Recent Posts

Pages: [1] 2 3 ... 10
Living With Sjogren's / Tip of ring finger numb
« Last post by SjoGirl on Today at 12:09:04 PM »
Just venting. My left ring finger has been swelling for months. I was going to take Medrol because I had swelling in other fingers and in my feet but that subsided. My ring finger is still a mess and now the top is going numb. I see the orthopedist in two weeks, need to try to be patient!!!
Living With Sjogren's / Re: New treatment
« Last post by irish on Today at 11:51:43 AM »
I have some observations. First of all, I don't see or hear about a line of people waiting to get this treatment. Also, I don't see a lot of doctors writing in favor of this treatment nor do I see any hospitals who use this for any or a lot of patients have their names in any magazines.

If there was a lot of positive input about this treatment I would expect to see the medical magazines over run with articles about the glory of this treatment.

And lastly, there are a few anti parasitic drugs and other drugs used to get rid of the worms that people have in their colon. Generally worms in colon have the tendency to migrate to other of them being the brain. Ii am inclined to wait this one out. Research needs to be done in large quantity and I do believe the medical community is not too inclined to get involved with this at this time. My opinion. No opinion of each person just opinion on worm therapy. Itish
Living With Sjogren's / Re: New treatment
« Last post by rcristal on Today at 10:28:52 AM »
  I have discussed this with medical people for years.   Most agree with the concept but will not recommend it until the FDA weighs in.  As my symptoms have progressed I have become very close to trying it.  I actually had this conversation as recently as this morning with a professional.

Living With Sjogren's / Re: New treatment
« Last post by SabbraCadabra on Today at 05:38:24 AM »
Well, it's been two years now, so hopefully I start seeing some improvements soon.

It does seem like I have a lot less fatigue these days, but I also haven't been working as hard, so it's difficult to say that it's one thing or the other.

Dryness and food allergies seem about the same.

I only took my third dose a few weeks ago though, so it's still "early days", so to speak. Not giving up hope, just a small update.

IIRC, my first dose was 5, my second dose was 15, and my third dose was 10. The second dose gave me really bad "worm flu" for a day or two (severe nausea all day), so I decided to lower it a little.
Living With Sjogren's / Re: question for potential new member
« Last post by Joe S. on November 11, 2019, 08:05:23 PM »
I do not speak Spanish but I believe that the babble fish app when added to your browser will translate. My will sometimes pop up and offer me a translation in Facebook. It does not do it all the time.
Living With Sjogren's / question for potential new member
« Last post by Linda196 on November 11, 2019, 05:31:52 PM »
On behalf of a possible new member, are there any Spanish speaking members who cold help a newbie not confident in her ability to communicate in English?
Living With Sjogren's / Re: Electrical storm in my hands - weird!
« Last post by irish on November 11, 2019, 12:39:49 PM »
Some of my neuropath is left over from damage from carpal tunnel and the rest of the neuro stuff is spinal cord damage that occurred prior to my spinal fusion. Neither of this damage will leave per my neurosurgeon. I have to tell you that about 6=8 months ago I had white fingers on my right hand and it was also painful. I had to keep my hand warm all the time and also I think keeping it elevated helped some also.

My hands bother me so much off and on and the pain goes above the wrist. I had tried different things to "fix" this and finally thought I would try wearing vinyl gloves from Walmart. This works. I have to wear them dugong the day some and always wear them at night. I stuff some kleenex under the glove on the top of my hands as this area will itch and the kleenex helps solve that issue.

My doctor said that these gloves work because they compress the area that gives problems. This makes sense to me plus I think the gloves keep the tips of my fingers warm. I looked on internet and found that there are compression gloves that one can buy that are some kind of cloth. People with r. arthritis use these a lot. They are a little spend plus I would have to wash them out frequently. So far I just choose to use the vinyl. I should buy the vinyl to wear when I am out and about.

I have learned that neuro problems can really do interesting things. Hope you feel better. Irish
Living With Sjogren's / Re: From patient to caregiver! Yikes!
« Last post by irish on November 11, 2019, 12:28:36 PM »
Im sorry to hear about this accident. I bet that is painful.....or will be if surgery is needed.

You will learn to do what needs to be done. My hubby traveled much of our married life and when he was home he was outside icing things and at our boys helping build houses, garages, etc. I didn't grow up doing anything much outside but I sure learned in a hurry. Alsoo learned a lot from my hubby ad learned to know what to do or who to call when appliances didn't work, well didn't work.
, etc you name it. Now that hubby is gone and I am not able to do much I sure miss the work and challenge of running a house, garden, etc. Back then it was work, now I would give my right arm to be able to do it again. Please take care.

Now days you can google a lot of things plus you have hubby there so you can ask questions. The hard part will be keeping hubby down and not over doing. Irish
Living With Sjogren's / Re: From patient to caregiver! Yikes!
« Last post by SjoGirl on November 11, 2019, 09:52:39 AM »
Deb, That deserves an OMG! I'm glad he's not worse but this does sound aweful.

My husband had not been traveling for years and did a great deal around the house. I was surprised when he started going away again at what I could accomplish. I just have to be careful and pace myself.

Good luck to both of you!
Pages: [1] 2 3 ... 10