where with these people,, I give up,, my neuro is not going to do anything,, and to get another one,, thats weeks to months away to get in,,, and have to start all over,, I had a case worker,, but I forget her name,, and she was supposed to call in monthly,, that was two months ago that she called,, so I dont know,, I;m just tired of getting up at 4am in pain,, not wanting to face another day,,, its getting cold out here,, cold out to me is 60 degrees,, it might as well be20 below,,

Hi Lizzi,

Prednisone/Prednisolone as a sleep aid?  That's news to me.  Whenever I have been on it, it causes me to become keyed up - energized...which makes it harder to fall asleep.

Maybe he meant that it may cause insomnia with the higher doses, but by decreasing the amount each week, your sleep won't be as interrupted then?


Wishing you sweet dreams!
Julie

Welcome Rayven, It does sound like you are on a roller coaster. A roller coaster is a lot more endurable when the ride is shared.  That's what this forum is all about.  Sharing and getting the support you need.  You are not alone.  Don't be a stranger and post often.


Seeker

G'day, susanep If the card doesn't work, you can try asking the AMA or do a people search on the net.  She must have referred her other patients to other doctors.  If worse comes to worse contact a Lawyer who specializes in disability cases and let them handle it.  I hope some of the suggestions will help.

Good luck
Seeker

Then treat each day as a gift, and live life to the fullest.  Cherish each moment with family friends and others. Give and others will give back to you.  Each day is an adventure waiting to happen.

Seeker

Howdy bob212, it's sound's like you are trying to doing all the right things to protect your teeth.  Tooth Decay is a big problem when you have SJS.

As to why I don't use fluoride, it has to do with the research I've done. You need to do your own research and make your own choice.  I would suggest the book (The Fluoride Deception)  by Christoper Bryson.  Also do a Google search on Fluoride.

I will tell you if you talk about Fluoride with your Dentist, you will get the current party line and be told Fluoride is safe. 

Ok, since I have gone this far I will tell you one of my reasons why no Fluoride.  It destroys the Thyroid.
I hope you will take my advice and do your own research.  I think you will be surprised and shocked at what you'll find.

Seeker.   

Welcome...glad you found us.  Everyone here is quite helpful.

Liz

I had a little trouble sleeping at 20 mgs. but I am at 15 now and doing fine. 

I have never heard nor read that it would help you sleep though. 

Joyce