Sjogrens World Forums

Sjogrens Topics => Meet our staff and YOUR hosts => Topic started by: Spring on November 22, 2011, 08:11:26 PM

Title: Passing of a great friend, Care.
Post by: Spring on November 22, 2011, 08:11:26 PM
It is with great sorrow I must inform you that my co-founder of Sjogren's World, Billie/Care, passed away on Sunday November 20, at home in the comfort of her family. Without Care, this site would not be here for all to share. God be with her and her family.  Jo/Spring

(History, http://www.sjogrensworld.org/about_us.htm)
Title: Re: Passing of a great friend, Care.
Post by: AlienDog on November 22, 2011, 08:40:57 PM
Care will be sorely missed. I am honored to have been part of her life, sharing laughter and love. My heart and prayers go out to her family (including her Sjogren's Family) she was quite an amazing woman.

Woofers
Title: Re: Passing of a great friend, Care.
Post by: AlienDog on November 22, 2011, 08:43:42 PM
Spring, I wish I could give you a huge hug. I know you two were close for years, and knew each other before Sjogren's World came into existence. I love ya dearly! If there is anything I can do, please do not hesitate to ask!

Doggy
Title: Re: Passing of a great friend, Care.
Post by: Bucky on November 22, 2011, 08:51:22 PM
I will be forever grateful to Care and Spring for starting this wonderful website for fellow Sjogren's sufferers.

Care was an amazing lady who dearly loved life, her dog(s), her family, her friends and all the people she has met through the years via chat and posts on this forum.

I will miss her dearly. 

Spring - my deepest sympathy to you on the loss of your dear, dear friend.

To Care's family - thank you for sharing your Mom/daughter with us - she was truly loved by us.  Our sympathy to you all in your time of sorrow.

Hugs,
Bucky
Title: Re: Passing of a great friend, Care.
Post by: lynnmarie219 on November 22, 2011, 09:08:08 PM
I too wish to send my sincere sympathy to all of Care's family and friends.

I am so grateful to both Spring and Care for starting this site which I often refer to as my lifesaver...you were all here to laugh, cry, and be so informative and supportive of me when I didn't understand what was going on with this diagnosis I acquired called sjogrens.

To Care's family/friends...I'm so sorry for your loss...Care was loved by so many and will be missed. She made a real difference in many of our lives.

To Spring...I don't know what to say to ease the pain of the loss of your dear friend but please know that we are here for you if you need us.

To all of my sjoggie friends here...please remember Care with a smile on your face...she would have wanted it that way.

Hugs to all of you.....
Title: Re: Passing of a great friend, Care.
Post by: Joe S. on November 22, 2011, 09:25:33 PM
Thank you lynnmarie219 for expressing the words and feelings that I could not find.
Title: Re: Passing of a great friend, Care.
Post by: Meld256 on November 22, 2011, 09:41:54 PM
The news of Care's passing is met with much sadness, but we hear she would rather us celebrate the joys of her life instead.

My sympathy goes to Care's family and closest friends.  She will be so missed and never forgotten.

I also want to express my appreciation for all the work done by Spring and Care, and the insightful thought behind bringing a warm and welcoming site such as this where we feel as we are family; learning from one another, giving and receiving encouragement and support and sharing our lives.

Care's vision with Sjogren's World has made a positive difference in thousands and thousands of people's lives, and for that we are forever grateful.
Title: Re: Passing of a great friend, Care.
Post by: newhorizons on November 22, 2011, 09:51:17 PM
My heartfelt sympathy goes to Care's family and the many, many lives she has touched through our wonderful Sjogren's World.

Joy
Title: Re: Passing of a great friend, Care.
Post by: newhorizons on November 22, 2011, 09:54:48 PM
Spring, May you find peace in your heart knowing Care gave of herself and between the two of you served as a window to my world and thousands of others.

Thank you for such dedicated service to Sjogrensworld.

Fond regards, Joy
Title: Re: Passing of a great friend, Care.
Post by: irish on November 22, 2011, 10:13:51 PM
I was priviledged to get to know Care for the year that I was a moderator on this site. She was such a great lady with great fortitude, kindness and a great sense of humor.

She spoke often and with great pride of her family and she was always concerned about others. Care wasn't posting much the past few years but every so often she would show up and leave a post. It was nice to know that she was still hovering in the background. She will be missed greatly.
 
My sympathy to her family and all of those working on this site who have been close to her over the years.

Spring, I know that you and Care are 2 special people who got together and created this special site that has been such a blessing to so many.  Know that I will be keeping you in my thoughts and prayers. Irish
Title: Re: Passing of a great friend, Care.
Post by: susanep on November 23, 2011, 01:30:16 AM
I am also very sorry to hear of Care's passing. Spring, you and Care have together helped many people including myself.

susanep  :'(
Title: Re: Passing of a great friend, Care.
Post by: Linda196 on November 23, 2011, 05:15:24 AM
As saddened as I am by this loss, I'm also so grateful for the chance to have "met" such a loving, sharing and aptly nicknamed caring woman. I feel that Care, Spring, and the other wonderful members of this site rescued me.

I've heard this quote many times, and it seems so very appropriate for this occasion...."Do not cry because it's over, smile because it happened". I will weep for Care's family in their time of loss, and for Care's many dear friends, both in real life and online, and for my own feelings of loss.......but I will rejoice in a life well lived and shared so widely!
Title: Re: Passing of a great friend, Care.
Post by: Patze on November 23, 2011, 05:35:33 AM
To Care's family and friends, I too am grateful for the love, kindness and friendship that Care shared.  I will always remember her great sense of humor, her warmth and the wonderful love for her family.

To Spring, for your and Care's foresight and drive has produced a board that is very informative, welcoming, and accepting.  And for that, I will always be indebted.

With hugs,
Patze
Title: Re: Passing of a great friend, Care.
Post by: KellyG999 on November 23, 2011, 05:40:00 AM
I didn't know her, but based on all the posts I sure wish I did.

God bless her for this forum, that gave me hope, friends and understanding when it was nowhere else to be found.

KellyG
Title: Re: Passing of a great friend, Care.
Post by: mshistory on November 23, 2011, 06:02:50 AM
I didn't know her either, but I am sorry to hear of her passing. I too am grateful for this wonderful site that she helped to create - she has certainly left a legacy that will continue to reach people all over the world.

My prayers are with her family and friends.
Title: Re: Passing of a great friend, Care.
Post by: Cheryl on November 23, 2011, 06:34:38 AM
Those of us who were fortunate to know Care will never forget her.   She was outspoken and witty, yet very caring (nicknamed appropriately.)  I was blessed by her friendship when I ventured into her chat on Thursday nights, and then came to know her more personally as we later co-hosted that chat.

My sympathy goes out to you, Spring, and to all of you who miss her as I do. 

Cheryl 

 
Title: Re: Passing of a great friend, Care.
Post by: Cricket on November 23, 2011, 06:51:51 AM
I did not know Care, but I wish I did.  She has left such a wonderful legacy and I wish I could thank her.  To her family I extend my sympathy and also to Spring on the lose of a dear friend.
Title: Re: Passing of a great friend, Care.
Post by: Carolina on November 23, 2011, 07:48:28 AM
Care's legacy is amazing.

All my sympathy and love to you who knew her and to her family.

Hugs

Elaine
Title: Re: Passing of a great friend, Care.
Post by: anita on November 23, 2011, 08:36:28 AM
Wish I knew her.  Her family and friends will be in my thoughts/prayers.
Title: Re: Passing of a great friend, Care.
Post by: Liz D. on November 23, 2011, 08:46:02 AM
I feel so saddened about hearing of this loss!  I have never been on one of her chats, but I have had her feedback on this site for more than 7 years.  It has been a lifesaver.  My gratitude to Care and Spring is enormous!!

My thoughts are with all who are suffering from this loss!

Liz D.
 
Title: Re: Passing of a great friend, Care.
Post by: genko_b on November 23, 2011, 08:48:48 AM
Spring, we are all so sorry to hear of Care's passing. It's really hard to add anything to the wonderful words that have already been said; the sorrow that everyone is feeling is an indication of the blessing that Care's life was to all who knew her.

We are all in the debt of Care and Spring for starting this website, and of all those who have followed along as staff to keep it going. What an amazing legacy. Deep thanks to all.

Genko
Title: Re: Passing of a great friend, Care.
Post by: Daisy1234 on November 23, 2011, 01:02:38 PM
This world has lost a wonderful and very special lady, Care and it is right that we mourn her passing.   

Behind her though, is left an incredible and ongoing legacy that sustains many of us who through our collective afliction of Sjogren's have found a home to share our difficulties and rest our weary spirits.

Thank you Care and also thank you Spring, you both have made a substantive and positive difference in my life. 

Daisy
Title: Re: Passing of a great friend, Care.
Post by: Katybarstool on November 23, 2011, 01:20:37 PM
My thoughts and prayers are with Care's family. Spring, thank you for letting us know about your loss. Prayers for you too.

Kathyx
Title: Re: Passing of a great friend, Care.
Post by: harrigan on November 23, 2011, 02:09:39 PM
Although I did not know Care, I will always remember the relief of finding this site and 'speaking'to others who knew how I felt.  Spring and Care had a vision for something so many of us hold dear.  Sending my love and condolences to all Care's family and friends xx Ailsa
Title: Re: Passing of a great friend, Care.
Post by: Reanne on November 23, 2011, 02:58:15 PM
I am saddened to hear of Care's passing.  May God be with her family and friends.
Title: Re: Passing of a great friend, Care.
Post by: Scottietottie on November 23, 2011, 04:17:21 PM
Care will be a great miss. Her 'nick' just summed up everything about her. She tried to prepare us. She knew this was coming. What a legacy she has left.
Thoughts are with her family right now. - Scottie
Title: Re: Passing of a great friend, Care.
Post by: Duchess on November 24, 2011, 08:07:34 AM
Simply, THANK-YOU


Duchess
Title: Re: Passing of a great friend, Care.
Post by: Chickpea on November 24, 2011, 01:04:56 PM
Like so many others I felt Care's influence and spirit as soon as I joined Sjogren's World.  She had the perfect nickname because she truly cared.

As I got to know her I appreciated her humour and warmth, the love she had for her family, the pictures of her darling pets, and the care she showed her mother who lived with her.  Life was not easy for Care but she always had a store of love to share.

As Scottie says, Care knew this was coming and tried to help us be ready.  That's the sign of an incredible woman.

She had a loving family who shared her with us.  My heart goes out to them.  And also to Spring - and heartfelt gratitude to her too for the work she put in right from the beginning when she and Care had the idea of this forum.  This work continues with design and upkeep of the site, support for us all and sheer hard work.

I send love to all Care's loved ones - Chickpea
Title: Re: Passing of a great friend, Care.
Post by: pudmott on November 24, 2011, 11:19:55 PM
I didnt know Care very well but cannot thank her enough for her (Spring's) foresight to start a forum and website like this.  This site proved to be a massive suport to me when i was going through my dx.

I had the honour of chatting with Care in the chat rooms a fwe times and her sense of fun and caring were paramount.
While i am sad i will not mourn. I will celebrate the life and giving of a truly amazing soul
Be free Care

Pud
Title: Re: Passing of a great friend, Care.
Post by: Narablueeyes on November 24, 2011, 11:47:14 PM
I didn't have the pleasure and honor of knowing her but from these posts, she seemed lik an extraordinary woman.  My loss.
Title: Re: Passing of a great friend, Care.
Post by: smallfry on November 25, 2011, 02:08:11 AM
I didn?t have the pleasure of knowing care, but her name say?s it all ?Care? what a person, out of her own suffering she and Spring were able to develop this wonderful site that I have so often referred to as my refuge.

A place where so many people from all over the world are able to come to,to learn, to understand, to cry, to vent, to laugh and to find lasting friendships, what a very caring and a compassionate person she was.

My heart felt sympathies go to her family, and friends.

Thankyou CARE
Cheryl


Title: Re: Passing of a great friend, Care.
Post by: gold55 on November 25, 2011, 04:02:02 AM
Thank you for this site, Care and may you rest peacefully in the arms of angels.  My heartfelt sympathy goes out to Care's beloved family and friends.  It sounds like I missed out on knowing a very special human being.
Title: Re: Passing of a great friend, Care.
Post by: susanep on November 25, 2011, 11:55:51 AM
Does anyone know Cares age? I just couldn't remember. Her family and friends are still in my prayers.

susanep
Title: Re: Passing of a great friend, Care.
Post by: CAT1962 on November 25, 2011, 06:58:02 PM
I am so sorry! I will keep Care's family and her SjS family and friends in my thoughts and prayers.
Title: Re: Passing of a great friend, Care.
Post by: kimbo on November 26, 2011, 08:17:47 AM
When I found this SJS board after I was dx in 07, it was a life line, a world of compassion, understanding, encouragement and the most valid information I had found to balance and orientate me for my soggy journey.
 
The names popped out and greeted me, Care and Spring were the center piece Super Heroes.

Thank you so much, Care.  You will be missed. You have left a legacy that will go on giving, as you have givin.

Love, hugs and Eternal Blessings,
Kimbo
Title: Re: Passing of a great friend, Care.
Post by: MissMim on November 27, 2011, 05:27:51 AM
Some of you know me from the boards previously as chat host Mad Madam Mim.  I have not been around for a while things have been tough in my corner of life.  I heard from the other staff members about Care passing and it suddenly made me realise just how important she was in my life.  She looked after me, virtual hugs, virtual tissues, virtual advice but real love and for this I can only say thank you for all you did for me and in turn for my family and I will miss you greatly.

My heart felt sympathies go out to Care's family, Care was an inspirational lady and you should be very proud of having had her and thank you for allowing me to share her with you.  My love also goes out to you Spring, losing such a close friend is a heart breaking experience.
 
It has also made me realise how much I treasure the rest of you and that my life would be emptier without knowing you are there, for this I would like to thank you whilst I can.

With love
MissMim  AKA Mad Madam Mim


Title: Re: Passing of a great friend, Care.
Post by: stephL on November 27, 2011, 05:55:08 AM
I'm so sorry Spring! My condolences go out to you and all her friends and family. I regret that I missed out on getting to know her. But I'm so grateful to both of you for Sjogrens World. Thank you!
Title: Re: Passing of a great friend, Care.
Post by: Maggie12 on November 27, 2011, 12:50:04 PM
 :( My condolences to 'Care's' whole family and friends - R.I.P. you are in our thoughts and prayers.
Title: Re: Passing of a great friend, Care.
Post by: quiger on December 05, 2011, 04:40:26 PM
Care/Billie was such a special friend and will be greatly missed. It's so hard to even express the sadness following such a loss. She was definitely one of a kind.

I'd rather think that now her pain is gone and she is once again taking her beloved Sally for her evening walks.

quig
Title: Re: Passing of a great friend, Care.
Post by: sunnybunny on December 06, 2011, 12:21:26 AM
how terribly sad to come back (havent been on in about a month) and hear this news  :(

i can't find any words to describe...so many of you have said it so perfectly already.

God bless her, her  family and friends
Title: Re: Passing of a great friend, Care.
Post by: lynnmarie219 on December 06, 2011, 05:16:08 PM
I'd rather think that now her pain is gone and she is once again taking her beloved Sally for her evening walks.

What a nice thought Quiger! :)  Thank you!
Title: Re: Passing of a great friend, Care.
Post by: Patze on December 06, 2011, 06:45:55 PM
Thumbs up Quigers, thumbs up!


Patze
Title: Re: Passing of a great friend, Care.
Post by: Chickpea on December 10, 2011, 04:42:13 PM
Thank you for that thought, Quiger.  I found I was smiling as I imagined Care and Sally, together again!

Love to all - Chickpea
Title: Re: Passing of a great friend, Care.
Post by: paperdoll on December 16, 2011, 04:35:23 PM
Rest in Peace Care thank you for creating this Board and Website and everything... you have helped so many people!!!!!!!
Title: Re: Passing of a great friend, Care.
Post by: Mr. Duffy on December 19, 2011, 04:56:18 PM
I would like to express my sincere sympathy to Care's family and friends and to you SPRING, on the loss of your good friend. Care was one of the first people to respond to my questions many years ago in those early days when I had nothing but fear. She was so kind and helpful.

Love,
Duffy Dog
Title: Re: Passing of a great friend, Care.
Post by: valene2009 on December 27, 2011, 05:23:23 PM
Spring i am sorry for your loss of Care. :(  May she be in peace now..
Title: Re: Passing of a great friend, Care.
Post by: WYdry on December 28, 2011, 11:10:23 AM
So sorry to hear of this passing.
Title: Re: Passing of a great friend, Care.
Post by: trejonina on February 13, 2012, 05:51:14 AM
I'm very sorry to know that Care has gone.I LIVE IN A THIRD WORLD COUNTRY and all my info about my illness has come from this site,NOT FROM DOCTORS as I have even told them what blood tests to prescribe to diagnose my sjongren's and they get angry because of that.I owe you people founders of this site and users my health,and maybe my life.My gratitude is endless.Thank you all.
Title: Re: Passing of a great friend, Care.
Post by: P.Trish on February 16, 2012, 06:16:21 PM
I did not 'know' Care', but is it obvious that she has left a legacy of compassion, education and friendship.  Peace and blessings to you and her family.
Title: Re: Passing of a great friend, Care.
Post by: Poochie on March 18, 2012, 06:53:00 AM
I know all of my past friends and co-board members were wondering if I knew of Care's passing.  Well, yes I did know, however the news hit me a lot harder than I thought it ever would. 

Care - we worked together on chats, SJS world business, and everything you needed me to tackle for almost 5 yrs  I have missed you and will miss you dearly. 

My thoughts and prayers have been with your family and friends although I have been absent from here for a long time 

For those of you who did not know Care,  you missed the privilege of knowing a fantastic person. 

Spring, I can't imagine how it hit you, but my deepest sympathy's. 

For almost 5 yrs, I had the wonderful honor of working with Care and all those who were ask to help out on this fabulous site.  I cherish every moment and all those I worked with.  Thank you.

I pray that this will be an everlasting memorial to Care for all the love and caring she put into it. 

Go with God Care and give Sally a hug for me.  I know she is beside herself having you again. 

Hugs, love and God Bless always,
Pooh
Title: Re: Passing of a great friend, Care.
Post by: loulou on April 09, 2012, 01:22:12 PM
I hadnt been on the site for a very long time - but i am very saddened to read the loss of care.

I was lonely, scared and overwhelmed when i was diagnosed in 2003 until i came across this site, it was a comfort and reasurrance that i was not alone, and only did i find this site due to care and spring.

God bless care and may you rest in peace and you will be remembered by so very many.

Loulou
Title: Re: Passing of a great friend, Care.
Post by: Deb 27 on August 12, 2012, 07:14:39 AM
That is really sad. I never knew this person but send my sympathies. I know she will be sorely missed.
Title: Re: Passing of a great friend, Care.
Post by: RoseL on August 24, 2012, 03:36:16 PM
I haven't been on in a very long time, but it seems that the last time I was, Billie was driving up to the Mayo Clinic (or somewhere like that) to see if they could resolve her health issues.  I didn't I know that she was a co-founder of the site, but it doesn't surprise me.  I want to thank Billie and everyone on Sjogrens World for taking the time to share their knowledge, wisdom, stories, compassion, humor and love! It's a Godsend!

My condolences to Billie's friends and family. 

RoseL
Title: Re: Passing of a great friend, Care.
Post by: EllaBlue on August 24, 2012, 06:32:37 PM
Spring, I am new here so this thread is old for "me." STILL that matters not. What matters is that we all apreciate who she was, and how wonderful everyone says she was. And if not ofr her, we would not ever have one another. SO thank you...
I never knew you Care....but thank you for bringing together people that truly need one another.
God Bless you and may you rest in peace, free from pain:):) I have a feeling you are one of the angels!
EllaBlue
Title: Re: Passing of a great friend, Care.
Post by: sass on September 03, 2012, 03:22:38 AM
It is just a thought, But I was wondering if there was some kind of memorial or anything that we could do honoring Care's contributions?  I have no idea's as I do not live close, nor did I have a chance of meeting her.

It just seems fitting to me, that with everything see offered, to have something done in her memory. 
I could be out of line here and if I am, I am sorry.  I just understand that she was a great woman and I want her to be honored in a fitting way.

Is this something we could think about or possibly it has already been done. OR is there a place we can make a contribution. Like a scholarship fund or something. I can't do much, but it we all had something it could add up. ;D   If so, please let us know .
                                                                      thank you,   ~sass~