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Sjogrens Topics => Living With Sjogren's => Topic started by: flutterfly on November 29, 2010, 08:22:36 PM

Title: agoraphobia & rage
Post by: flutterfly on November 29, 2010, 08:22:36 PM
hey guys i was wonderin' if anyone else has delt w/agoraphobia?& is urs directly related to ss? any rage 4 no aparant reason except ur alive?
(i have both) neither i want! just wonderin'! i actually hope that no1 else does but just a smidge i was hopin' @ least 1 of u do so i have som1 ta talk ta 'bout it! ???

thanx muchly!xox

peace 4 the angry peeps!

~*flutterfly*~
Title: Re: agoraphobia & rage
Post by: Sha on November 29, 2010, 09:24:10 PM
Yeh doc....it bugs me!

If I had all your symptoms for as long as u have, id be a bit raged out too!;)

Luv ya!

Sha
Title: Re: agoraphobia & rage
Post by: Joe S. on November 30, 2010, 05:49:41 AM
It seems you two are on the same page on this issue. I am going to suggest that you practice the exercises in "Feeling Good" by David Burns. The rage seems to keep us in locked in the grief process. The exercises help us to work through it. Take care of yourselves and be kind to yourselves.
Title: Re: agoraphobia & rage
Post by: flutterfly on November 30, 2010, 07:08:13 AM
THANX AGAIN BRAT!

NOT U JOE...WE ALL KNOW WHO I'MA TALKIN' TA! TEHEHE! :P

is that technique somewhere between bitin' my tongue & shuttin' my word hole?

cause so far thats the only technique i've got!

~*FLUTTERFLY~*
Title: Re: agoraphobia & rage
Post by: LizPetillo on November 30, 2010, 07:20:05 AM
Over the past few years I developed a fear of taking medicine, even OTC.  I am afraid of food too.  Now that I know I have Sjogrens, I'm wondering if that has anything to do with it.  Every time I take a pill or a bit of food I wonder If I'm going to have a reaction this time because everything is changing.

Oh .. and germs.  I'm not germ-phobic .. I'm germ-aware.  It's a bit different and I think it's rather smart to be germ aware.  I won't go in buildings with lots of people if I can avoid it, and I avoid high traffic places like stores, etc.  Only go in the morning before the places have time to 'germ up' ... that kind of thing. 
Title: Re: agoraphobia & rage
Post by: deeindiana on November 30, 2010, 07:23:02 AM
I have agoraphobia too, but I've battled it most of my life (before I was diagnosed with SS). I take Zoloft to help me gather the courage to go out the door. I used to get feelings of rage too  until I hit menopause, so I assume it was hormones. I hope you find some relief.
Deb
Title: Re: agoraphobia & rage
Post by: Sha on November 30, 2010, 07:37:16 AM
Over the past few years I developed a fear of taking medicine, even OTC.  I am afraid of food too.  Now that I know I have Sjogrens, I'm wondering if that has anything to do with it.  Every time I take a pill or a bit of food I wonder If I'm going to have a reaction this time because everything is changing.

Oh .. and germs.  I'm not germ-phobic .. I'm germ-aware.  It's a bit different and I think it's rather smart to be germ aware.  I won't go in buildings with lots of people if I can avoid it, and I avoid high traffic places like stores, etc.  Only go in the morning before the places have time to 'germ up' ... that kind of thing. 

Uh...sound familiar flutterfly :D

Sha, who is going to school cuz the school district decided we were brave souls to go out in a winter advisory!!:P Uh, I'm not brave!
Title: Re: agoraphobia & rage
Post by: gphx on November 30, 2010, 11:23:35 AM
Your signature says 'FOGGED OUT'. Many with SS have cog fog (fatigue and cognition) issues. Some also have neurological impairment which can cause the nervous system and brain to work much harder to get the same job done.

I used to love loud music and crowds didn't bother me at all. Now, in a situation such as a restaurant with a lot of loud voices, my brain tries to make sense of all the inputs at once and it's just too much. Sometimes I'll feel vaguely ill. Other times I'll briefly get downright disoriented and want to leave. Sometimes I just want to scream at them to shut up. It usually passes quickly as the offending noises die down or I realize what's going on.

Quiet groups and/or a few loud people are no problem. But get a lot of loud voices together and I can't process it. I've also noticed I now tend to turn off the radio in the car when someone is talking and the window is open otherwise it's hard to understand them. When the window is closed and there's no breeze sounds I can usually understand them just fine. Again, too much input. Other forms of multitasking can be similarly difficult for those with cog fog or neuro deficit.

Surely there are multiple causes of anxiety and rage in public. If you notice yours too are sound related that's great because it's easy to steer oneself to quieter areas, wear an ipod to drown out the multiple noise sources with a single one, wear earplugs, or roll up the car window or turn off the radio.

No idea if this applies to you but if so I hope it helps.
Title: Re: agoraphobia & rage
Post by: irish on November 30, 2010, 12:05:12 PM
I don't have rage issues, but this last year I noticed a change in myself. I would get angry about something really fast. I could feel it in me and would have to watch what I said, etc. It was totally unlike any feelings I have had before.

Then I found out that I was over medicated for my thyroid disease. My TSH was down to .04 and the next time .14. I have had to cut down onmy medication 2 times and am hoping that it will be better. I am having more energy and the feelings of quick anger/short of patience, etc have decrease signiificantly. Many our body can sure screw us up. The thyroid is something that needs to be monitored a lot with autoimmune disease. Irish ;D
Title: Re: agoraphobia & rage
Post by: puccini914 on November 30, 2010, 12:18:00 PM
If any of you are taking Prednisone, this can cause a lot of anger, tension, weird ups and downs.  I can't stand it when they put me on the high doses because it just makes me feel crazy.
Title: Re: agoraphobia & rage
Post by: Joe S. on November 30, 2010, 01:53:37 PM
I am going to ask flutterfly and sha to play nice please. Twin talk leaves the rest of us out.
Title: Re: agoraphobia & rage
Post by: Sha on November 30, 2010, 07:02:09 PM
I am going to ask flutterfly and sha to play nice please. Twin talk leaves the rest of us out.

Awe  man! No fun at all:p

Flutterfly....why don't ya explain the yeh doc....it bugs me inside joke please! Ya gotta laugh at it or ya would cry!

Sha...who has a 2 hour delay tomorrow ....yippee!
Title: Re: agoraphobia & rage
Post by: Joe S. on November 30, 2010, 08:29:05 PM
I hear the North west coast is getting buried. That means that my wife will be very busy to night. She usually tracks communication problems in that area, Oregon and Washington.
Title: Re: agoraphobia & rage
Post by: flutterfly on November 30, 2010, 09:34:45 PM
  :Dwell hello there every1! i wanna thank all of u 4 ur stories & encouragement! no ~postal~ moments taday 4 me guys! lets start w/ u...
JOE~I HEAR U WANT IN ON OUR INSIDES...OKAY THE STORY GOES...i went ta my doc that i've seen since i was 23 & over the yrs i have been diagnosed w/neuropathies of hand & feet, diabetic gastroperisis, endometriosis diabetes type1, nystagmus & silent migraines in eyes (i also get strobe light looky things & blurry vision & blindspots in my vision)bursitis/arthritis,rashes of unknown origin that peel & sometimes i get these lil'red pinpoints under my skin, agoraphobia, panic attacks, splinter hemoraghes in finners & trig nerve issue in face & numbspots ALL OVER includin'my tongue & face thats just the diagnosed crap!
then u put the swallowin' issues, night sweats, sweatin'when i eat (SOembarrisin') sandy eyes that swell, allergies from the other side of heck, electric shocks throughout my lil'body, my droppin'things (i call it snow day hands) muscle flickers & cramps like i'm ~DUH~ dehydrated (thats what i say to dh ~gosh i feel dehydrated!~ as i look @ my 32oz drink!) my balance is all muffed up, feelin'dizzy & faint, stutterin'& word findin' or readin' instructions gets me everytime!when i never have had issues W/THAT B4 or this 1 REALLY BUGS ME...can't member names 4 objects! sluggish & discombobulated or feelin'wore out & sick all the time OR LIKE I CAN'T HOLD MYSELF UPRIGHT CAUSE I'VE HAD NO SLEEP & I CAN'T EAT BUT I'M 95LBS!

GOSH I"M SURE I LEFT OUT STUFF BUT THAT WAS BASICALLY THE LIST I WROTE OUT 1 TIME B4 DOC APPT. & I GET DONE & I SAY WHATCHA THINK DOC? & HE SAYS...U READY JOE...
WELL DOES IT BUG U?! DUH...BIG RED TRUCK...YES DOC IT BUGS ME! there now ur in our twinzie circle! feel better? much luv! ~*FLUTTERFLY*~ SMILES
Title: Re: agoraphobia & rage
Post by: flutterfly on November 30, 2010, 09:57:18 PM
SO TA THE REST THAT WERE SWEET ENOUGH TA RESPOND...
LIZ~OH MY...UR SO ME!i'm w/u on the germy thing! skeebed out! not enough purell kinda girl is me! & i'm 'fraid of food 2 'cause it don't like ME! can't poo but can sure puke! sucks! cause i'm a good cook & luv ta eat me sum food!

DEE INDIANA~i was diagnosed agoraphobic in 2002 when i couldn't go outa my house for over 3 months & was in a constant & i mean CONSTANT panic!
DIDN'T WANNA DIE BUT DIDN'T WANNA LIVE KINDA JOURNEY!doped me up & doc called it good! did sum selfmedicatin'w/demon alcohol & quit all head drugs! been a long time since i drank also! good pint sized pixie i am!but now i have no outlet & alot more stress! (takin' care of 82 yr old papa that is um...lets JUST say he's set in his ways! huh sha?! so that can't be helpin'!) thanx 4 ur well wishes dearheart!

IRISH~R U REALLY IRISH? i'm not on much meds (hydrocodone & insulin) i'm scared ta take anythin'else due ta past reactions ta meds! but thanx 4 info!

PUCCINI914~HELLO THERE! nah i can't even consider takin'sterroids...muff up my diabetes!

GPHX~is that a G or a Q? whats that stand 4anyways? pixies wanna know!the foggies i just thought i was a space cadet (i've sorta made peace w/it on the days i'm not ragin') then ~IT BUGS ME~!
I'LL ADMIT NORMAL PEEPS FREAK ME OUT! THANX GUYS 4 ur words!I DON'T FEEL SO ALONE! ~*flutterfly*~
Title: Re: agoraphobia & rage
Post by: flutterfly on November 30, 2010, 10:11:02 PM
KAMIE~I DIDN'T 4GETCHA KID~O...JUST RAN OUTA WORD SPACE (even here i talk alot) i used ta get scared of not findin'my way home...i know sounds stupid...but i really would get all turned around! or if i needed ta go somewher new...4GET 'BOUT IT! still make sha go w/me ta anyplace my hubby can't or won't if it's not 1 of my ~safe places~! (i can tell her ta hush it up ur freakin'me out & peeps r starin' & she knows...I MEAN IT & WHAT IT MEANS TA ME!)
I WAS A SOCIAL BUTTERFLY (THUS THE NICKNAME) & THEN 1 DAY I WASN'T & I HAD THIS THINGY CALLED AGORAPHOBIA W/PANIC DISORDER & MAJOR DEPRESSION! hey @ least they gave it a name!

yeh i don't take anythin' new due ta med reactions & all the stuff they put me on 4 diabetic gastroperisis has eh been PULLED OFF MARKET or I CAN'T TAKE IT!

KUDOS TA U 4 UR ADDITUDE! U KNOW SWEETS UR MORE THAN WELCOME TA CUM W/ME & SHA TA VIRGINIA MASON W/THAT I'M NOT GONNA TAKE NO 4 AN ANSWER ADDITUDE OF URS! WE COULD USE THE MINIONS! TEHEHE!
 
HAVE A COLD SIDE OF THE PILLOW KINDA NIGHT!

~*FLUTTERFLY*~   
Title: Re: agoraphobia & rage
Post by: Sha on November 30, 2010, 11:11:12 PM
I hear the North west coast is getting buried. That means that my wife will be very busy to night. She usually tracks communication problems in that area, Oregon and Washington.

Yes, joe, she will be very busy! Im in WA and im telling you it's sheer ice! Crackle, crackle, slip!:p

Be careful out there people in the NORTHWEST!;)

Pretty duh, big red truck moment...huh guys!

BIG RED TRUCK DEFINITION:

911 Dispatcher: Yes, can I help you?
Blonde: Hello? Uh, my house is on fire! Can you help me?
911 Dispatcher: Sure, I?ll page the fire department. Just tell me how they can get there.
Blonde: Duh!! Big Red Truck!

Ps..joe- didn't I tell ya we had our own twinzy language until we were almost 5...nobody could understand it but us...mom said so!;)

Have a good night!

Sha~ the better half;)  <~ (playing nice joe) lol everyone understood that one right?
Title: Re: agoraphobia & rage
Post by: flutterfly on December 02, 2010, 05:46:04 AM
 ;) mornin`joe...aahh shucks now when i say big red truck peeps...ur gonna know what kinda peeps i`ma talkin` `bout!
gee i sorta feel like we have a triplet sha baby!

what r we gonna do ta haze him on in? hmmm...
got any ideas?

well welcome ta our funky upside down sideways never upright or normal always sum fresh heck kinda world!

hope u have a great day! back ta the hospital ta see if they know what their right hands doin`w/their left hand taday! prob lost both hands if its anythin` like yesterday!

 (sorry mods 4 the double ~LL~ word in other post... didn`t know that was considered cussin`feel free ta change my naughty words if  they slip out! i`ll sure try & behave tho!)

~*uber tired~ wobbly~sore flutterfly*~
Title: Re: agoraphobia & rage
Post by: navydad on December 02, 2010, 10:46:57 AM
In 1989, I had my first panic atack,, at work,, thought I was dieing, then they started to happen everywhere,, malls,, restaurants,, didnt eat out for almost three years,, stopped living,, would go to work,, panic attack, drive to work,, sit in the car and sweat and shake,, try to work with shaking body,, thank goodness I didnt have them while driving,, so I went to therapy,, it helped some,, but I did better on my own,, on my lucnh break,, I would go to the mall, sit in the parking lot,, panic,, go back the next day,, panic,, inside the mall door,, panic,, took a few months of going myself before I could walk around in the mall,, did the same thing with restaurants,, had to start with drivethrough,, ys it was that bad,, then go inside when it wasent busy,, get in get out,, then try and sit and eat without throwing up frm panic
  Rage,,I wont say a lot about it, not much to say really,, just tired of not being taken seriously by many of my doctors,, getting meds that almost kill me,, can you say fentyl patch?,, even my new gastro,, who I really like,, mailed me his thoughts on our initial visit,, he justhad to add in ,, ( ahistory of depression and anxiety),, now really,, what does that have to do with my guts,, I think they toss that in so they cover there bases,,
 
Title: Re: agoraphobia & rage
Post by: marilyn143 on December 02, 2010, 10:58:30 PM
yes to both.i have been feeling alot of rage struggled through soooo much in life only to have this thing lurking messing with me all along.I think about all my children/family went through when I relapsed into drinking due to not being able to get any kind of real help for my physical problems.Even after I lost custody of my child ,burned down my house and had cancer none of the dozens of doctors,social workers,judges took my physical complaints seriously.I at last fired all my doctors and did get a dx thought  things would improve.well I have alot of rage all those years of people pushing me making me feel like maybe it was MY head problem or not working my program well enough.all I done was damage my body trying to support my kids while I begged for help year after year.I have a 17 year old son that has been living with his sister I'm left out of any real parenting  anymore.It hurts worse than anything .feeling helpless is such a bad trigger for me with my abusive past .I have real bad rages sometimes and am glad for the most part no one sees them.I think somehow it is a component of this whole puzzle.all the members of my family that have fibro also have bipolar or anger issues.
Title: Re: agoraphobia & rage
Post by: flutterfly on December 02, 2010, 11:58:31 PM
NAVY DAD~hey sweets...i'ma feelin' u & i raise ya 3months in house can't even go on front porch! w/my papa & hubby on suicide watch W/drug cocktail of remeron~prozac & zyprexa (my muchkin'head doc actualy called it a california cocktail) SAY WHAT DOC?! U MEAN I WON'T BE ABLE TA FUNCTION & NEVER GET OUTA BED UNLESS I SOAK THE SHEETS??? OH YES PLEASE...'NOT'! U FRIGGIN' IDIOT! that was 2002! so i ended up in icu w/pancreatitis in 2005 or maybe it was keteoasidosis...i don't 'member...either way they couldn't give me my remeron through i.v. (best thing ta happen outa my stay @ germville) so got off all the pills!@ 1 time b4 i took any meds i was so freaked out by peeps that i hid on my floorboard in parkin' lot 'cause the normals were lookin' @ me!oh & don't 4get the papa that can't handle me panicin' so squeezes me tight...as i'm hyperventalatin' & screamin' @ him "i'm not me papa can't u see that!" (a yr ago i was the talk of the party! the social butterfly) the only thing my papa knew ta do is ta pray on it! i dunno 'bout u but in a panic I DON'T WANNA GIVE THANX & ASK 4 HELP IN ~BLAHS~ NAME!(i happen ta believe in pixies & flutterflys) but i respect him enough ta feel the smother 'til i almost pass out!
(HOPE I DIDN'T OFFEND ANY1) i respect every1's beliefs!

& my rage cums outa NO~WHERE (well thats not true...it comes from my word hole LOUDLY!) don't get me wrong...i'm typically not know ta have a filter & i'm an ~ARIES CHICKY~ means i'm a fire sign & a TRUE SPIT~FIRE...BUT I USED TA BE ABLE TA CONTROL IT! NOW...NOT SO MUCH!
KUDOS 4 ~MAKIN~ URSELF GO PLACES! i used ta do that...would go ta a store or outa my house @ least once a day so i wouldn't get stuck in my house again...but i moved ta take care of our papa thats now 82 & he's way far away from EVERYTHIN' so now when i DO make it out IT'S TRAGICLY EPIC!

NICE TA MEETCHA!i also feel ur plight of too many docs...alot of $...more time W/no answers or RELIEF! FOR MUFFS SAKE 4 THE $ I'VE SPENT 4 MY DOCS TA POKE FUN SAYIN' ITS A T.T.THINGY...THAT I'M A REGULAR ENIGMA IS JUST MEAN! i wonder if they'd say that ta their kid?OR THEIR SPOUSE! runnin' outa room...HOPE UR PILLOWS COLD!~*FLUTTERFLY*~
Title: Re: agoraphobia & rage
Post by: flutterfly on December 03, 2010, 12:14:47 AM
MARILYN 143~HEY SWEETS...i'm SO SORRY 4 ur journey sounds horrific! a mamas heart is lost w/out the hearts that they make & nurture!
that has ta be awful! (((me))) huggin' (((u)))! hope u don't mind...i'm a hugger!

i also had a tortorous journey after mama passed in 2004! went ta the jim beam bottle & boy its nice while it lasts now doesn't it!
right up 'til my lil' bod said hey...knock that crap off or i'm headin' u right back ta the icu again! (plus my hubby was tired of sleepin' on the cold hospital floor!)
eh the icu is the worst 4 an agoraphobe! (glass doors w/no curtains & lotsa peeps) yowzer!

well honeybunch...I BELIEVE U! MUFF THOSE FOOLS! I hope u have family or friends rouncha ta give u a ~real~ hug!

much luv & good thoughts commin' atcha!

~*FLUTTERFLY FLITTIN' OF TA BED XO*~ 
Title: Re: agoraphobia & rage
Post by: gphx on December 03, 2010, 03:43:09 AM
Hi Flutter, GPHX stands for Golden Phoenix. As a teen, my parents divorced. My mother remarried to a good guy. It'd been a tradition in his family for my stepfather to give each son a private ceremony wherein they chose their own new name which meant something to them. My stepfather did the same with me, his new son. The name I chose was Golden Phoenix, after the bird that arises from its own ashes. To me it is a symbol that all of life's travails are lessons to prepare us for the next leg of the journey should we choose to see them that way. Now you know.
Title: Re: agoraphobia & rage
Post by: flutterfly on December 03, 2010, 01:55:26 PM
GPHX~THANX 4 THE EXPLANATION! WOW HOW FRIGGIN' EPIC IS THAT! sounds like a wonderful guy! (how old were u when that happened)
golly i'm nosey huh? u can tell me its non of my business! (i would if i didn't wanna answer sumthin'!) i'ma no filter kinda pixie! cums ta mind & out my mouth it cums! ooppsy...

well i'ma funky weird pixie that luvs folklore ~ mythology ~ astrology & such so that been said...ur already interestin' ta me! just on that alone!

have a good funk kinda day u massive wingspan ~ awe shockin' beautiful birdy u!

~*always ready ta suck up info.(if my brain ain't mushy) funky flutterfly xo*~
Title: Re: agoraphobia & rage
Post by: gphx on December 03, 2010, 07:41:27 PM
Flutterfly - they got married during my last year of high school. Rather than pay for a big wedding they spent the money instead on a trip to St. Thomas for themselves and us kids. It was the time of a lifetime. The name thing was a few years later, probably around age 20. At that age a stepfather need not even bother but he did and still does. Sometimes after a divorce people get lucky and a family just gets bigger and better. Have a great week.
Title: Re: agoraphobia & rage
Post by: marilyn143 on December 04, 2010, 10:00:24 PM
Thanks flutterfly things are getting better between my daughter and I so I am feeling a bit better about things.thinking maybe i wont go off my 420 again as that seems to help so much. ;D no mental drugs can come close.Ahhh now if I didn't have to be a broke criminal just to get a little relief >:(   
Title: Re: agoraphobia & rage
Post by: flutterfly on December 04, 2010, 10:20:31 PM
GPHX~THATS EVEN MORE EPIC! ur a very lucky kid!(manchild)! takes a good parent @ whatever age ta make a difference!
luv is free but often not given out freely!SAD!

MARILYN143~I LIKE THIS...~hey it's 4:19...u got a minute!~ (sumthin us kids used ta say!) wahaha!

THATS A NO~NO...u go ta jail that way bebe! :o

getcha ur~green card~ luv! or r u in 1 of those mean peeps states!

~*flutterfly*~
Title: Re: agoraphobia & rage
Post by: Sheltiemom on December 05, 2010, 02:34:43 AM
Are you kidding?

Sheltiemom
Title: Re: agoraphobia & rage
Post by: anita on December 05, 2010, 05:22:04 AM
Flutterfly,

Although very hard for me to read your posts (and my son's text messages--LOL) I was able pick out comments about your gastroparesis...and not having any treatment.   Diabetic gastroparesis is from nerve damage in the autonomic system.  The same applies to MANY of us here with autonomic neuropathy from the Sjogren's.  I have had severe gastroparesis for years and also could not take Reglan (which is likely not on the shelf anymore---or at least it SHOULDN'T be).  I (like many others on this forum) take Domperidone.  It is not available in the US, but easy to get from Canada and it's much better than Reglan.  There is no problems getting it from Canada.  My GI doctor at Johns Hopkins writes an RX for it and the legit pharmacy in Canada mails it to me.

There is no reason NOT to be treated for this.  There is also diet changes (mechanical soft diet) that can help.  A few people have found Botox injections (during endoscopy) to give relief.  There are many threads on this forum about gastroparesis.  You might find something helpful is you do a search and read some of the threads.

Best,
Anita
Title: Re: agoraphobia & rage
Post by: anita on December 05, 2010, 01:40:42 PM
Sha,

As for the Domperidone.  I hear you about reactions.  You're talking to someone that has severe reactions to EVERY antibiotic...and Regaln cause severe instant movement disorders.  Docs have even tried brand new drug classes of antibiotics.

Domperidone is actually very benign when it comes to drugs.

I do the mechanical soft diet for severe gastroparesis, which is basically grinding everything up.  The less work the stomach has to do, the better it is at moving it along.  Like I said there is also the botox which is supposed to work quite well to relax the pylorus (not sure if I spelled that right) so that the stomach empties faster and easier.

Title: Re: agoraphobia & rage
Post by: flutterfly on December 08, 2010, 05:29:40 AM
HEY SHA~I WAS ~GONNA~ POST BACK TA EVERY1 BOUT THEIR RESPONSES ~BUT~ U "BOUT COVERED IT!  :-\

ANITA~ i'm a walkin' bill even w/good ins.! so the option of payin' outa pocket & the hassle of gettin' it from canada isn't worth it!
but YES doc has givin" me that option!

SHELTIE~ R U MIFT? I DIDN'T UNDERSTAND UR POST? PLEASE EXPLAIN!  ::)

SHA~ SURGERY DAY 4 PAPA...NEED THE STRAW...BACK SO I CAN SUCK IT UP!
luv u! will keep u updated as ta how the day goes HONEYBEE!

please guys send good thoughts taday! agoraphobed flutterfly has ta be @ hospital all day w/papa bladder cancer surgery!
hope that everythin' turns out well 4 papa & that i don't...DOT ANY1'S EYES & CROSS ANY1'S EARS 4 BEIN' A BIG RED TRUCK KINDA PEEP!

~*FOGGY FREAKED OUT KINDA FLUTTERFLY*~ :o
Title: Re: agoraphobia & rage
Post by: Lily on December 08, 2010, 06:55:22 AM
See there's a double header going on.

Okay, Sha and flutter -

You don't understand Sheltiemom's reply?

Here's a clue.

She's probably referencing your word games, and said so with clarity and brevity.


Lily
Title: Re: agoraphobia & rage
Post by: flutterfly on December 09, 2010, 09:19:18 AM
LILY~ well here`s the deal...i`m tryin` ta NOT RAGE HERE SO I SAY EXACTLY WHAT I MEAN! DON`T HAVE A CHOICE...WASN`T BORN W/A FILTER 4 MY THOUGHTS! not tryin` ta word game u or any1 else! i had responded ta marilyn  & used humor ta  say it! if 4 sum reason that offended u or sheltie all i can say is THATS sad! SO THERE!

i don`t think i should have ta apologize 4 the things i talk ta my twin`bout! Or the way i say them! but thanx a bunch 4 ur input! WOW I WOULDA NEVER FIGURED IT OUT! 

u or sheltie don`t know what we are dealin`w/w/my papa or our lives! i try really hard ta just keep an even keel 4 the day! but ta tell ya the truth...i don`t think WE`RE THE 1`s  that were  word playin`!

i said what i said ta sheltie so maybe ME & HER COULD HAVE A DISCUSSION `bout what mift her!

have a funky kinda day!

~*NOT CONFUSED @ ALL FLUTTERFLY*~

p.s. did u notice this threads `bout RAGE & agoraphobia? HMMMM!
Title: Re: agoraphobia & rage
Post by: Lily on December 09, 2010, 09:29:45 AM
What a piece of work.

'Bye, 'bye.

Lily
Title: Re: agoraphobia & rage
Post by: flutterfly on December 09, 2010, 10:12:07 AM
THAT`S WHAT ~SHE~ SAYS! hey welcome ta the boards lily!
i hope this place is sumwhere u can come & be honest & BE URSELF! i also hope the info u find here will help u w/ ur journey!

PEACE 4 THE ANGRY PEEPS! & we`re all angy peeps on occassion! SMILES!

~*JUST TRYIN` TA BE...FLUTTERFLY*~
Title: Re: agoraphobia & rage
Post by: flutterfly on December 13, 2010, 01:42:39 AM
oh golly guys...i will just warn ya...sorta explicit...

so has any1 had ta take care of an elderly parent? well lets just get ta it...i am! he's 82 & i luv him very much!
i also have a touch of um...modesty! oh gosh i guess not much but sum...@ least w/my papa! now guys i have went 35 years w/out seein' or EVER really thinkin' 'bout his nuh~uhs!

that ALL changed since his bladder surgery! um lets just say that he don't care...& i do...but i CAN'T & WON'T say anythin'!
he has a catheter 'til thurs. i was a quick study & can unhook & hook & dump & clean like a pro now!

honestly everythin' was fine right up 'til i'm down on my knees dumpin bag & um he wanted me ta check his nuh~uhs ta see what was itchin' him!
i could see if he wasn't able ta do this himself but yeh HE COULD & didn't! so now i'm sorta stuck w/salve ta put on the scars it caused in my noggin & REALLY hopin' i can get used ta the different kinda relationship we have! i know its gotta be weird & embarrassin' 4 him but...he sure don't show it!  :o

sorry just sorta needed ta vent!

hope this post wasn't 2 offensive ta any1!

~*flutterfly tryin' ta adjust!*~ 
Title: Re: agoraphobia & rage
Post by: flutterfly on December 23, 2010, 10:26:53 AM
well guys...this season is a mad^hatter kinda wookiness 4 the lil' agoraphobic!

lights are bright...peeps are all in a hurry & sumtimes just plain rude & mean!

startin' ta wear on me! i have problems on a normal basis...but this time of year...

i'ts just AMPLIFIED 100 times over!!!

i just wanna dot sum peeps eyes & cross their ears!   :o

~*flutterfly...puttin' finners behind back 4 less temptation!*~