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Sjogrens Topics => Useful Links => Topic started by: quietdynamics on February 13, 2014, 08:58:02 AM

Title: Fibromyalgia Stamford Uni Video: Pain management
Post by: quietdynamics on February 13, 2014, 08:58:02 AM
 


Came upon this Video on the Research Channel. org ...defunct 2010, available on YouTube.

"The Research Channel an educational television network based at the University of Washington in Seattle, Washington, and operated by a consortium of leading research and academic institutions who contribute science-related programming to viewers in the United States and in other countries via satellite and cable television."
http://en.wikipedia.org/wiki/Research_Channel


"..it is quite common for patients with "well-established" rheumatic diseases, such as rheumatoid arthritis, systemic lupus, and Sjogren's syndrome, to have fibromyalgia also. It is important for these patients' doctors to realize they have such a combination of problems, as specific therapy for rheumatoid arthritis and lupus, etc. does not have any effect on FM symptoms."
http://fmaware.org/PageServer0bbc.html?pagename=fibromyalgia_overview

Video: Stamford University School of Medicine, Dr. Sean Mackey, MD, PhD/ Chief Division Pain Management
An Update ...http://www.youtube.com/watch?v=jtc2JARVpPw

*I hope this video helps you understand the process, testing, research and treatments (including pitfalls).   
It is older, but chock full of information...1hr, 15 mins.

Dr. Sean Mackey, MD, PhD
Associate Professor of Anesthesia (and of Neurology & Neurological Sciences, by courtesy)
Director of the Stanford Systems Neuroscience and Pain Lab
Stanford University
Palo Alto, California

http://www.emergingsolutionsinpain.com/about-us/clinical-advisors/23-sean-mackey

I hope this video helps you understand the process, testing, research and treatments (including pitfalls).   
Title: Re: Fibromyalgia Stamford Uni Video: Pain management
Post by: soycoffee on June 07, 2014, 02:18:17 PM
BD (Before Diagnosis with Sjogren's Syndrome) I knew I had Fibromyalgia. Thank you for this video, because a) Dr Mackey says, quite plainly, that fibro pain does not go away with exercise. I had a well-meaning internist who insisted that I *walk, or *workout, to get rid of the fibro. Mackey says here that basically it doesn't work. Five years ago, low dose naltrexone (LDN) was the next promising treatment. It's more available now.

Has anyone tried LDN for Sjogren's with fibro added into the mix? With what results?

Thanks,
Soycoffee