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Living With Sjogren's / Re: home safe
« Last post by Jenny on Today at 04:25:58 AM »
I am in central eastern Florida. My county has only 38 cases of the virus so far. I just turned 65 and have pretty much stayed home. My only exception was this weekend I got to meet my first great grandbaby. She is adorable!  I have beome a resin artist in the last year, so I am home most of the time anyways, creating art. Most of it is coastal related. (You can check me out on Instagram and Facebook under Jenny?s Coastal Art.) My husband, however, is going nuts! He used to go to the gym several times a week and hang out at Home Depot. I try to take a half hour walk with him a few times a week, but I pay for it with terrible back pain the rest of the day. Stay healthy and sane all!
Living With Sjogren's / Re: home safe
« Last post by Linda196 on Today at 02:42:05 AM »
It's handled a bit differently here, everyone is requested to maintain social or physical distancing, called shelter in place or stay at home.

Anyone meeting certain criteria is required to self isolate. That includes those who have traveled outside the province, has symptoms, has been tested pending results or has tested positive, or been in contact with anyone who meets those requirements. Many healthcare workers and essential services are self isolating voluntarily to prevent taking anything home from "hot spots".

Self isolating involves staying in your own home, or within the confines of your own property; having someone make non-contact deliveries of necessities to your door; daily tele-monitoring, recording temperature twice a day, and reviewing possible symptoms; Law enforcement if necessary (they have cleared out several local beaches and hiking trails when there were many cars in the parking lots, and the beaches, parks and trails are now closed).

Social/physical distancing involves staying at home whenever possible, but designating one person to run errands (me for our extended family and a few neighbours), on as limited a basis as possible; walking outside within your neighbourhood, alone or in small family groups from single households; no "distanced" parties where some feel you can get together with neighbours if you stay 2 M apart, unless you are in a single household. Basically, unless you live with someone, or you are the designated runner, you don't get together!

Stores, most of which are closed or offering curbside or home delivery, are limiting number of people inside, directing traffic to one way aisles and marked 2 M spacing in line ups, plexiglass screens in front of cashiers, and sanitizing wipes between each customer for 20 second contact on keypads, counters, plexiglass and any other contact surfaces. They no longer accept reusable shopping bags or refillable containers for bulk, and most strictly bulk stores are closed or extremely supervised. Shopping is no longer a quick outing, but everyone has been adaptable to the new "one person one cart", no browsing, in and out shopping.

If I were under restriction, I doubt inactivity would be a problem, I'd probably enjoy it for the first 2 weeks! I feel like I haven't stopped since this all started, between family business things that have come up unrelated to COVID, organizing some of my volunteer projects to allow online participation, helping my daughter home school at a distance, and adding another volunteer agency that needed phone support. Silly me, at first, I thought, "Great! I'll get to some of those craft projects I've been wanting to do!" Hasn't happened yet!
Living With Sjogren's / Re: home safe
« Last post by Liz D. on March 31, 2020, 06:13:10 PM »
I live in Massachusetts and have a stay at home order until May 4 as of right now.  The order was supposed to end today but they extended it another 30+ days.

I personally am not having any problems with it.  The inactivity doesn’t bother me as I’m not much of a ball of energy anyway.  But my heart sure aches for those who are.  I have a sister who is on the go continually and is having a real hard time.  She’s being obedient to the order but her anxiety is pretty high and sometimes she feels claustrophobic.  It really is a new learning experience for all of us.

Everyone stay safe!

Liz D.
Living With Sjogren's / home safe
« Last post by Spring on March 31, 2020, 05:36:11 PM »
How many of you are on safe at home requests? Is inactivity a problem?

Living With Sjogren's / Re: Body temperature and sjogrens
« Last post by angeldancer on March 30, 2020, 03:39:37 PM »
My temperature right now is 96.6.  I feel bad when it drops to 95.8 and when its 98.8.  The headaches are real and sometimes I just don't know how to handle things.  My insurance drop my last doctors so now I am back to the beginning after dealing with this diagnosis since 2013 to having to find doctors again is horrible.  My normal temp now is about 97.2 so on that note, I wish it were that right now because I would feel so much better.
Living Life In Spite of Sjogren's / GOOD NEWS STORIES from Coronaville
« Last post by Linda196 on March 29, 2020, 02:47:27 AM »
These are very scary times, especially for people like us, already experiencing health concerns, some of which actually make the world events even more so.

Lets focus, just for a few minutes, on the Silver Lining! there usually is one, even if it's sometimes very hard to find!

There are stories emerging, everywhere from International news stories to quiet neighbourhood stories, of people acting out of concern, kindness and simple companionship, to make this ordeal a wee bit easier.

If you know of any such stories, please share them here. It will give us a bright place to spend a few minutes, smile, and see the good in people and the world.

I'd like to start us off with one of the first gestures I've sen in my own little area.  Almost immediately after the first few cases were diagnosed in this province, food venues were closed with the exception of take out and delivery to prevent gatherings of more than a few people. As you can imagine, this might be a bit inconvenient,but not disastrous, unless you happen to be a long haul  or over the road trucker! These heroes of the highway practically live in their big rigs, so closure of restaurants and truck stops, and the inability to take those rigs through drive throughs resulted in much more than inconvenience! One woman, owner of a roadside diner with a truckers rest lounge, opted to keep her place open to truckers only, for hot sit down meals; and showers and rest facilities at no charge! As a result, she is under strict self isolation other than no-contact interaction with her guests, and she worked this alone 24/7 for 2 1/2 days until some of her family members and staff were able to spell her, but now, they all live in the diner until isolation can be lifted!

Since that time, corporate truck stops and restaurants have made provisions, and many are open to truckers as usual, while drive through regulations have been relaxed to allow walk ups, but she lit the way, and because of her and a bunch of dedicated truckers, provisions continue to be hauled through two provinces that might have been cut off, since she is located in a central supply corridor.

I just filled my 30 day prescription. My insurance never approved 90 days, my rhuemy tried years ago. Pharmacist said I got the last of what they have.  It?s on backorder for at least 3 weeks.  I hope everyone who needs this medicine, for whatever reason is able to have access to it.  I?ve had a lot of anxiety and now have SHINGLES. Ugh

Take care everyone!

Sj?gren?s patients have compromised immune systems. This specific risk factor is for those who regularly take drugs to suppress the immune system. Examples include prednisone, methylprednisolone, Imuran, azathioprine, methotrexate, leflunomide, Arava, CellCept, mycophenolate, Rituxan, cyclophosphamide.

Please note that hydroxychloroquine (Plaquenil) does NOT suppress your immune system and does not increase any risk for a more serious illness from COVID-19. However all Sj?gren?s patients should still be diligent and be tested if symptoms become present.

That answers some questions.
I was going to try oatmeal and a hard boiled egg but was wondering what works well for others.   any suggestions for taking Plaquenil and breakfast?
As most of us, I have pre existing conditions, so I have to try to shelter in place. I've gone in two stores since all this happened and one wasn't a store but the Vet's office to pick up doggy prescriptions. I am not the only one with chronic health conditions-:)))

I'm retired so life is about the same for me right now. I just can't go out and do my usual errands, shopping, visiting with friends. So, I sit outside a lot, play with my dogs, text and e-mail a lot with friends and family. I've also been riding my bike almost every day. It's been very warm in the south, so we had our 2nd day of swimming here! That's a nice stress buster. I've also done some reading and napping. I've also managed to clean out a few drawers and boxes I haven't opened since I moved two years ago. Ha, ha, ha! Junk I am going to put in the trash!!!!

I've done a little crafting as well. The creative mood can wax and wane.

Wishing everyone good health and happiness!!! Hoping this will be over sooner rather than later!!!
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