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Sjogrens Topics => Living With Sjogren's => Topic started by: angeldancer on February 17, 2014, 08:09:37 PM

Title: GOD PLEASE HELP ME!
Post by: angeldancer on February 17, 2014, 08:09:37 PM
MOUTH SORES ON STEROIDS!  I GOT RED LIPS, WHITE PUS SORES ON MY LIPS, PUS SORES IN MY ESOPHAGUS.  THE ROOF OF MY MOUTH AND TONGUE ARE RAW.  MY HANDS ARE SO DRY THEY HAVE SORES COMING INTO THE MIDDLE OF MY FINGERS.  SAME THING FOR MY TOES.  MY FACE LOOKS LIKE I WAS IN A FIRE ( MY SON DIDN'T MEAN TO HURT MY FEELINGS).  I LOOK LIKE A DRIED UP PRUME.

CANCER SUCKS AND ITS MAKING ME THIN AND UGLY.  I HATE CHEMO AND RADIATION AND DON'T KNOW IF I CAN WITHSTAND ALL THESE REACTIONS.  MY SJOGRENS IS STILL FLARING SO I AM FEELING DARN AWFUL.  ONCOLOGIST IS JUST NOT HELPFUL. 

I WANT TO LIVE AND THIS IS MAKING THINGS SO DIFFICULT.  I HATE PAIN. I HATE PAIN.

I WANT TO EAT?  PLEASE GOD TAKE THE PAIN FROM MY THROAT?

AT LEAST IF I DON'T FEEL WELL COULD I AT LEAST LOOK HALFWAY DECENT.  I GUESS IM STUCK IN THE HOUSE. 

GOTTA VENT I'M HUNGRY. 
Title: Re: GOD PLEASE HELP ME!
Post by: slccom on February 17, 2014, 08:54:43 PM
{{{{Gentle hugs, Angel!}}}} I wish I could offer you something else.
Sharon
Title: Re: GOD PLEASE HELP ME!
Post by: irish on February 17, 2014, 09:43:50 PM
I am so, so sorry that you are suffering so much. I hope that you can call someone or talk to a nurse at infusion/chemo, etc who can help your with things to do to treat side effects of chemo.

There is a product out there called Magic Mouthwash that has to be ordered by a doctor. It has prednisone in it, an antibiotic, benedryl and lidocaine. I think this is the right list of ingredients. The lidocaine helps to kill the pain. It is used for many different types of conditions. The other thing that may be in there is Nystatin which is a drug used to treat yeast. I would think that you might have yeast also as many of the chemo drugs can cause yeast.

Please be aggressive to get some help as they should be seeing to your physical reaction in order to keep you healthy during this ordeal. Find someone to advocate for you and help you. Good luck and keep us posted.
Title: Re: GOD PLEASE HELP ME!
Post by: KatieB on February 17, 2014, 10:18:00 PM
  I'm so sorry that you are having such a hard time. You are in my thoughts.
Title: Re: GOD PLEASE HELP ME!
Post by: Belsey1 on February 17, 2014, 10:32:13 PM
I have heard of the Magic Mouthwash, but do not have any experience with it.  I wish I had some advice.  The only thing I can think of is Kaegan water.  It is an alkaline water and is touted as having "miracle" results in bringing the body back in balance.  Find a place that has it in your area and give it a try.  God Bless you and praying for relief.
Title: Re: GOD PLEASE HELP ME!
Post by: gurs on February 18, 2014, 03:51:21 AM
oh my sweetie..my heart breaks for you..I cant even imagine what you are dealing with. The added dryness from the sjogrens and then chemo..oh lordy...Agree about the Nystatin, as I have been on daily meds for years trying to battle with my systemic yeast.
Oral nystatin liquid might be good for you because it has sorta like an anti-numbing agent in it, but it also has sugar. I take an oral nystatin powder the pharmacy gets for me and I mix that with water. No sugar..its just a yellow compounding powder.

hoping you get some relief soon! hang in there!!

Gursie
Title: Re: GOD PLEASE HELP ME!
Post by: Jenny on February 18, 2014, 04:33:52 AM
I'm so sorry you are going through this torture. I can't give you any advise, but you are in my prayers.
Title: Re: GOD PLEASE HELP ME!
Post by: quietdynamics on February 18, 2014, 05:47:32 AM

I am so sorry and I hope this will pass for you.

I feed my mother cold apple sauce, as it was soothing and easy to digest.

Maybe some will help?

I also would mix olive oil and a bit of mouth wash for her.. to sooth her mouth.
Perhaps until you get the wash that has been suggested?
Title: Re: GOD PLEASE HELP ME!
Post by: Velcro on February 18, 2014, 05:55:34 AM
So sorry Angel.  I am sure this is so hard but you can make it through!  I have faith in you!
Title: Re: GOD PLEASE HELP ME!
Post by: finallyadx on February 18, 2014, 05:57:50 AM
So sorry to hear you are in such pain and discomfort.  I do have experience with prednisone and it causing mouth sores -I am CERTAIN my mouth sores were not to the extent it sounds yours are but I received a prescription for the nystatin mouth wash - it helped.  I also drank alkaline water - not the Kaegan (?spelling) type but I found some alkaline water at the grocery store and drank just that and that seemed to help as well.

A call to the dr is certainly warranted to find some relief and comfort in all of this for you.

Please keep us posted.

My thoughts and prayers are going out to you right now that you find the strength and comfort to get through this entire ordeal.

Hugs,
Kim (aka finallyadx)
Title: Re: GOD PLEASE HELP ME!
Post by: cccourt1942 on February 18, 2014, 07:07:51 AM
Orosoothe...it is for chemo patients.  My dentist gave it to me for burning mouth/tongue. 

Hon...you live in CA.  When my bro was in CA (dying of leukemia) pot was readily available.  He was too sick to use it.  It sounds as if you are too.  But give it a go.  It will help you eat a bit.  I hurt for you ...but can't help you.  Know we are here.
Title: Re: GOD PLEASE HELP ME!
Post by: ohiolady on February 18, 2014, 07:14:08 AM
Angel,  my heart breaks for you.  Can you drink Ensure?  Warm salty water with baking soda swished around mouth is also soothing.

Sending you a big hug.

Anna
Title: Re: GOD PLEASE HELP ME!
Post by: jpd54 on February 18, 2014, 07:28:45 AM
Bless you Angeldancer.  You are in my thoughts and prayers that you get some relief soon.  Know that we are all with you. 

       (((hugs)))    Jennifer
Title: Re: GOD PLEASE HELP ME!
Post by: Sleepy In Seattle on February 18, 2014, 09:28:20 AM
Oh, honey - I am soooo sorry you are suffering so much.  :(

Know that so many of us are out here thinking of you and sending you every good wish and thought and prayer....

And please...ask your doctor about some of the things folks here have suggested. If you don't have the energy to do it, ask a family member/friend to be your advocate and do it for you. There should be SOMEthing they can do to help - at the very least, your doctors need to know how you are reacting to the medications and treatment.

(((((((hugs))))))))
Title: Re: GOD PLEASE HELP ME!
Post by: Carolina on February 18, 2014, 10:12:53 AM
Angel, it sounds awful.  It is awful.

Chemo on top of surgery on top of chronic conditions......a recipe for horror.

There are no words of comfort....only quiet, rest, time, relief.........some day.

This is when I want to be in suspended animation. 

This is when relaxation and meditation are almost impossible to achieve.

Be as gentle with yourself as you can, Angel.  In your heart you are dancing.......

Hugs,  Elaine

Title: Re: GOD PLEASE HELP ME!
Post by: lighthouse33 on February 18, 2014, 10:48:16 AM
Side Effect: Loss of appetite

Feeling nauseous from your chemotherapy or radiation might cause you to lose your appetite. It is important to make an effort to continue good nutritional practices even if you don't feel like eating. Eating balanced, nutritious meals provides you with the energy you need and fuel for your body to recover from your treatment, maintain or gain weight, and to help fight infections.

Recommendations:

During your hospital stay, you might be unable to eat a well-balanced diet due to nausea, vomiting, mouth sores, or loss of appetite. If these side effects prevent you from maintaining proper nutrition, your doctor might want to give you intravenous nutrition, depending on your specific nutritional deficiencies.

After you are discharged from the hospital, you might continue to have side effects from your treatment (such as decreased appetite, taste changes, mouth sores, dry mouth, or diarrhea). These side effects might prevent you from trying to maintain good nutrition. Over time, many of these problems will improve.

Here are some suggestions to increase your appetite:

Eat small, frequent meals or snacks from 6 to 8 times a day.

Drink beverages after meals instead of before or during a meal so you do not feel as full.

Try to eat more protein and fat and fewer simple sugars. Eggs, fish, and high-protein puddings will provide you with high nutritional content and high protein in small portions. Custards, peanut butter, ice cream, yogurt, peas, beans, and nuts are also high in protein.

Don?t waste your energy eating foods that provide little or no nutritional value (such as potato chips, candy, colas, and other snack foods).

http://my.clevelandclinic.org/services/bone_marrow_transplantation/hic_how_to_cope_with_high-dose_chemo_and_radiation_therapy_side_effects.aspx
Title: Re: GOD PLEASE HELP ME!
Post by: lighthouse33 on February 18, 2014, 10:51:52 AM
Side Effects: Dry Mouth
Recommendations:

Rinse your mouth with water before meals.

Chew your food completely. Sip liquids frequently while eating to keep food moist and to help with swallowing.

Drink 6 to 8 eight-ounce glasses of fluid per day.

Gargle with club soda or add lemon or lime to water to thin saliva.

Try to eat soft foods with sauces, dressings, broths, sour cream, or gravies to make the food easier to swallow.

Try dunking your foods, such as bread, into soups to moisten them.

Suck on ice chips or sugar-free gum or candies to keep your mouth moist.

Liquid nutritional drinks might be helpful when your mouth is most dry.

Artificial saliva and Biotene? products might relieve a dry mouth. Ask your health care provider for more information.

Side Effect: Mouth sores

Mouth sores are common after chemotherapy. They can make it difficult to eat and drink. You will be instructed on how to perform daily mouth care. It is important to perform this mouth care as instructed. The healthier you can keep your mouth, the less likely an infection will occur.

Recommendations:

To prevent mouth sores:

In the hospital, you will be given mouth care products and instructions on how to use them. You will use two types of mouth rinses daily to keep your mouth clean. You are expected to perform your mouth care independently several times a day. 

Do not use commercial mouthwashes or lozenges.

Patients can brush their teeth after each meal with a small, soft toothbrush and fluoride toothpaste.

Prepare a gargle by dissolving ? teaspoon each of salt and baking soda into 8 ounces of warm water. Rinse your mouth and gargle with this solution at least 4 to 6 times a day, especially after meals and before going to bed.

Use dental floss daily, if allowed by your doctor.

If mouth sores develop:

If you are able to eat, eat slowly. Cut your food into small pieces and chew it completely.

Eat foods that are warm or at room temperature. Avoid hot foods and drinks.

Eat soft foods. A soft diet can be prescribed for you, if necessary. Talk to your health care provider about a soft diet.

Liquid nutritional drinks might be helpful when you have mouth sores.

Avoid crunchy foods such as potato chips and nuts.

Drink liquids through a straw to make swallowing easier.

Do not talk with food in your mouth.

Avoid eating or drinking acidic foods and beverages such as tomatoes, oranges, grapefruits, and their juices. Instead, try nectars and imitation fruit drinks with vitamin C.

Avoid carbonated beverages.

If you are unable to eat due to your mouth sores, your health care providers will monitor you nutritional status very closely.

You will be given pain medicines intravenously to control or decrease the discomfort caused by the mouth sores while you are in the hospital.
Title: Re: GOD PLEASE HELP ME!
Post by: lighthouse33 on February 18, 2014, 10:53:20 AM
Side Effect: Skin rash

A skin rash or other irritation might occur because of chemotherapy, an allergic reaction to a medicine, or from an infection. Allogeneic transplant might also experience skin rashes from graft versus host disease. (See section on GvHD for more information.) A skin biopsy might be required to diagnose your skin rash. In this procedure, a small sample of skin is removed and examined under a microscope.

Most skin rashes improve but require time for healing.

Recommendations:

Gently cleanse the affected area using lukewarm water and mild soap. Do not rub your skin. Pat your skin dry with a soft towel.

Do not scratch or rub the affected area.

Do not apply any ointment, cream, lotion, or powder to the affected area unless it has been prescribed.

Do not apply cosmetics, shaving lotions, perfumes, or deodorants on the affected area. Use only an electric razor if you need to shave within the affected area.

Do not wear tight-fitting clothing or clothes made from harsh fabrics such as wool or corduroy. These fabrics can irritate the skin. Instead, choose clothes made from natural fibers such as cotton.

Do not apply medical tape or bandages to the affected area unless you are told to do so by your health care provider.

Do not expose the affected area to extreme heat or cold. Avoid using an electric heating pad, hot water bottle, or ice pack.

Do not expose the affected area to direct sunlight. Sun exposure might intensify your skin reaction and lead to severe sunburn. Wear a large-brimmed hat or protective clothing to minimize sun exposure. Choose a sun block/sunscreen of SPF 30 or higher. Continue to protect yourself from the sun even after your course of treatment has been completed.
Title: Re: GOD PLEASE HELP ME!
Post by: lighthouse33 on February 18, 2014, 10:54:31 AM
Side Effects: Hair Loss

Hair follicles are very sensitive to radiation and chemotherapy. Both of these treatments cause hair loss. Hair loss might be temporary or permanent. If your hair loss is temporary, it might start to re-grow about 3 to 6 months after your transplant. You might notice that when your hair begins to re-grow, the texture or color is different than before.

Recommendations:

This side effect can be very upsetting. Talk to your nurse or social worker about wearing scarves, hats, or a wig.

Ask about ?The Look Good, Feel Better program,? which is sponsored jointly by the American Cancer Society; the Cosmetic, Toiletry and Fragrance Association; the National Cosmetology Association; and the Cleveland Clinic Cancer Center. All participating patients receive a complimentary gift bag of skin care and cosmetic products.

Avoid frequent shampooing. Use a mild shampoo (such as baby shampoo) without any perfumes.
Wash your scalp with warm water. Avoid rubbing and do not scratch. Pat dry with a soft towel.

Avoid excessively combing or brushing your hair.

Avoid using hair spray, oils, or creams
.
Avoid using heat sources on your hair (including hair dryers, rollers, or curling irons). Do not perm or color your hair. Ask your health care provider when you can go back to coloring or perming your hair.

Protect your head from the sun, cold, and wind by wearing a head covering (such as a cap, turban, scarf, or hat made of cotton or a cotton blend).
Title: Re: GOD PLEASE HELP ME!
Post by: lighthouse33 on February 18, 2014, 10:56:18 AM
Side Effect: Fatigue

Everyone has a different level of energy, so bone marrow transplantation will affect each patient differently. Many patients might require a full year to recover physically and psychologically from their transplant. Even after that, life might not return to the ?normal? you had experienced before your bone marrow transplant. You might find that you need to permanently change your lifestyle to prevent fatigue, avoid infections, and cope with the long-term effects of treatment.

During your recovery, you will feel fatigued and weak. You will also have a decreased appetite. It will take some time to regain your strength and ability to participate in daily activities. Each person's recovery varies. You might find that it takes several weeks to many months to resume your daily activities.

The time following your transplant is a time of cell recovery and growth of your new marrow and re-growth of cells in your mouth, stomach, intestines, hair, and muscles. This growth requires calories and energy, and might explain why you feel more tired than you anticipated.
Recommendations:

Evaluate your level of energy. Think of your personal energy stores as a ?bank.? Deposits and withdrawals have to be made over the course of the day or the week to balance energy conservation, restoration, and expenditure.

Keep a diary for one week to identify the time of day when you are either most fatigued or have the most energy. Note what you think might be contributing factors.

Be alert to your personal warning signs of fatigue. Fatigue warning signs might include tired eyes, tired legs, whole-body tiredness, stiff shoulders, decreased energy or a lack of energy, inability to concentrate, weakness or malaise, boredom or lack of motivation, sleepiness, increased irritability, nervousness, anxiety, or impatience.

Plan ahead, organize and prioritize your daily activities. Change storage of items to reduce trips or reaching. Decide which activities are important to you, and delegate other tasks/activities when needed. Combine activities and simplify details.
Schedule rest. Balance periods of rest and work. Rest before you become fatigued. Frequent, short rests are beneficial.

Pace yourself. A moderate pace is better than rushing through activities.

Exercise daily. Walking is an excellent way for you to regain your strength and stamina. Eat a well balanced, nutritious diet.

Manage stress. Managing stress can play an important role in combating fatigue. Adjust your expectations and ask others for support and help.

Talk to your health care providers. Although fatigue is a common, and often expected, side effect of cancer and its treatments, mention your concerns to your health care providers. There are times when fatigue might indicate an underlying medical problem. Other times, there might be medical interventions to assist in controlling some of the causes of fatigue. Finally, there might be suggestions that are more specific to your situation that would help in combating your fatigue.
Be sure to let your doctor or nurse know if you have:

Increased shortness of breath with minimal exertion.

Uncontrolled pain.

Inability to control side effects from treatments (such as nausea, vomiting, diarrhea, or loss of appetite).

Uncontrollable anxiety or nervousness.

Ongoing depression.
Title: Re: GOD PLEASE HELP ME!
Post by: lighthouse33 on February 18, 2014, 10:57:21 AM
Insomnia (difficulty sleeping)

Many patients have trouble sleeping during their hospital stay. You might experience insomnia because of discomfort from nausea, mouth sores, or other problems. Changes in your daily routine or stress from your personal concerns might also be factors.

If necessary, you might be given a prescription medicine to help you fall asleep.

Practice relaxation techniques such as mental imagery, deep breathing, reading, or listening to calming music.
 
Make sure you are comfortable. Arrange your pillows so you can maintain a comfortable position.

Avoid napping too much during the day. At the same time, remember to balance activity with rest.
 
If you feel nervous or anxious, talk to your spouse, partner, or a trusted friend. Get your troubles off your mind. Your social worker can meet with you for individualized counseling and is available to meet with you on the BMT unit.
Title: Re: GOD PLEASE HELP ME!
Post by: angeldancer on February 18, 2014, 11:42:36 AM
I thank all of you for the responses.  This is way more difficult and I need to research some other ways of treatment.  Thanks for all the mouth sore reports and I will start on them all including the baking soda.  I will get my son to walk to the store for me.  I guess I am depressed right now and I know it will go away.  It has to.  It has to be another way for healing.
Title: Re: GOD PLEASE HELP ME!
Post by: LucyD on February 18, 2014, 07:48:17 PM
Dearest Angel,

I am so sorry you are going through this.

I wish we all lived in a community physically close to you so we could support and care for you.

Please make sure your doctors know how much you are suffering from the chemo and ask them to offer help.

Sending love and care.

LucyD
Title: Re: GOD PLEASE HELP ME!
Post by: susanep on February 18, 2014, 08:07:58 PM
Bless your heart. I cannot imagine your pain. You are in my prayers.

susanep
Title: Re: GOD PLEASE HELP ME!
Post by: warmwaters on February 18, 2014, 09:43:27 PM
I have nothing other than to add my best hopes for you. May all of your pain improve quickly.

To others who have offered a wide range of practical advice, you guys rock. I find this such a helpful community.
Title: Re: GOD PLEASE HELP ME!
Post by: grammad97 on February 18, 2014, 09:54:53 PM
Oh Angeldancer-
My heart breaks to hear you are in pain and hungry.
I have no advice for the sores you are experiencing.
Sucking on ice chips has numbed my sore throat in the past.
I pray you have better days ahead.
Title: Re: GOD PLEASE HELP ME!
Post by: SjoDry on February 19, 2014, 05:51:05 AM
Hi Angeldancer,

I am so sorry that you are having to deal with this.  I have some information for you. My co-leader of our Sjogren's Support Group (also named Sandy) is a professional who has been teaching &
lecturing on dry mouth for many years. Specifically, Sandy does a lot of lecturing about dry mouth from the effects of cancer & radiation treatments and also Sjogrens. Ironically, Sandy had been teaching for 11 years and then became a survivor of stage 4 head & neck cancer. I emailed Sandy your email post. She is in the midst of traveling, but sent me a quick email back to give to you. Also, she said she would be happy to speak with you. I will send her telephone number to you in a private email. She will always answer unless she is lecturing or traveling on a plane or something. I hope this will be helpful to you.

From Sandy:
Please ask her 2 call her dentist & request neutrasal & episil prescriptions ( until she can do that she can use 1 teas of baking soda in 1 cup water room temp water, take mouthfuls &  hold in mouth count to 60 & use entire cup every 2-4 hours.  

I hope things will soon get better for you.
SjoDry (Sandy)

Title: Re: GOD PLEASE HELP ME!
Post by: cccourt1942 on February 19, 2014, 08:41:51 AM
is it possible she has thrush?  Candiadisis? (SP)???
Title: Re: GOD PLEASE HELP ME!
Post by: lighthouse33 on February 19, 2014, 09:49:44 AM
Toms of Maine Clean and Gentle SLS Free Anticavity Peppermint Whitening Toothpaste

This was recommended online by people who have had chemo.  I got it for my mom after her chemo and now she uses nothing else.

Toothette Individual Oral Swab

Mom uses these a lot of dry mouth and she says it makes her mouth feel good.  She was introduced to these in the hospital.

AverTeaX? Natural Daily Lip Protector, for Everyday Use on Dry, Cracked, and Chapped Lips and for Cold Sores/Fever Blisters

I just purchased this product and have yet to try it out.

PRODUCT DETAILS: Naturally Relieves Dry, Cracked and Chapped lips Naturally Soothes and Softens Cold Sores/Fever Blisters Specifically Designed for Lip Protection Contains Powerful Green Tea Antioxidant Patented Stable Formula with Plant Extracts Clinical Study Published (Inflammation & Allergy-Drug Target, May 11, 2012) Developed by Dr. Stephen Hsu, Professor at Georgia Health Sciences University U.S. Patent 8076484 Made in the USA at FDA-Registered Manufacturing Facilities PRODUCT INSTRUCTIONS: For best control of cold sores or fever blisters, apply daily as a lip moisturizer and protector. To achieve best results, apply at the first sign of symptoms (redness, tingling, tightness, or itching) directly on the affected area 6-10 times a day. During an outbreak, also use AVERTEAX? Topical Ointment. TECHNOLOGY: AVERTEAX? cold sores and fever blisters made with the LIPIDAN technology The LIPADAN technology (US patent 8076484, Georgia Health Sciences University) maximizes the beneficial effects of green tea leaf extract (Camellia sinensis) and botanic extracts, and stabilizes many antioxidants in green tea.

AverTeaX? Natural Topical Ointment for Treating Cold Sores/Fever Blisters

Natural Treatment for Cold Sores and Fever Blisters Naturally Relieves Pain and Itching Specifically Designed for Outbreaks Contains Powerful Green Tea Antioxidant Patented Stable Formula with Plant Extracts Clinical study published* (*Inflammation & Allergy - Drug Target, May 11, 2012) Developed by Dr. Stephen Hsu, a professor at Georgia Health Sciences University. U.S. Patent 8076484 Made in the USA at FDA-Registered Manufacturing Facilities
Title: Re: GOD PLEASE HELP ME!
Post by: SjoGirl on February 19, 2014, 02:34:25 PM
Such terrible flushing of the face is a sign of an allergy to Prednisone. Please discuss with your doctor. I can't taken anymore because I had that reaction last time I took it.

prayers for you Angel Dancer, may God hold you in the palm of his hand.
Title: Re: GOD PLEASE HELP ME!
Post by: ellieas on February 19, 2014, 02:59:00 PM
So Sorry you are going through this. I had mouth sores with chemo. Magic Mouthwash is great or others mentioned here.You will get through this. The depression and cabin fever get better even though you don't think so now. I had all of those feelings and sometimes just stayed in bed and cried.Talking to my friends and a few times to a therapist who works with cancer patients helped alot.Try to  take things hour by hour-don't think about what comes next. Applesauce and and sherbert are great.Please know that all this is time limited.The chemo will help you to live-and not always with side effects. You will be healthy and enjoy things again. I promise!

Hugs,hugs,hugs
Lesley
Title: Re: GOD PLEASE HELP ME!
Post by: Jasper on February 19, 2014, 03:05:42 PM
I am so sorry you are going through all of this. I don't have a lot of suggestions but I wanted you to know I am thinking about you and sending hugs your way. I am hoping you will feel better soon.
Title: Re: GOD PLEASE HELP ME!
Post by: Chris on February 19, 2014, 03:54:39 PM
Praying for you! You are so strong! Try try try to drink ensure or a cold milkshake! Straw may help.
Bother those docs and make them give you something for the pain and sores!!,
Hugs
Chris
Title: Re: GOD PLEASE HELP ME!
Post by: Cricket on February 22, 2014, 10:59:56 AM
I am so so very sorry you are going through this.  Please call oncologist and insist to be seen or given something.

I just had a chemo Tuesday and feel your pain, feeling nauseous, headache, sore tongue ( for which they will give me nothing does not think from chemo, but I do)

I know that feeling of helplessness, you are sick and it takes all your strength to pick up the phone let alone fight with them!  Hand in there, we have to be strong to fight this cancer and win!  You can do it!

If you ever want to pm me feel free, I will be praying for you!  Keep me posted, please!

Soft hugs and mighty prayers for you
Cricket~
Title: Re: GOD PLEASE HELP ME!
Post by: aussie mum on February 22, 2014, 12:40:54 PM
Dearest Angel,

You can do this... you are so strong... we are all here for you !!!!

Sending you many gentle (((hugs)))

Aussie Mum
Title: Re: GOD PLEASE HELP ME!
Post by: leann8209 on February 23, 2014, 07:08:05 AM
I'm so sorry your so miserable.. sending lots of prayers your way!! Hang in there.

Title: Re: GOD PLEASE HELP ME!
Post by: CMNK12 on February 23, 2014, 10:07:38 AM
I am so sorry that you are going through this. There are simply no words to take it all away. Please know that you are in my prayers.
 
Take each day as it comes, get through it , then face the next one. You can do it. Fight and win! I will be praying. CK
Title: Re: GOD PLEASE HELP ME!
Post by: gmomjuju on February 23, 2014, 10:14:25 AM
So sorry to hear that you are having a rough day.  When I was driving home from church today I was having a little "pity party" for myself in my head.  After reading your post I immediately changed my mind to have celebration of having another day!

BTY, I am a 10 year cancer survivor.  I am praying that in 10 years you will posting something wonderful to a member on this forum who is walking the same path that you have.

Blessings and keep the faith!!

Judy
Title: Re: GOD PLEASE HELP ME!
Post by: Cricket on February 24, 2014, 07:09:39 PM
Angel

How are you doing today?  I have been praying for you.
Cricket~
Title: Re: GOD PLEASE HELP ME!
Post by: angeldancer on February 25, 2014, 08:02:06 AM
Thank you every one.  All I can do is take each day one at a time.  Every day is different and I am trying to stay strong.  Today I can barely walk.  I don't know how Im getting to radiation and I can't walk.  I wished these doctors understand that Sjogrens is a major part of all this.

Thanks all of you.  I didn't cry on my birthday but broke down on Sunday.  This pain and agony will pass.  I know it will.  I know it will.

Peace and blessings to all of you.
Title: Re: GOD PLEASE HELP ME!
Post by: ellieas on February 25, 2014, 12:02:16 PM
Just know that you have alot of people who care about you and who are praying for you. You will get through this. Hope you had a good birthday. You don't look any older from your handwriting.  LOL
Hugs,
Lesley
Title: Re: GOD PLEASE HELP ME!
Post by: kimberly64 on February 28, 2014, 01:58:08 PM
I am praying for your recovery. Please stay strong,
Kimberly