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Living With Sjogren's / Re: NO Foot Pads... Just Generally Frustrated
« Last post by Kathy57 on Today at 07:44:53 PM »
I do not have what you describe but I started having pain in the balls of my feet and numbness and tingling several years ago.  I have to be very careful about what shoes I wear because of the pain.

I have found that Birkenstock?s are my go to for Sandals  and shoes.  Some of them are not bad looking and they can be pricey but they are worth it! 

I also wear a comfortable walking tennis shoe in which I use Birkenstock insoles.  I used to wear the cutest heeled shoes but not anymore!  If I go to a wedding I can wear very low heeled pumps for a couple of hours, but they have to be a supportive and well made shoe.

I did see a Podiatrist and got some very expensive orthotics.  I was not happy with them.  The Podiatrist I went to tried to push surgery on me but I got a second opinion and I am glad I did not do it.

It was trial and error but I have to wear a really good and supportive shoe.  I gave my little granddaughter all of my old high heeled shoes and she loved it!🤗

Have you been to a Podiatrist?  It is miserable to be in pain with every step you take.  I hope you find what works for you.  Do not give up because you are worth it.

Also, have you tried water aerobics classes?  Shallow end classes still bother my feet some but the deep end classes are a good workout without bothering your feet.  It is a way to get some exercise and be active. 

I love Birkenstock so much that I have multiple pairs.  The more you wear them, the more they conform to your feet.  Some of my oldest pairs are the most comfortable.  They last a long time.

Good luck,

Living With Sjogren's / Re: Pepcid v. Zantac - Which has proven most helpful?
« Last post by irish on September 19, 2019, 08:53:32 PM »
hey are testing all these drug ingredients and before you know it we will lose a whole bunch of drugs. Zantac was found to have a tiny bit of cancer causing something or other in it. I heard a college lecture for the public about 30 years ago and he basically said that everything we eat and all the pills we take have something that will cause something or other. Relax he said cause the testing is done and we can't get rid of all the items that cause cancer.

Case in point: he said that apricots or peaches ( I forget which right now) had a pit that carried cyanide. The soft flesh of the fruit is right next to the pit.....I am waiting for the scientists to take that off the market. This professor said that nature makes a lot of products that in large amounts are dangerous but in smaller amounts are not. We have to use our head.

Sometimes I think that the academia get so wound up trying to save their jobs. Stop and think about the drugs taken off for a tiny amount of cancer causing product that many say is safe. Does their saying its dangerous help some other drug company. Just some thoughts. Irish
Living With Sjogren's / Re: NO Foot Pads... Just Generally Frustrated
« Last post by irish on September 19, 2019, 08:41:02 PM »
Don't try to get out of wearing tennis shoes and orthotics cause they are necessary for many people with issues.
this is serious and to walk barefoot or not take care of your feet could set you up for more issues. Going barefoot can cause us to get small cuts or abrasions on our feet and this can develop into infections.

Be are to wear stocking with your orthotics and tennis cause feet sweat so much without them ands one can get yeast infections on our feet from the moisture. Like athletes foot. You might have to change your stockings several times a day. I am diabetic and always wear sandals and socks or a heavy sock alone in the house. I don't want to have injuries that could get infected. Some of these things we just have to learn to adjust to.

I don't know what kind of a caregiver you have but if they are employed by an agency I would call and report them. The other thing to do is to really let all these people know they are being ruse and uncaring.....if yoyo think the caregiver will quit or be fired you will have to take care of this yourself. Thanks. Hope every thing works out. Are you new on this site????Irish
Living With Sjogren's / Re: Non Hodgkin’s lymphoma
« Last post by irish on September 19, 2019, 08:31:52 PM »
I haven't researched it lately but I do know that one of the first symptoms is sweating a lot. One of our sportscasters in the twin cities in MN (years ago) was seating so much at night that he would have to change his jambes at night and sometimes his wife would change the sheets. His wife looked up on line illnesses with heavy sweating and found this disease. He did have it and had the treatment and is still around on TV and it was 30 years ago or so.

The best thing to do is to see the doctor and talk with him and if he suspects it blood work can be done. Whether it is you or someone else do remember not to panic because there are meds one can take. The important thing is to see the doctor sooner so that the disease won't spread. Good luck, Keep us updated if you have info. Irish
Living With Sjogren's / Non Hodgkin’s lymphoma
« Last post by Cassi307 on September 19, 2019, 05:35:12 PM »
 What kind of symptoms would someone with Sjogren’s have  if doctors suspect non-Hodgkin’s lymphoma?
Living With Sjogren's / Re: NO Foot Pads... Just Generally Frustrated
« Last post by jazzlover on September 19, 2019, 01:34:58 PM »
NO, but I have arthritis in my feet. I HAVE TO wear sneakers with prescribed orthotics. I would suggest getting some very good sneakers and orthotics!!

 I can't walk barefoot either. Just taking a shower is painful for me.

Tell your family to go fly a kite!!! :-\
Living With Sjogren's / Re: Dizziness, Rocking Boat Feeling
« Last post by jazzlover on September 19, 2019, 01:33:05 PM »
I had that feeling from babesiois .. which can be spread by ticks. It's a common symptom of babesia.
Living With Sjogren's / Re: Pepcid v. Zantac - Which has proven most helpful?
« Last post by jazzlover on September 19, 2019, 01:32:17 PM »
Zantac is now being removed from the market .. the latest I've heard.

I never could take that one. I do well on Pepcid.
Living With Sjogren's / Re: Dizziness, Rocking Boat Feeling
« Last post by eye2dry on September 19, 2019, 06:32:04 AM »
Hello there.

Yes, I have this as well. I become confused where the ground or stair steps are and trip up myself.
I have also reached for my water bottle on a counter and took 3 tries to get it in my hand. Every time I
Tried I would come up short on the distance of where it was and where my hand grabbed for it.

I bounce off hallways and door ways. When coming off the last step of the stairs, I take my toe and tap the
surface to make sure it's really there and how close/far it is.

On and on I could list things. I sometimes get a spinning dizzy feeling come over me occasionally.

It is annoying for sure....but it sounds like a sjogrens thing.

Take care.
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