Recent Posts

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I love ReMag and ReMyte products .. Check them out. I think it's RNA reset site.
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Living With Sjogren's / Re: Have you ever seen a HAND SAUNA?
« Last post by jazzlover on Today at 07:25:02 AM »
It has steam right along with it and is supposed to be hydrating! :)

(but I will)
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Wonderful news Woolygimp.  I hope all is still well with you.  Do you still consider you Sjogrens in remission?  Update please.  Also, did you experience restless legs syndrome, Raynauds and small fiber neuropathy with your Sjogrens?  Are you still doing the helminthic therapy, assuming you're using hookworms?
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Living With Sjogren's / Re: Urinary symptoms and Interstitial Cystitis.
« Last post by Carolina on Today at 07:00:24 AM »
When I have bladder pain, mild exercise in a relatively warm water pool helps enormously.

A heating pad on my lower back (referred pain) is also helpful night.

Hugs,  Elaine
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Living With Sjogren's / Re: No appetite
« Last post by GgcJap on Today at 04:05:53 AM »
@Meow: Thank you, I'll look into it. From what I've read a lot of the adrenal gland problems seem to match my symptoms. Will def look into it some more.

@Irish: I'll ask my psych next time I see him. I would love t9 feel hungry again.
The brain chemicals are heavily involved. I'm finding my state of mind goes up and down with my sickness or visa versa, I don't know which yet.

GgcJap
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Living With Sjogren's / Re: Sjogren's Mystery
« Last post by Sharon on Today at 03:03:35 AM »
Thanks Irish, those are interesting questions.
I'm certain the composition of my saliva has changed with SJS.
Local change in temerature doesn't seem to change the occurrence.
I have been to top specialists in my area and they can't figure out what is causing the swelling.
The immediate swelling the occurs when I eat must be the glands since it also drains quickly.
The general swelling I get from dryness might be the tissues since it's more stubborn in going away.
I was almost certain there were mucus plugs in my accessory glands preventing the glands from draining properly, thus causing temporay swelling when I get a rush of saliva upon eating, but the
MRI didn't pick up on anything.
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When a person takes magnesium it is wise to check with your doctor as to the safety of doing so and the amount to take.

Magnesium is not safe for people with Myasthenia gravis which is a neurological autoimmune disease. This disease causes muscle weakness and can cause death under certain circumstances. THe magnesium tends to cause weakness in myasthenics. If someone took magnesium and was a undiagnosed myasthenia patient it could potentially cause great problems. Thanks. Irish
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Living With Sjogren's / Re: No appetite
« Last post by irish on January 19, 2017, 09:38:26 PM »
It would not surprise me if there are certain antidepressants that can be used. I would have to research this. However, I have had reason to do searches on symptoms of low serotonin this past week. Some friends having health issues and they don't understand what serotonin is and what it does.

The brain chemicals are so involved in so many body functions. You might want to ask your doc about this. Irish
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Living With Sjogren's / Re: Sjogren's Mystery
« Last post by irish on January 19, 2017, 09:33:32 PM »
I had several things fly through my brain and I will just put them down for you to ponder over. If they are even worth pondering.lol

The first thing I thought was if this w.as a case of saliva being secreted so fast that it couldn't be drained fast enough. Even if your saliva isn't thick I wonder if it still has the same composition as it used to. The body changes the composition of the saliva when we are affected with Sjogrens.

This sure is a weird manifestation for you to deal with. I am also wondering about the effect of theprocess that takes place with the glands and production of the saliva or mucus. Is there some chemical action that causes an increase in circulation of blood to the area that leads to the swelling??

Have the doctors isolated just what is swelling? Is it the tissues in the face or the small and large salivary glands individually? For some reason the thought of the temperature change in the tissues due to the increase of saliva seems to be bugging me a little.. Metabolism itself can cause a rise in temperature in certain areas.

What happens if you place cool cloths on the swelling?? It is not fun to have these problems that occur and not know what or what to do to treat it. Hope others can come up with some thoughts too. Good luck to you with this. Irish

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Living With Sjogren's / Re: Vaginal infections
« Last post by irish on January 19, 2017, 09:09:51 PM »
I had mine checked quite a while ago and I guess I can agree that the levels probably vary, but it would be nice to have a baseline figure just in case for the future. Just my thoughts. Irish
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