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Sjogrens Topics => Living With Sjogren's => Topic started by: pudmott on October 06, 2008, 05:44:32 AM

Title: A big few weeks
Post by: pudmott on October 06, 2008, 05:44:32 AM
Hey guys,
Hope you are all well and kickin along. I just wanted to ask if you could all send up some thoughts to the universe in the next few days. This thursday starts an intense three weeks for me with tests and doctors. I may or maynot find out things that i may or may not want to know. I have a feeling in m water that the next few weeks are going to be very furutre defining for me. While i am carying the attitude that whatever happens will happen and i will work my way around it, i dont mind telling you all i am a bit apprehensive.

On thursday (9th), i have my ultrasund on the thyroid to see what is happening there. I am getting more and more pain and it is spreading down around my clavicle region. The back of my neck is very sore to and it is compromising the nerves in my arms. My left hand is twice its normal size and the blood flow is getting compromised occasionally. It looks lovely in pale white. On the 15th I see the immunologist so will see what the scan says also check on my b12 and see what he want to do about the vit d deficiency (found out o had that yesterday) and all the other stuff going on.

The 16th I see the Gastroenterologist about my stomach. it is so sore and quite often aches when i eat. Guessing i'll probably have to have another scope to see whats happening there. the 17th I go to the chiropractor to see if we can put in everything that is out and then im off to the cousellor. A nice way to round off the week.
Then on the 28th i see the ENT. Probably an in office scope down the nose to see about the chronic nasties that have taken up residence in my sinus passages and are blocking the ears. He will probably also look at my throat and see what is going on there if the thyroid is invloved or god knows what else.

Who knows after the ultrasound there might be an appointment with the endo to consider. Oh yeah in amongst all of that. Somewhere in October cant remember when havent got my diary in front of me (how lax) i have an appointment with the dental hygienist and another one with the dentist to get the first 2 of my nine fillings done.

Somewhere or other i will also go to work to pay for all of this. Oops forgot the mouth x-ray too gotta book in for that. Silly Pud.

So if anyone can spare some positive vibes. Can you send em down under. I may need em.
Thanks guys. you all rock

Pud

P.S. You know, this might sound weird. But with all ths stuff going on, i actually am not feeling 'sick' per se. Just a bit tired and emotionally labile every now and then. Generaly i feel ok. Just very uncomfortable. I think i have found a new level of acceptance and tolerance.
Title: Re: A big few weeks
Post by: JannaLee on October 06, 2008, 05:54:01 AM
Oh honey sweetie Pud!

It sounds like you are getting a complete overhaul! 

I will send down some vibes straight away... wrapped in concern and wishes for the very best results!

I love you so much kiddo!

Janna
Title: Re: A big few weeks
Post by: Bonnie on October 06, 2008, 06:18:07 AM
Good luck over the next few weeks,

Thinking about you.
Title: Re: A big few weeks
Post by: Starlore on October 06, 2008, 06:43:58 AM
Wow Pud', your schedule is looking pretty full indeed. I'll be sending you as many good thoughts & vibes as I can muster! You have a great attitude towards the coming days but remember to take it one step (or appointment) at a time, I know you've got enough experience w/all this to know that, but I also know that sometimes when we get so caught up in these whirlwinds of appointments, it becomes easier for that to sometimes slip past us unnoticed. And don't forget to rest! :)

...Thanks for reminding me, I need to make -another- appointment w/my Endodontist & Dentist to see if/when I need another root canal--yay :-X Then we can groan about how much teeth suck, together!

Hang in there! *hugs*
Title: Re: A big few weeks
Post by: genko_b on October 06, 2008, 08:15:33 AM
That sounds pretty hectic, like you could use a few extra days in between appointments. Good luck and let us know what they find out.

Genko
Title: Re: A big few weeks
Post by: Pooh on October 06, 2008, 08:34:39 AM
Aww Pud, you betcha I will send those thoughts and prayers your way.  I just mentioned to my hubby yesterday that it looks like I have a full calendar this month too.  Also thrown in with all my appointments is my birthday, so it's a full month here also.  Besides myself at the doctor's my PoohBear will have to return for her stitches to be taken out on the 13th.  Her kennel mate Paddy is also due for her checkup and shots this month also. ;D

So I guess you could truly say,  my life is going to the dogs. :D

Take care my friend and I hope all your tests and exams produce some really helpful insite for your doctor's and you start to feel better real soon. 

Hugs, Pooh
Title: Re: A big few weeks
Post by: Scottietottie on October 06, 2008, 11:46:52 AM
Awww Pud!

thoughts winging your way!!!

I had a spell a bit like that near the beginning of all this. (well - not the beginning - but after the diagnoses) Rounds of tests are horrible. It's tiring getting them done and then worrying waiting for results.

I hope you find out exactly what's going on as soon as possible and then it's there to be dealt with.

Take care - Scottie  :)
Title: Re: A big few weeks
Post by: wen.uk on October 06, 2008, 12:42:40 PM
Blimey Pud you don't do things by half do you - Im sending lots of good luck cyber vibes and hugs right your way, you're a little fighter Pud and I'm sure you'll cope with it all just fine.  Take care hun and let us know how all the tests are going.

Love Wen x
Title: Re: A big few weeks
Post by: Katybarstool on October 06, 2008, 01:09:37 PM
Pud

Hugs and positive vibes from me too.

Kathyx
Title: Re: A big few weeks
Post by: pudmott on October 06, 2008, 02:24:04 PM
Thanks so much guys. I'll keep you posted.

Pooh. give those doggies a hug for me. I saw an Australian shepard calendar in the newsagent the other day and thought of your Pooh Bear. They are gorgeous doggies. Two of mine are due for their shots and annual check up this month too. Will slot that in somewhere. Also two doggie birthdays. Cassie was 13 on Sunday and Shadow will be 6 on the 28th.

I hope all goes well for you Pooh. You and your furry babies. And everyone else running this gauntlet of the medical system.

Thanks again so much for your support everyone. I don't know what i'd do without you all.

Pud

P.S. Janna lovin ya right back honey
Title: Re: A big few weeks
Post by: quiger on October 06, 2008, 03:29:29 PM
Woweee, what a schedule you have this month. Doctor appointments always wear me out so I feel for you. Hopefully you will get some answers so you can do what needs to be done and start proper treatment.

You know we will all be thinking of you. Come on into the chat room if you get a minute. I'm sure Aliendoggy will want to give you her best wishes also.

Let us know what you find out.

Hugs,
quig
Title: Re: A big few weeks
Post by: SeaBreeze on October 06, 2008, 03:30:04 PM
Geez Pud, you forgot the bed of nails and stretching machine.... kidding, you know I'm kidding..  ;D  ;D

{{{{ HUGS }}}} I hope every doctor is running on schedule, every test goes off without a hitch and results given accurately and without haste... At least after all this you may have a better idea as to what's up... Prayers out to you !!
Title: Re: A big few weeks
Post by: pudmott on October 06, 2008, 04:41:12 PM
you know breezy the stretching machine sound purdy good right now.................lol

the bed of nails i might miss tho.............but then again put some holes in me and some of this fluid im retaining might fall out.........hhmmm going to look in the shed.

BTW i just submitted an application for a job as a telephone triage nurse to work from home. I should find out something in the  next few days. how good would it be to work from home!!!!!!!!!!!!!!!!

Pud
Title: Re: A big few weeks
Post by: SeaBreeze on October 06, 2008, 04:54:32 PM
Pud, only you would see the postive aspects of the stretching machine and bed of nails... Actually you make a good point on both.  Good luck with the at home position.. We have that service here too... called "Ask A Nurse" I knew someone who did it for a long time, but in those days they were in an office... Sounds like the perfect WAH job... I wish I could find a legit WAH job...
Title: Re: A big few weeks
Post by: Reenie on October 06, 2008, 06:10:00 PM
Pud,

I am sending bunches of hugs and lots of positive vibes your way.  You do have a very intense month with testing, doctors, more testing, more doctors. 

Try to squeeze in as much "Pud Time" as you can....doing something relaxing, something you enjoy, or just doing nothing.  Sometimes just doing nothing is what our bodies and minds need when so much is going on.

We're all here for you, Pud.  I would also add that we're all rooting for you too, but if I remember correctly, a guy friend from Australia that I used to work with told me that the word "root" (or "rooting") had a different meaning down under than it does here in the U.S.  ;D

Big Hugs To You,
Reenie



Title: Re: A big few weeks
Post by: lynnmarie219 on October 06, 2008, 06:15:03 PM
(http://www.freesmileys.org/smileys/hug008.gif) (http://www.freesmileys.org)((((((((((((((pud)))))))))))))(http://www.freesmileys.org/smileys/hug008.gif) (http://www.freesmileys.org)


Sending you all kinds of positive vibes and good wishes to help you to get through all of these tests and get some answers quickly so you will know what is going on and get the proper treatment to help you!


Keep us posted as to how you are doing when you have some time! We are here when you need us!

Take care......
Title: Re: A big few weeks
Post by: pudmott on October 06, 2008, 08:22:33 PM
Guess what guys??

I got a phone call this arvo from the company that i applied at for the phone triage job. I have a phone interview tomorrow at 10am my time. I'm getting a bit excited. I will have to gag my dogs so they don't bark while im on the phone.

I have good vibes about this one folks

Pud
Title: Re: A big few weeks
Post by: genko_b on October 06, 2008, 08:38:26 PM
We will definitely keep our fingers crossed about the job interview. Let us know how it goes.

Genko
Title: Re: A big few weeks
Post by: Scottietottie on October 07, 2008, 08:04:42 AM
Hi Puds - BEST of LUCK!! That's great!! Fingers and everything else that will cross, crossed for you!

Take care - Scottie  :)
Title: Re: A big few weeks
Post by: Patze on October 07, 2008, 03:58:03 PM
Hi Pud,

I'm sending the jet back to pick you up and deliver you to a great spa I've read about in Palm Springs, California.  It takes ladies such as ourselves and pampers beyond comprehension (the cost is beyond comprehension too, but it would be so worth it!).  The extra long massages (not even mentioning the specialty messages available), the thermal spas, the specialty diets, and the list continues on.  Ah, all the luxuries that you could possibly want, will be at your disposal (a lot of rich and powerful folks tend to spend some time there as well).  You will also have your own assistant, total pampering from the moment you step inside their facility to the moment you leave.

Ah, I'm so tempted, but it would take my retirement fund for a week there or two there!  What the heck, it would be so worth it though!!! ;)

I'm with the others in wishing you the best!  Hang in there and keep us updated, okay?

Take care -

Patze
Title: Re: A big few weeks
Post by: lynnmarie219 on October 07, 2008, 04:14:18 PM
Hey Patze,

Can you send that jet towards Chicago for me too? The spa sounds wonderful.............oh my gosh.....it would be heaven!


Good luck on that job interview tomorrow Pud....keeping my fingers crossed for you as well.......let us know how it goes!
Title: Re: A big few weeks
Post by: quiger on October 07, 2008, 04:20:33 PM
Wow, that would be great Pud. Lots of luck.

quig
Title: Re: A big few weeks
Post by: pudmott on October 07, 2008, 05:58:48 PM
OK firstly,
the spa sound divine.I will do a fly around and pick everyone up then use my most considerable charm *cough cough* to persuade the delightful people there that it would be in their best interests to let us all in for pampering.

Secondly
I had the interview. I thnk it went ok. Have just had to do a baisc computer skills and typing test. How hard ws the typing with my prednisone induced dyslexia??? I will have to see. If i am successful i will have to go for a face to face interview next tuesday. It will still involve shift work but at least it will be from home and there wont be the physical component. So we'll see. At least i will be able to come and play in here often that will be good.

Ok off the refuel the jet. Will be around to pick you up in the next 24 hours get packed everyone

Pud
Title: Re: A big few weeks
Post by: JannaLee on October 07, 2008, 09:22:40 PM
I hope you get this job and can stay home with us and the puppies.
Title: Re: A big few weeks
Post by: Pooh on October 07, 2008, 09:52:12 PM
Good luck Pud, I hope you get this job and you can relax with your puppies while you work.  Working from home sounds like my idea of the perfect job. 

Take care and I'm all packed.  I'll watch for the plane and be out there when you get here. ;D

Hugs, Pooh
Title: Re: A big few weeks
Post by: pudmott on October 08, 2008, 04:13:35 AM
I must have done something right on the phone. I got a call back today and was asked to come in next tuesday at ten. Its luck she said tueday. its the only day next week that i didnt have doctors or dentists appointments. So im booked for everyday next week. Lucky im feeling better hey.

Well tomorow starts the round of fun ultrasound at 3.30pm. will keep you posted.

Oh Yeah i cant make the spa cause of all my appointmnts however i spoke to the lovely people and they have agreed to take you all for nicks. So i sent the lear jet off this afternoon. it will swing by Europe then the states and Canada. Its GPS has everyones address and will come get you personally. Have fun

Pud
Title: Re: A big few weeks
Post by: JannaLee on October 08, 2008, 05:31:55 AM
Pud,

I suspect the interviewer noticed how freakin' brilliant you are, and kind, and quick.

Probably this will sound silly, but I am busting with pride over this....it's as if you are my family....huh....maybe we are just a big dry loving family...holding hands all around the globe like a huge fishing net. 

I'm all packed up and headed out to the porch to wait for the lear jet.  We will miss you and think of you when we are getting our 'herbal mud treatments' at 3:30.

Best to you punkin!
Janna

Title: Re: A big few weeks
Post by: Katybarstool on October 08, 2008, 12:39:40 PM
Pud

You are a star - and I'm glad those interviewers realized that.  All the very best for next Tuesday.  We will all be rooting for you.

Please can the jet pick me up too?  A nice relaxing massage would do me the power of good.

Kathyx
Title: Re: A big few weeks
Post by: pudmott on October 08, 2008, 03:06:59 PM
Kathy,
The lear jet shouldn't be too far away.

Janna,
Honey you and everyone here are my family. Thats why im here everyday supporting in anyway i possibly can. Apart from Gina and the dogs, you guys are all ive got. We look out for each other. And to quote you Each and every one of you boys and girls are freakin brilliant too.

Pud ;)
Title: Re: A big few weeks
Post by: Patze on October 08, 2008, 05:37:41 PM
Hi Pud,

I don't know how "freakin brillant" I am, but I'm there for ya girl!!!


Patze
Title: Re: A big few weeks
Post by: lynnmarie219 on October 08, 2008, 07:14:21 PM
YAHOO!!!! On to the next step of the interviewing process next week! How could they resist you Pud??? Good luck to you and let us know how it goes!
Title: Re: A big few weeks
Post by: pudmott on October 08, 2008, 07:19:42 PM
aahhhh patze you are the freakiest of us all honey. thats what makes you so special.

We is peas in a pod luv. The comedy relief


Pud
Title: Re: A big few weeks
Post by: Patze on October 09, 2008, 03:43:33 AM
Too true girl! ;D

Patze
Title: Re: A big few weeks
Post by: pudmott on October 09, 2008, 10:14:29 AM
Well once again my body has turned against me. This time by getting better. For the last two weeks my face and neck has been swollen and sore. Today because i was having my ultrasound, it wasnt swollen or sore. It was perfectly normal. I even touch my chin to my neck.

I tell you its a conspiracy. If i was prone to paranoia (which i can be might add) I wold say theforces of evil were out to make me look like a hypochondriac. Then the ultrasonograopher looks and my salivaries and says they dont look like sjogren's salivaries to me. I said what do sjogren's salivaries look like. She said they'd have crystals in them. She said you must be early in the disease. Great so now i question again. This process is enough to do the strongest head in.
So not sure what the go is now. Will pick up the report monday and see what it says.

AHHHH. I am at work now its 4.15am. i just got wireless broadband so i can play while the patients are asleep. At least i get some sanity for a while.


Pud
Title: Re: A big few weeks
Post by: Pooh on October 09, 2008, 11:13:10 AM
Aww Pud, welcome to the Sjogren's dilemma.  :-\  You never know with this disease what it will come up with or not at times.  Is it any wonder the medical community finds it so hard to diagnose us. 

Hang in there kiddo, you will be fine. 

Hugs, Pooh
Title: Re: A big few weeks
Post by: JannaLee on October 09, 2008, 12:01:16 PM
I swear it's "Murphy's Law"...it happened to me all the time when my children were little.

I'd have a child....running a sky high fever, throwing up, green spots all over, blood gushing from somewhere...

we get to the doctor....nothin'...

fever, spots, blood....all gone....at least till the next weekend when the doctor is closed!
Title: Re: A big few weeks
Post by: pudmott on October 09, 2008, 03:10:11 PM
The conspiracy continues. its now 5 hours later im home trying to relax to go to sleep and guess what my throat area is swollen and sore. Feel like the watermelon is back. I think the aliens are periodically kidnapping my body and doing things to it and then transplanting me back to the same time like i never left. That way they can alter my body so thngs dont show  up in the tests. They must have been on strike the day i had the salivary scan done. It actually showed something.

Oh well i'll put it in the symptom encyclopaedia.

Hope everyone is good today. That is my wish before i go to sleep.

Pud
Title: Re: A big few weeks
Post by: JannaLee on October 09, 2008, 04:51:54 PM
Sleep well Pud, honey.

We love you and are praying for your tests to aid in your treatment.
Title: Re: A big few weeks
Post by: Collie on October 09, 2008, 06:46:04 PM
Oh Pud,

I am sorry you are going through all this; I know what you meam by feeling awful and having all these symptoms and then they disapear the day you have your doc appointment; then doc looks at you like your crazy.  I pray all your test reveal the truth about what is going on with your body.


Collie
Title: Re: A big few weeks
Post by: beverley on October 10, 2008, 07:41:32 AM
Nooooo! nothing can wipe off the Pud smile - I will not accept it.  I really hope you feel a whole lot better and more comfortable soon.  You are always so cheery, you don't deserve to be miserable.  Sending positive vibes by the bucket!
Beverley
Title: Re: A big few weeks
Post by: pudmott on October 10, 2008, 09:03:00 AM
Thanks beverley,
The pud smile is still in place albeit a bit puffy but stll there. I will talk to the doc on wednesday see what he says. No point worrying it wont change anything.

Now im off to change some bedpans


Pud
Title: Re: A big few weeks
Post by: daydreamer on October 10, 2008, 06:37:12 PM
Pud,

I may only be a newbie and not really know anyone yet, although I am trying to get acquainted, but I will definitely keep you in my thoughts and send lots of positive vibes.

You have a hectic road ahead of you, but from my reading you're one tough cookie with words of wisdom and a big open heart. If anyone can overcome such a battle I'm sure you can  :)

Lots of hugs,
Kim
Title: Re: A big few weeks
Post by: pudmott on October 10, 2008, 11:32:13 PM
Kim,

Thanks heaps for the thoughts. vibes and very kind words. And there's no such thing as only a newbie. You are family.

Take care

Pud
Title: Re: A big few weeks
Post by: JannaLee on October 11, 2008, 06:00:00 AM
Dawn,

Off Topic:  Your photo is so lovely and your caption is compelling. 
Title: Re: A big few weeks
Post by: kimbo on October 11, 2008, 05:54:51 PM
Hi Pud,
I've been away a few days.  Just read this and getting caught up.
I have to say I am really excited about the job thing.  I will be praying for the enterview on Tuesday. This is a very beneficial opportunity for you. Pack up your positive attitude and cheerful heart on Tuesday and remember your sjoggies family are anxiously rooting for you.

I'm sorry your body betrayed you on the test ordeal. But maybe the truth will show on those test yet.

GO GET A MASSAGE on the day you go for the enterview...  YOU DESERVE IT.

luv kimbo 
Title: Re: A big few weeks
Post by: pudmott on October 11, 2008, 06:00:41 PM
Thanks Kimbo,
I'd love a massage actually im so sore at the moment.

I found out the interview/assessment process on tuesday is going to be about 2-3 hours. Think im gunna need my head screwed on tight.

Anyone got a spanner. Need to tighten the bolts in the side of my neck.

Pud
Title: Re: A big few weeks
Post by: JannaLee on October 11, 2008, 06:05:58 PM
Pud my dear,

You will amaze them just like you did on the phone.  Remember that you are likely the smartest person in the room and then just relax and let flow.

But just in case I'll stick a nice strong (neck) wrench in the lear jet glove box.

You are lovely.
Janna
Title: Re: A big few weeks
Post by: pudmott on October 16, 2008, 04:44:50 AM
Hi all just a quck update.
Saw immunologist, he thinks i have reflex sympathetic dystrophy causing the numbness, pain, swelling, discolouration in my arms and hands. have referrral to pain specialist. see him next thursday (23rd). also have to have MRI on c spine. He has started me on pilocarpine for saliva to see if it reduces pain in my glands also now on sublingual b12, iron supplement and vit d supplement.

Saw gastro today. he thinks i have thrush in gi tract. have amphotericin lozenges for 5 days and have to have a bariums swallow to see whats happening.

Still waiting to hear about the job. Should know either way tomorrow. Interviews were 2 hours al up.

Sorry bout short posts but pain in hands and arms is bad. im not posting much but am chacking the boards each day keeping up to speed on you all.

Take care veryone and look after yourselves. I will wish tonight before i go to sleep that everyone has a lovely day tomorrow.

Pud



Title: Re: A big few weeks
Post by: JannaLee on October 16, 2008, 05:05:07 AM
Sounds like you are getting some answers.  I sure hope they can clear some of this stuff up!

Hope you are better real soon!
Janna
Title: Re: A big few weeks
Post by: wen.uk on October 16, 2008, 08:42:21 AM
Hiya Pud

I've got everything crossed for you on the job front - or is that my legs because my irritable bladder is playing up?!!!!! ...... anyhow, glad you're surviving the gauntlet of tests and hopefully should have some answers to help pretty soon.

Still thinking about you across the pond ... oh no don't mention water again lol

Wen x x
Title: Re: A big few weeks
Post by: SeaBreeze on October 16, 2008, 02:42:52 PM
Hi Pud... Just wanted to say Hi and hang in there... You packed a lot of stuff into one week.  Please take care of yourself.
Title: Re: A big few weeks
Post by: Bucky on October 28, 2008, 03:21:29 PM
Hi Pud . . . haven't seen any updates on you and haven't seen you post recently . . . just to let you know we're thinking of you.  Hope you get some relief real soon.

Hang in there . . . . we're all sending our best to ya.   ;D

Bucky
Title: Re: A big few weeks
Post by: SeaBreeze on October 28, 2008, 03:22:59 PM
YA... Where are ya ??? ;D
Hope all is well............... ;D  ;D
Title: Re: A big few weeks
Post by: pudmott on October 28, 2008, 04:12:11 PM
hi folks,

Thanks for the thoughts. I've been a bit quiet yes strange i know. Its been pretty full on the last couple of weeks. So i'll give you an update.

Ok Saw the immnologist. He says im looking better. im feeling better for the most part. Told him about the pain and swelling in my arms more so the right and how it seems to loose circulation and the redness on my arms. He seems to think i have complex regional pain syndrome and referrred me to a pain specialist. I also have to have an MRI on my c spine. More on that in a minute. He also put me on Vit D supp as well as iron and has started me on pilocarpine troches. They im pleased to say are working well. it strange to have saliva. Sometimes i nearly choke on it im not used to it. I started sublingual vit b12 and it has helped heaps the tingling and sore toungue and lips are gone.
Next i saw the GI doc. He seems to think i have candida in my GI tract and started me on Amphotericin lozenges. I think he was right cause the fluffy feeling in my throat has gone or i should say was. i think its coming back now i have finished the course. He also wants me to have a barrium swallow x ray to see whats happening. Then i have to ring him and he will discuss the results with me and we will go from there. Im thinking its candida tho cause the lonzenges helped heaps.
So last week i saw the pain specialist. HMMM well $250 for the priviledge of sitting in his office for 15 minutes and have him read my notes and tell me there's not a lot he can do cause the swelling is caused by the prednisone and nothing will work until i come off that. He didnt touch me examine me in any way and barely looked at me. He just told me to take Panadol Osteo (tylenol for youamerican type people) and gave me a script for norflex which is a CNS muscle relaxant. I asked him if it would make me drowsy. he said no. Whats th first thing i read on the bottle. This medcine may cause drwosiness. Yeah good. NOT. Also its major side effect is it will dry the mouth. LIke i need that. I have taken it for a few days but not anymore. m like a space cadet and it is cncelling the good effect of the pilocarpine. Meanwhile my hand is blowing up to the point i can barely close it and im getting more and more pain. Im supposed to go back in 6 weeks and see him im not sure yet if i will go there or find someone else. i will wait and see what the MRI says. if it is nerve i'll get a referral to a neuro.
Yesterday i saw the ENT doc. He is wonderful. So nice took the time to explain everything on my scans. He put the telescope down my nose scary little place to look at. But i have an adhesion in my nasal passage a bit of a deviation in my right septum which might be causing some hassles but he seems to think most of it is coming from the sjogren's. He wants to go conservative first before rusing into surgery. So he gave me some nasonex steriod spray to try and see if that opens things up a bit. If that doesn't improve things he will put me under and fix the adhesion, straighten my septum and open up the right frontal sinus. He also gave me some freeby mouth gel samples and said when the biotene reps come in he will get me some stuff. He dictated his report right there so i could hear and bulk billed me which means i didnt have to pay anything. He said zi like to look after the nurses. I really like him. Hes a keeper. I go back and see im in january.
Tomorrow i am seeing a alternative person who looks at things from a cellular level and see what he says. Im getting my thyroid checked as well as other stuff. Apparently this guy looks at the whole body. So that will be good.

And to end on a high note. I got my work from home job. I found out last friday. I start on the 17th Nov. I finish at the hospital on the 7th and am taking aweek off before i start the new job. I have to go out and get a desk and stuff for my new office. Its all very exciting.

So ther you have it a month in the life of a pud. In amongst all that i hve still been working as well. BUsy bisy bisy.

Thanks everyone for their thoughts and support. I'll keep you posted on the next round of tests.

Pud
Title: Re: A big few weeks
Post by: Bucky on October 28, 2008, 04:30:02 PM
Good to hear from you Pud.  You certainly have had the rounds with the doctors!

WOOHOO . . . congrats on getting the job!!  That is great news!!   ;D

If you get a chance, pop into the chat soon . . I'm sure AD would love to see ya.  :)

Bucky
Title: Re: A big few weeks
Post by: Scottietottie on October 28, 2008, 04:33:33 PM
Hi Pud

Great update.

Most of the docs sound good. Sorry you're still having so much pain.

Great about the job!

Take care - Scottie  :)
Title: Re: A big few weeks
Post by: SeaBreeze on October 28, 2008, 05:02:36 PM
Well Pud, You've had quite a couple of weeks... Sorry that you are in so much pain... nerve pain can be unrelenting.. when I have it, its all I can think about...
Great new on the new job... I hope you can spend some extra time setting up a good ergonomic work area for yourself. I changed my around, (height of screen, my chair etc.) made some difference...
I'm very interested in what the alternative person has to say about everything... I'm considering accupunture and cranial-sacral manipulation myself.  Every cellular practioner I've ever seen says 'bad liver, bad liver, bad liver'... Its all the meds...
Good luck.... keep your chin up and go watch some kitties.........
Title: Re: A big few weeks
Post by: JannaLee on October 28, 2008, 05:07:55 PM
I'm glad you are seeing someone tomorrow to show your hand to.  It cannot be good to have that going on chronically!

I am delighted about your job~  you are going to be wonderful in this position!

Janna
Title: Re: A big few weeks
Post by: Katybarstool on October 29, 2008, 01:01:03 AM
Pud

Many congratulations on the new job!!!

Kathyx
Title: Re: A big few weeks
Post by: Reenie on October 29, 2008, 01:15:37 PM
Hi Pud,

Congratulations on getting the job!  Woo hoo!  I am so very happy for you!

I hope you can get some answers and some relief from your pain soon.  You have certainly been through the wringer lately, and I hope that it lets up soon.  Hang in there. 

Sending continuous positive vibes your way,
Reenie
Title: Re: A big few weeks
Post by: pudmott on October 29, 2008, 06:45:50 PM
Thanks everyone,

I saw the alternativer doctor today. He was really good. He is sending me for some blood tests to check all my thyroid stuff and also hormones and a heaps of other things.
He wants me to start magnesium and also Aloe Vera Juice. Aparently if you have blood type A (which i have) this juice will help heal stomach ulcers. So once i have the bloods i am going to start it.
He thinks i may have a hormone imbalance and that if we correct that some of the sjogren's stuff may settle down. It was all very interesting an he listened to what i had to say. No judgement or anything. Two positive dr experiences in one week. I'm a bit impressed.

Pud
Title: Re: A big few weeks
Post by: JannaLee on October 30, 2008, 08:29:03 AM
I'm impressed too and wishing for your improved health!

You are lovely and need to be feeling better!
Janna
Title: Re: A big few weeks
Post by: kimbo on October 31, 2008, 09:36:06 AM
Yea Pud,

I hope they get it figured out.

How is the Job situation going ?

kimbo
Title: Re: A big few weeks
Post by: pudmott on November 01, 2008, 05:01:55 AM
I have five more shifts at the hospital then a week off......yippeee. it will be nice to have tiome off work and not feel ill. Imgetting my phone line installed on wednesday. i bought some bits and pieces for my office today and will get my desk next week. I got my official letter on thursday and have to apply for my nursing licence in four other states to be able o practice. Got heaps of paperwork to fill in so that is my sunday sorted 8).
I am having my MRI tomorrow. On a sunday no less. Go figure.

I start training on the 17th Novmber.

I had a huge day today. Gina and i went out and did some shopping, then went out for lunch. Gina bought me a stuffed dog that is a massager and also has a puch that you can put a hot or cold pack in. He is very soft and cute and is called MAX. he is gret for my aching hand. We also cuddled some little lop eared bunnies and are thinkng of buying two, one for each of us to add to our fur family. After that we went and did some more retail therapy then this evening we went out for dinner woth our neighbour. I have been on the go since 8.30 this morning it is now 11pm. i  am so tired but feel really good. It is sonie to feel human again after all these months. 
Next weekend o have a trivia night and my farewell night from the hospital. Im turning into a party animal. he he he

Hope you are all well.

Pud
Title: Re: A big few weeks
Post by: JannaLee on November 01, 2008, 08:57:09 AM
Darling Pud!

I am delighted to hear that you are feeling well and have a new job just around the corner!

Regards to Gina and the pups!
Janna
Title: Re: A big few weeks
Post by: pudmott on November 01, 2008, 03:37:37 PM
I am so paying for my big day out yesterday. I have woken up this morning and i think allmy muscles have been taken by aliens and replaced with jelly. m arm is numb and my duracells are running low.

It was worth it though cause i hd a great day yesterday. But i have called in sick for work.theres no way i can do an 8 hour shift and haul grown adults in and out of bed today.

Will go for my MRI and then come home and chill.

Pud
Title: Re: A big few weeks
Post by: SeaBreeze on November 01, 2008, 04:05:01 PM
Hi Pud,
It was nice to hear you had such a nice day... too bad about the 'payback' pain... But sometimes it can be a 'good' tired and 'good' 'worth-it kinda pain... Bravo ! on the job and preparations... Good luck with MRI...  
Title: Re: A big few weeks
Post by: pudmott on November 01, 2008, 04:10:48 PM
oh yeah definately worth it pain and fatigue


pud
Title: Re: A big few weeks
Post by: pudmott on November 01, 2008, 08:13:29 PM
Ok had a massive brain fart on the way to my MRI.

I was sitting in my car at the lights waiting for them to go green and when they did i forgot how to drive my car. I didnt know which foot to pull off the pedal and which foot to push down on the pedal ( i drive a manual car) then i tried to take off in neutral and wondered why the engne reved its little heart out.

I felt very very dumb. I cannot string two logical thoughts together. Next time i have a big day out i nee someone to slapp me and say pace yourself girly. Will i ever learn?? Prolly not.
Anyway have had the MRI and pick up my results on Tuesday. Thankfully it wasnt a brain MRI they prolly wouldnt find one today.

Am going to sleep now.

Pud
Title: Re: A big few weeks
Post by: Scottietottie on November 01, 2008, 08:15:36 PM
Hi  :)

I'm glad you had a nice day but I'm sorry you're suffering for it. Hope you get a good nights sleep and can drive your car tomorrow OK!

Take care - Scottie  :)
Title: Re: A big few weeks
Post by: kimbo on November 01, 2008, 08:41:23 PM
Good to hear about the progress of your new career. I will be remembering you in thought and prayer.

Over doing it always has a price.  :)    And once again you have learned.  I hope you relaxed well on the recovery.

Still hoping to hear of health results, that they reveal what is necessary to help you have a path of good treatment.

I'm pooped out also, Pud. My sister and I went to matinee movie (The Changeling) and out to eat. I've been in a flare and just fought my way thru the evening.

Time change here in the US , we fall back an hour at midnight. An extra hour tonite, YEAAAA, but oooooh less daylight every day.

kimbo
Title: Re: A big few weeks
Post by: beverley on November 10, 2008, 12:56:39 PM
Oh Pud you kill me!

I love to hear about your exploits, you take so much pleasure in everything.  You're right we always have to pay, but I guess the secret is not to let it put you off at the outset because it really is worth paying for once in a while.  When do you start your new job?  I think you are courageous to take on a new role, but it will give you a boost too - a real sense of achievement.  Best wishes to you.

Beverley
Title: Re: A big few weeks
Post by: pudmott on November 10, 2008, 01:38:57 PM
Hi Beverley,

I finished at the hospital last week and am taking this week off to rest and sort out my office. then next week (17th) i start training. Im gettingexcited about it all.

I still have this darn infection and think i might be off to the dr in a day or so. cause im getting quite wheezy even with my puffer. Its not in my lungs but seems to be coming from my upper airways.

Think i might be having to go back on the long term Antibiotics. Oh well whats another one in the mix hey. I already swallow, snort, squirt puff. I can do another one im sure

Hope you're all having a great day

Pud
Title: Re: A big few weeks
Post by: beverley on November 19, 2008, 11:04:54 AM
Okay Pud it's the 19th so how's it going?

Beverley
Title: Re: A big few weeks
Post by: JannaLee on November 19, 2008, 01:01:16 PM
Hi Bev,

I just noticed Pud posted about her new job in another thread named "Start my new job tomorrow"