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Sjogrens Topics => Living With Sjogren's => Topic started by: SjoGirl on January 13, 2020, 04:58:24 PM

Title: Sjogrens groupings -- there are four
Post by: SjoGirl on January 13, 2020, 04:58:24 PM
Hi all,

Found this on the Sjogrens newsletter -- promising:

https://sjogrenssyndromenews.com/2020/01/02/sjogrens-can-be-classified-in-four-subgroups-depending-on-symptoms-study-suggests/
Title: Re: Sjogrens groupings -- there are four
Post by: Joe S. on January 13, 2020, 05:47:11 PM
Wow, Statistical Analysis of Symptoms, an Artificial Intelligent approach. Now maybe we will start to see effective treatment models from the medical establishment.
Title: Re: Sjogrens groupings -- there are four
Post by: irish on January 13, 2020, 10:49:25 PM
Dome people finally figured out how many of us there were and how significant out disease process is. Some things take longer than others. Thanks. irish
Title: Re: Sjogrens groupings -- there are four
Post by: Maria3667 on January 14, 2020, 01:39:34 AM
At last some progress is made into a better classification of our syndrome!  :) Although I feel there still is no universal consensus as the biological cause & manifestation can be so hugely different.

Also none of these categories fit me.

Quote:
"This resulted in four subgroups, which the researchers dubbed: low symptom burden (LSB), high symptom burden (HSB), dryness dominant with fatigue (DDF), and pain dominant with fatigue (PDF)."

I feel my category should read: dryness & pain dominant high symptom burden. So rather a combination of 3 out of 4 than a single one.

Thanks for sharing!
Title: Re: Sjogrens groupings -- there are four
Post by: araminta on January 14, 2020, 02:56:15 AM
Thank you for posting this link, Sjogirl.

I've always felt there are different manifestations of this disease, for instance I can still cry tears (!) and still have some saliva, however I have sore eyes with MGD, dry mouth at night, a lot of fatigue, and all sorts of other dryness symptoms.

Let's hope this is the beginning of some better research and treatment.