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Sjogrens Topics => Living With Sjogren's => Topic started by: eyeamdry on June 08, 2009, 07:46:06 PM

Title: This waiting is killing me :-(
Post by: eyeamdry on June 08, 2009, 07:46:06 PM
This will be a whiney post, but I know I can share all my wahhhhhhhs with you guys.  I am falling apart piece by piece.  Let's count the ways. lol.  1.  My big toe is killing me but that's just "fun." 

I have a partial knee replacement and it's about 8 years old.  It has begun to hurt me lately and I let it go awhile and then I thought this isn't right and went to my ortho surgeon who did the implant.  He is in Grand Rapids, an hour away, but a really good doc.  I went to see him and they x-rayed me all around the knees and couldn't see anything wrong.  Then I was told to have a bone scan so they could look deeper.  They arranged one at a hospital near me.  I went and had it done and waited for more than two weeks and began to call the ortho doc.  Well, there is something wrong, but they don't know what.  It might be loose, have an infection etc.  Well, once you've had cancer, you always think of that first.  Mine has only been two years.  So--I have another appt with the ortho doc on June 22 and I will take the scan itself with me in person.  Now I have to find it at the local hospital. Hmph.  I can walk with just a bit of a limp so I'm not inconvenienced much.  It's the waiting.

Heart disease and sudden death run high in my family.  I have pvc's or something like that since I've been 12 and I'm 60+ now.  My older sister is 72 and has been battling colon cancer since Oct and having a really hard time with hospital infections etc. and not able to get her chemo finished.  Lately she has been having problems with her blood pressure dropping for no reason.  Back and forth-hospital.  One day they just put in a pacemaker.  She lives in Pa so we usually find out about things after they are done.  So far whe is doing ok.  That was two weeks ago.  Well less than a week after that, my brother was found dead in his house.  He was 71 and lived alone.  I found out that he had been having "heart episodes" just recently and went to ER twice and had the paddles both times.  No doubt, he needed more than they gave him. 

I'm thinking--I'm hightailing it to my cardiologist asap.  And I did.  I had echocardiogram and stress test along with some other "pictures."  Today the office called and told me that my echo was normal, but the stress test was not normal.  Ok, I could not get any info out of her and have an appt with cardio on Thursday.   So, my general feeling on this is that I am glad I went in and while they FOUND something, it's alot better than not knowing whatever it is.  It could be something minor, but also a blockage or whatever.  Jeez, I'd like to get drunk but it probably would kill me with all the meds I take, so I'll pass on that. 

Funny thing is my big toe hurts more than any of the other stuff, but I can deal with that.  I'll post when I know something about all this other stuff.   >:(  Lucy
Title: Re: This waiting is killing me :-(
Post by: Poochie on June 08, 2009, 10:15:36 PM
Good luck Lucy, I just went down that road with the stress tests.  But that's another story.  I see my cardio on the 10th and find out what they are going do about my bad MVP.  The tachycardia has increased and is totally wrecking what little sleep I can get. 

Take care gal and let us know what you find out.  Until then my thoughts and prayers are with you.  So sorry to hear about your brother and sister. 

Hugs, Pooh
Title: Re: This waiting is killing me :-(
Post by: Katybarstool on June 09, 2009, 01:56:09 PM
Lucy

I will be thinking of you on Thursday, and sending lots of positive vibes. Thank God you went to the cardiologist, at least if they find something you can get treatment started a.s.ap.

My condolenses on the loss of your brother.

Kathyx
Title: Re: This waiting is killing me :-(
Post by: Dolly Dimples on June 09, 2009, 02:17:23 PM
  My goodness Lucy, talk about everything happening at once, you must be shattered with the stress of all this worry and sadness!

  Hope you get some good news on Thursday , your due some!
  We had a year similar to that last year when everything went wrong somewhere in the family, deaths and ill health,also job losses

still having some worries about my Grandaughter who goes tomorrow for a scan on her stomach, due to awful indigestion, she is only 31 and is still coming out in hives which started last year , her husband lost his job at Christmas , and she is struggling with her part time job at school lunchtimes..
   so, know how your feeling!    my big toe is ok tho',  Hugs Dolly x
Title: Re: This waiting is killing me :-(
Post by: seren on June 09, 2009, 03:36:08 PM
Oh my goodness lucy...you really have it going on right now, the waiting game really is so stressful. I am really sorry about your brother....if you can keep your 'head' whilst all this is going on then you'll weather anything. I really hope you get the right help and treatment, good luck on the 22nd, bless your heart!  ;D

Take care

Paula
Title: Re: This waiting is killing me :-(
Post by: Shari on June 09, 2009, 04:22:25 PM
Hello Lucy...So sorry that you have to experience the death of your brother.  It leaves a big hole in ones life.

Take care of the big toe...so it does not get bigger!

Also good that you are checking out your heart  thoroughly.  I had problems with blood pressure dropping but not so much if I make sure to keep very hydrated.

Take care Lucy
Title: Re: This waiting is killing me :-(
Post by: quiger on June 09, 2009, 04:38:13 PM
Oh Lucy, how awful for you and your family.

Good luck. I hope it is something very minor and easily taken care of. I know the waiting can be miserable. Please let us know what you find out.

Will be thinking of you.

Hugs,
quig
Title: Re: This waiting is killing me :-(
Post by: Scottietottie on June 09, 2009, 04:41:53 PM
Hi Lucy

Sounds like troubles are just coming at you from all directions. Doesn't sound to me like you're moaning - just sharing - and we're here to listen.

Waiting for test results is always really stressful - and that's without all the other stresses plus beravement too. I'm sorry about your brother. That must have been a terrible shock.

Hopefully you feel more in control once you have the test results and can get on with dealing with whatever. It sounds like your docs are good anyway.

I also hope your big toe eases off for you!

Take care - Scottie
Title: Re: This waiting is killing me :-(
Post by: lynnmarie219 on June 09, 2009, 06:04:14 PM
(((((((((Lucy))))))))

I'm so sorry for the loss of your dear brother....and my positive thoughts and prayers are with you and your sister....you both need them right now so that you can weather all the medical stuff that has hit you both all at once and to get through these rough times.

Good luck at your appt. and let us know what you find out!
Title: Re: This waiting is killing me :-(
Post by: eyeamdry on June 09, 2009, 06:16:28 PM
Thank you everyone.  I guess being "older" has it's advantages in the waiting game.  Experience counts!
It was two years ago I was waiting on a cancer biopsy.  It was two and one-half years I was waiting on SJS tests and biopsy. 

I hope there is a message here, too.  This was a very odd happening with both my brother and sister having heart problems at the same time.  My brother passing sort of said "this is serious."  I also believe he could have been saved by a pacemaker or something, but that didn't happen.  He lived by himself and had no wife or g.f. to nag him about things and you know how men are.  I had a lightbulb moment and headed right for the phone.  Glad I did.

After I find out what's wrong, I am going to tell my younger sister, the baby of the family she should get checked out.  She is the one who has always exercised, weighs 110 and walks 3 miles everyday and nursed her husband from near death and paralysis back to spiffy condition.  She will probably brush me off, but I'll try.  I'll post when I find out what this is.  Maybe just something fairly simple.  I have had a heart cath before and that's invasive and no fun.  Lucy
Title: Re: This waiting is killing me :-(
Post by: Patze on June 09, 2009, 06:22:16 PM
Hi Lucy,

Please except my sympathies on the loss of your brother, and I'm sorry to hear about you and your sister.  Wow, and let me send you a ton of giant (and soft)

( ( ( ( (  H U G S  ) ) ) ) )


I will keep you and your family in my thoughts and prayers, and I sure hope that the doctor finally figures out what's up with your knee.

Please take care -

Patze
Title: Re: This waiting is killing me :-(
Post by: kimbo on June 09, 2009, 08:13:14 PM
Lucy,

So sorry for the loss of your brother. And your sisters complications also.

I am very glad it has put you on alert.

Prayers and hugs,  kimbo
Title: Re: This waiting is killing me :-(
Post by: gsmraxe on June 10, 2009, 07:57:02 AM
Hope your toe and everything else feels better soon... :)
Title: Re: This waiting is killing me :-(
Post by: eyeamdry on June 11, 2009, 04:18:22 PM
To Kimbo:  today the toe and everything hurts still.  It's chilly and rainy so we can chalk that up to the weather.  Sure.

Ok, folks, I went to the cardiologist today.  The thing is that I have one blocked artery and will be having a heart cath next week.  If needed, a stent can be put in at that time to keep things open.  There is a (slim) chance that they could find more and a bypass would then be scheduled.  I am not at all thinking in that direction.  Being realistic, not in denial.  

I have had a heart cath before, about 10 years ago.  It was bad because I had to report the earliest in the morning with nothing to eat or drink.  Then I kept getting pushed back until it was 6 pm before they started the cath and I had laid in bed all day with nothing to eat or drink.  Caffeine headache and a darn drip in my vein.  This time I can have a light breakfast and don't need to go in until 12:30 pm.  I should be able to go home afterward, unless they put in a stent.  

My cardio is a great doc.  He is very tall and skinny, with grey thinning hair and a scraggy beard, crooked teeth and really homely.  He has the best side manner of any doc I've ever seen.    I will take the homely doc with his good humor and a minute to talk anytime over the others.  He is with a very large practice, too.  Hubby has him also.  Lucy
edit:typo and comments not relating to subject.
Title: Re: This waiting is killing me :-(
Post by: Epson on June 11, 2009, 04:25:58 PM
Lucy,

Sounds like you found Doctor House, well his homely good natured brother.  Good luck with the stent, I get one next week, but it will be going in the other end ;D
Title: Re: This waiting is killing me :-(
Post by: Scottietottie on June 11, 2009, 05:55:34 PM
Hi Lucy  :)

I'm sorry they found something and glad they did all at the same time. I'm happy it's being dealt with quickly and hope that the bypass isn't necessary - but whichever way it goes, they are going to sort it!

Good luck next week. Speedy recovery and keep us posted!!

Take care - Scottie  :)
Title: Re: This waiting is killing me :-(
Post by: kimbo on June 12, 2009, 04:54:43 AM
Lucy,

I am thank full every day for the  advancements we have made in cardiac treatments. Because I constantly reflect , that 25-30 years ago issues that caused fatalities are now absolutely resolvable with current treatments of heart procedures.

I am so glad you have identified your heart issue and have a really good Doc.

You should give him a really quick peck on the lips next time you see him......see what happens.......PUFFFFF.......he may really be a prince.  ;D ;D ;D

blessings kimbo
Title: Re: This waiting is killing me :-(
Post by: Crabcakes on June 12, 2009, 08:58:25 AM
Eyeamdry and Epson - Good Luck to you both with the stents. You will feel SO much better!
Title: Re: This waiting is killing me :-(
Post by: Epson on June 12, 2009, 01:37:27 PM
Crabs,

Thanks, this is my second stent this year, luck like that I don't need.
Title: Re: This waiting is killing me :-(
Post by: irish on June 12, 2009, 09:46:21 PM
Lucy, I'm so sorry to hear about your brother. I am sure that hurts big time---especially when he was alone-- I have had a lot of uncles, etc that were unmarried and they did not take care of themselves. The statistics show that married men live longer although the men probably can't believe that little bit of info.

Sure sounds like you have been busy with the docs and testing plus the worrying. Sure hope that all these tests get done and stent put in with good results. I'm sure glad to hear that you have such a good cardio. It really helps to have a doc that is human and cares. Just keep talking and letting us know how you are doing. This stuff does get a person down at times. Irish ;D
Title: Re: This waiting is killing me :-(
Post by: quiger on June 13, 2009, 06:10:36 PM
Hi Lucy,

I'm real sorry you have to go through that. I've never had a heart cath but have heard about them. I have to admit that there are two things that scare me the most, any heart issues and any kind of surgery. I hope the most they have to do is a stent and the rest of your arteries are fine. It's good that you are being realistic about this. If they said the chances of finding anything more is slim, then I would believe them.

It's a relief that you went to the doctor and got checked out before anything serious happened. Now, more waiting. I hope they are doing this early in the week so you can put it behind you. Please keep us updated.

I'll be thinking of you.

Hugs and prayers,
quig
Title: Re: This waiting is killing me :-(
Post by: eyeamdry on June 13, 2009, 11:05:46 PM
Thanks, Quiger, it's Wednesday.  Lucy
Title: Re: This waiting is killing me :-(
Post by: Shari on June 14, 2009, 07:48:05 PM
Good luck Lucy..you have a lot of people thinking about you!!  Take care...Shari
Title: Re: This waiting is killing me :-(
Post by: Patze on June 15, 2009, 05:55:58 AM
Good luck on Wednesday my friend!


Patze
Title: Re: This waiting is killing me :-(
Post by: eyeamdry on June 17, 2009, 09:12:58 PM
Hi everyone,
I'm just giving the good details of my heart cath procedure.  I think they were all good.  Of course, there is the buzzing of the razor--well, you know........

The procedure didn't take long.  I had one ten years ago and remember watching on the screen the "wire" threading through my arteries and into the heart.  This must have been digital, or at lightning speed because there wasn't much to watch on the screen.  It was freezing cold all day in the hospital, no matter where I was!

I did not have to put a stent put in, and since I haven't seen the doc after the surgery but my hubby did, I'll have to take his word that all is well.  Not sure if the threading of the wire clears out any blockage, but I don't have any now. 

Now, I have to see my ortho doc on Monday to see about my partial knee replacement.  The report says "infection or is loose."  Hopefully when I take the report along with the CD of my knee (bone scan) the doc will be a little more specific. 

Lucy
Title: Re: This waiting is killing me :-(
Post by: dbab on June 17, 2009, 09:32:53 PM
So glad it went well Lucy  ;D
Title: Re: This waiting is killing me :-(
Post by: Patze on June 18, 2009, 03:57:01 AM
Hi Lucy,

Wow, that is good news!  You must be so happy!  And good luck at the ortho's!!!!


Patze
Title: Re: This waiting is killing me :-(
Post by: Scottietottie on June 18, 2009, 09:13:46 AM
Hi Lucy  :)

I'm glad the wait is over and the deed is done and that you didn't need a stent! Whew!!  Good luck with the ortho. As you know, I have a partial knee replacement and I go every year to check everything is OK. I was told it would have a limited life span - but that's what they check for.

I hope you get answers soon anyway.

Take care - Scottie  :)
Title: Re: This waiting is killing me :-(
Post by: Epson on June 18, 2009, 12:43:28 PM
Lucy, glad you didn't have to get the stent, I didn't get one either, but that's because they could get one in, so Friday I go back to the hospital to see if they can put one in through the kidney.  The only reason I bring this up is, well, could I have the phone number of you younger sister?  She sound like she would be a great nurse during my recovery ;D
Title: Re: This waiting is killing me :-(
Post by: eyeamdry on June 18, 2009, 03:58:46 PM
Quote
The only reason I bring this up is, well, could I have the phone number of you younger sister?  She sound like she would be a great nurse during my recovery 

Epson, she would have you "whipped" into fine shape given a little time.  She is 5' tall and her husband is 6' tall and he weighs 100 lbs more than she does.  Truly Mutt and Jeff, or Big and Little, whatever.  He was just about a parapalygic
less than two years ago from some surgeries and sepsis.  He could only stand for 8 seconds after he was in Rehab for awhile.  After a bit of time, she made him walk every day.  They are now up to 3 miles a day and he is probably in better shape than before all those infections and stuff he had. 

I doubt she would help you out because she just retired at the end of 2008 and they now have a house in Fla and one in Mich.  True snowbirds. 
Title: Re: This waiting is killing me :-(
Post by: Poochie on June 18, 2009, 04:09:33 PM
Lucy I'm so glad to hear you had good news.  That's wonderful. 

Hugs, Pooh
Title: Re: This waiting is killing me :-(
Post by: quiger on June 18, 2009, 04:17:50 PM
What great news Lucy!  ;D  I know it has to be a relief. I sure can't imagine watching them thread that wire. I would need some serious knock out drugs. Glad it was short and thrilled for you that it was good news.

Good luck with the ortho. My hubby is supposed to have knee replacement surgery in September and he isn't looking forward to it, but he is looking forward to walking better after the recovery and PT.

Thanks for the update.  :)

Hugs,
quig
Title: Re: This waiting is killing me :-(
Post by: irish on June 18, 2009, 08:24:56 PM
Lucy, Wow, sure glad that is over for you and everything is ok---I would assume your hubby listened and got all the info from the doc.lol

Anyway, now the knee ordeal. I dare say that aging does not seem to be much fun but it sure does beat the alternative. Hope you are staying cool in Michigan. Irish ;D
Title: Re: This waiting is killing me :-(
Post by: eyeamdry on June 18, 2009, 08:35:43 PM
We sure are staying cool here in Mich!  Just like any other winter.  I imagine my hubby "listened" to the doc.  Yeah, sure. First, he is pretty deaf, but that aside, he probably doesn't remember a thing.  I'll have a visit with the doc on July 13th, so I can hear the details then.  Apparently it was a borning surgery.

The report from the bone scan said "probably loosening or infection" of the implant.  Well, I can handle either of those.  The C word is always in the back of your mind once you've had it.  I'm giving a family union/hubby's birthday party next month and I can't have anything wrong with me.   ::) Lucy
Title: Re: This waiting is killing me :-(
Post by: kimbo on June 19, 2009, 01:26:01 AM
Well Lucy,

It all sounds great. Not so good you have to go thru so much, good that your health issues are being directed along well and nothing near what your family history may bring yet, continued prayers for your recovery and further treatments.

hugs kimbo


Patzes  ,  I luvs your flower  :)

Title: Re: This waiting is killing me :-(
Post by: Katybarstool on June 19, 2009, 01:25:42 PM
Lucy

I'm delighted to hear you are ok.

Hugs
Kathyx
Title: Re: This waiting is killing me :-(
Post by: Cheryl on June 20, 2009, 02:27:27 PM
Lucy, 
  I'm so relieved that you are doing OK!   Now to start looking forward to knee surgery... bless your heart (and your knee, of course!)   :)
Cheryl
Title: Re: This waiting is killing me :-(
Post by: lynnmarie219 on June 21, 2009, 06:44:30 PM
Lucy,


So glad to hear how well your procedure went and that you didn't need to have a stent put in!

Also wishing you the same good luck with your next appt. at the doctor when you go to find out about your knee!
Title: Re: This waiting is killing me :-(
Post by: Patze on June 22, 2009, 04:59:26 AM
Hi Lucy, hang in there and I'll keep the digits crossed for your knee too!

Hi Kimbo, it is pretty, isn't it (and thanks!)?


Patze
Title: Re: This waiting is killing me :-(
Post by: eyeamdry on June 22, 2009, 08:40:37 PM
Today was the day I saw my orthodoc.  I've had a partial knee replacement for 7 years now and recently I've been having some pain at the place where the implant meets the bone.  It was pretty much down to two possibilities:  infection or having a loose implant.  Actually, there was a third and that was cancer as I'd had b. cancer two years ago.  That is your first thought after any cancer.

I have a loose "uni-knee" implant.  The solution is a revision.  In my case, a revision will be a total knee replacement.  Good thing is there is no big hurry to have this done.  The pain is my barometer.  If I'm not on the let, the knee doesn't hurt.  I can easily see this thing going at least a year.  That means if I have no falls, arthritis doesn't make things worse, etc.  In the meantime, the other knee is beginning to wear a bit.  When the time comes for a fix on that, it will be a full replacement.

So, all things considered, I will do this when it needs to be done.  Last time was when I was still working and I was driving back and forth 30 miles round trip on snow and ice each day.  I was more concerned about how tired I was when we left the drs office.  I could actually sleep 20 hours a day, and if not sleep, then lie down that long.  I need to talk with my rheumy and/or GP docs about this more in depth.  I think we can lay this thread to rest.   ;D  Lucy
Title: Re: This waiting is killing me :-(
Post by: Katybarstool on June 23, 2009, 12:36:20 PM
Lucy

That's really good news. Even holding off for a year gives you a breathing space.

Hugs
Kathyx