Sjogrens World Forums

Sjogrens Topics => Living With Sjogren's => Topic started by: sass on June 24, 2012, 12:16:19 PM

Title: sass is back
Post by: sass on June 24, 2012, 12:16:19 PM
Hey there good people!  I have been trying to reach you for 2 days, but  I have my tablet and my password was not stored.  Now I don,t know if any of you have tried to crochet underwater but between drugs and trying to form a sentence, the recall of my password was beyond me.  So here I am. Finally,
 Crockett, thank you for keeping everyone updated.

I will have to do this in small increments, due to the grogginess and the pain.
For now,things are moving along slowly. The fist initial frozen biopsy did not reveal the information they are looking for.  Now we wait til Tuesday fora better result.   

Many, many doctors are involved.  I must go for a little while and will ck back later.  sass
Title: Re: sass is back
Post by: gmomjuju on June 24, 2012, 12:23:50 PM
Wow! You are Wonder Woman for sure!  As I told you before, I have had lung biopsies.  But...my procedure was called "minimally invasive" - something new that Bayer had perfected.  I had 2 small incisions but it felt like 52.  And like you, it took several days for my biopsy results as they sent them to Hopkins.

Do nothing but take it easy and take your pain medication.  If you don't take them you will reach the point of no return.  I will surely keep you in my prayers.

Behave and God Bless!
Judy
Title: Re: sass is back
Post by: Gayle on June 24, 2012, 12:39:22 PM
SASS!!!!
So good to hear from you! Now, behave, take your meds, rest and argue with the Dr's as needed. Much love and many prayers!

gayle
Title: Re: sass is back
Post by: Sleepy In Seattle on June 24, 2012, 12:47:18 PM
Good to "hear your voice"...! Take it easy and best wishes....
Title: Re: sass is back
Post by: Cricket on June 24, 2012, 12:50:28 PM
So glad you are up and talking to us, missed you and praying!
Title: Re: sass is back
Post by: Reanne on June 24, 2012, 01:27:07 PM
Ditto to what the others have said.  Glad to see you were able to post, but take care of YOU first. 
Title: Re: sass is back
Post by: eye2dry on June 24, 2012, 02:43:23 PM
So glad you so well with your lung biopsy.

Hope you get encouraging  news soon.


eye2dry


Title: Re: sass is back
Post by: sass on June 24, 2012, 03:38:02 PM
Cricket,my apologies for the Crockett thing! Lol

Have been up and walked a lap this afternoon.   If they would just take out these drainage tubes, I could tolerate he rest and get some rest.  The main tube is excruatating and is laying on a nerve causing half of my left breast and torso to be completely dumb.     sass
Title: Re: sass is back
Post by: ohiolady on June 24, 2012, 03:57:35 PM
Oh, Sass sending you a big hug and praying the tube comes out soon.

Take care and keep us updated.

Anna
Title: Re: sass is back
Post by: jazzlover on June 24, 2012, 05:29:00 PM
Praying for the tube to be OUT!! :)
Title: Re: sass is back
Post by: Cindy on June 24, 2012, 05:35:54 PM
Hang in there. Sending many many positive energy your way.
Title: Re: sass is back
Post by: iraisin on June 24, 2012, 06:53:03 PM
You amaze me woman. I'd tell you to hang in there, but it sounds like you have that handled well enough without instruction. I'd be crying like a baby. you are a wonder. Bless you dear, Sass.
Title: Re: sass is back
Post by: sass on June 24, 2012, 06:57:06 PM
No, You are each entirely amazing people! 
Title: Re: sass is back
Post by: Cdbhappy on June 24, 2012, 07:09:56 PM
Sass,

So good to hear from you and know you are back on the grid!!   Chest tubes really are painful, I hope yours is removed soon and the Pain and numbness go away. 
Continuing to remember you and yours In prayer!

Cdbhappy
Title: Re: sass is back
Post by: genko_b on June 24, 2012, 07:19:37 PM
Take care - sorry for so much pain. Here's hoping the results will give you some good options for treatment.

Genko
Title: Re: sass is back
Post by: Gayle on June 24, 2012, 07:54:41 PM
SASS!!

Prayers, hugs and strong positive vibes are just pouring down on you! Have a great night and a wonderful Monday!!! Your amazing!

Gayle
Title: Re: sass is back
Post by: irish on June 24, 2012, 10:06:35 PM
sass, Glad to hear that all went well and you are recuperating. Take care and keep us posted. The prayers will keep coming. Irish
Title: Re: sass is back
Post by: Meld256 on June 25, 2012, 03:04:27 AM
Sass,

Hoping that tube can be removed soon and you can get more rest.  Thank you for updating us.

Keeping you in my thoughts and prayers for better news than anyone would imagine and that you're feeling better soon with treatment.
Hugs,
Melinda
Title: Re: sass is back
Post by: sass on June 25, 2012, 04:35:42 AM
 :'(Pain so very much worse today :'(      Feel like someone has used a nail gun and nailed me to my bed.   sass
Title: Re: sass is back
Post by: Skylar on June 25, 2012, 05:18:50 AM
Great to read your post. I'm amazed at how well you crochet under water LOL, I can't crochet on dry land.  ;) It's so good to see you are up, walking laps and posting. You have a great attitude about all of this.

I am so sorry that they have to take another biopsy  :'( I hope this time they get definitive answers so they can move forward on your treatment.

Sending you more healing vibes and a great big bear ((((HUG)))).
Title: Re: sass is back
Post by: Cricket on June 25, 2012, 07:24:52 AM
Sass.

So sorry you have so much pain today will pray the Lord takes it away.

I am sending you good vibes and much love! ;D
Cricket
Title: Re: sass is back
Post by: Sleepy In Seattle on June 25, 2012, 07:51:22 AM
Nooooooo! Sass, I am sorry it's a bad Monday for you....dangit, they need to DO SOMETHING to make you more comfortable.  >:(

Hoping this is just a phase you have to pass through and will be healing and feeling better very, very soon....
Title: Re: sass is back
Post by: mebog on June 25, 2012, 12:12:13 PM
So happy you are able to Post.  I wish you many more good things.

I'll be praying for you.
mebog
Title: Re: sass is back
Post by: jazzlover on June 25, 2012, 12:15:16 PM
Somebody please bring out the morphine!
Title: Re: sass is back
Post by: Iris on June 25, 2012, 12:17:19 PM
I'm so glad you were able to post.. Please have your husband or someone call for some stronger pain meds.. It will make recovery so much easier for you..  I'll be praying for you, Sass..
Title: Re: sass is back
Post by: susan on June 25, 2012, 02:33:09 PM


So sorry your pain is worse today. Sometimes it is hard to get ahead of it; be sure they are treating it before it gets unbearable.  Thinking of you.
Title: Re: sass is back
Post by: Dolly Dimples on June 25, 2012, 03:06:35 PM
  Dear Sass, just remember "no pain no gain"  Take one day at a time, each one will be better.
              Your a star!, Dolly x
                   
Title: Re: sass is back
Post by: mshistory on June 25, 2012, 06:11:44 PM
I am so sorry you are having so much pain  :'( I hope they can do SOMETHING to provide you some relief.
Title: Re: sass is back
Post by: sass on June 26, 2012, 08:03:09 PM
Sorry I dropped off the face of the forum for a few days. Drain Tube did not come out for 72 hours and has now came out..but the pain has remained. 

They added a short acting morphine shot, very short temporary relief,  upped strength of pills...not improved...now adding a pain patch, discontinuing morphine, but continuing the pain pills and seeing what happens till morning! 

on the better side:

Our Prayers Continued to be answered, I give all glory to God! And I thank The so Many Prayer Warriors that I know and the thousands that I have never met. We are all brothers and sisters in Christ!

My next level of biopsy results are in and though we still await another doctors report we are getting more an more positive news. What Doctors are saying- although never curable, it is very treatable and controllable. They are calling it lung disease/inflammation due to Sjogren's Syndrome.

As a final checkpoint they have sent the biopsy to the Mayo Clinic in Phoenix, AZ only as a precaution.

Each of the Prayers you sent to God for me has been answered in the form of a MIRACLE. PLEASE THANK GOD !  YOU HAVE EACH BEEN PART OF A MIRACLE WITH ME..but we all go thru many of these that we fail to recognize, well here is one that you will...       

my most humble thanks!   ~sass~

now where is the homemade chocolate pie???       huh??
Title: Re: sass is back
Post by: iraisin on June 26, 2012, 08:19:45 PM
Joy! Joy! you are fantastic! That is wonderful news Sass! I'd bake you one if I knew how! 4kids says she bakes her way through stuff, but she's in Canada! You definitely deserve one.

Praise God!

Thanks for popping in and keeping us informed. Seeing you positive through all of this makes me smile and appreciate you so. You are an inspiration Sass...you definitely set a mark on how to get through difficult times.
Title: Re: sass is back
Post by: Gayle on June 27, 2012, 04:46:59 AM
HI Sass!!
I am so excited to see you post and hear this great news! Prayers are amazing hugs! Geesh, made me cry.
Gayle
Title: Re: sass is back
Post by: MissyLouWho? on June 27, 2012, 06:46:38 AM
Oh Sass I'm so happy you're ok!!!  I pray the pain goes away very quickly.  Heal well my friend!
Title: Re: sass is back
Post by: Iris on June 27, 2012, 06:49:29 AM
I'm so glad the results are better than they thought they'd be..  Still sending prayers up for you..

I have home made coconut pie, will that work?   ;D
Title: Re: sass is back
Post by: Sleepy In Seattle on June 27, 2012, 07:46:47 AM
Oh Sass - through the pain, your relief must be exquisite!!!! I am so happy for you....the pain will pass but that new diagnosis will settle in and bring such (comparative) peace....wonderful, wonderful news!
Title: Re: sass is back
Post by: Cdbhappy on June 27, 2012, 08:43:57 AM
Sass,

Glad the tube is out, and pray the pain will be gone soon.  Rejoicing for your great biopsy news and thanking God for answered prayers.  Hope that pie arrives soon, you sure deserve it. 

Cdbhappy
Title: Re: sass is back
Post by: susan on June 27, 2012, 09:42:55 AM


Wonderful news!! Made my day:)
Title: Re: sass is back
Post by: Meld256 on June 27, 2012, 09:50:57 AM
Wonderful news, Sass!  ;) :D 

I am thrilled that they feel your lung inflammation can be controlled and we're not talking the C-word.  I'm so sorry you're going through so much pain to get to this information, my dear. 

Continuing to pray for your recovery and lessening of pain soon!  We all are rooting for you.  ;D 8)

Someone will have to get a pie of some kind to you somehow.  ;)
Hugs,
Melinda
Title: Re: sass is back
Post by: 4Kids on June 27, 2012, 10:59:58 AM
Hi Sass. While I wish you were not in so much pain, I am so happy for you that it is better news than hoped for and they are confident in treatment. Take it slow!

Jackie
Title: Re: sass is back
Post by: Cricket on June 27, 2012, 11:51:42 AM
Glad it is better news than expected!

Now rest and feel better, praying for you!

Cricket
Title: Re: sass is back
Post by: eye2dry on June 27, 2012, 03:06:23 PM
This is very good news indedd.

I pray the Mayo Clinic in Pheonix agrees with the others docs.


eye2dryy
Title: Re: sass is back
Post by: quietdynamics on June 27, 2012, 06:34:10 PM

Great news.....Doing a Cha-Cha Happy Dance for you!!!
Title: Re: sass is back
Post by: sjenny on July 02, 2012, 08:26:59 AM
Sass, I am praying the Lord Jesus holds you in his arms while you are going through this fiery trial.