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Sjogrens Topics => Living With Sjogren's => Topic started by: susanep on May 11, 2010, 01:32:32 PM

Title: At Work Today-UPDATE
Post by: susanep on May 11, 2010, 01:32:32 PM
I didn't know if this day at work was ever going to end. I was scheduled to be at a meeting for a student. I went, we got through it, and then when others were leaving, the principal ask me to stay with her and the supervisor of my department.

Well, they let me have it. They were saying I have missed too much this year. The supervisor said she don't know why I can not be there just because I am sick, because she comes to work sick. I just didn't even give a response to that. She doesn't have any illnesses. I just sat there and listened, and prayed to God to help me through this.

They said they will be talking to the superintendent to let her know. I just said, ok. I was thankful for having many files to work on while the students were outside having a end of year field day. It kept my mind focused on something, instead of how I felt inside, which was to get up and call my husband to come and get me out of there.

Everyone would you please pray for me. Decisions may be made for me. I don't know yet.

In a daze.

susanep :(
Title: Re: At Work Today
Post by: bloodless on May 11, 2010, 01:40:01 PM
Oh, gosh! I'm so sorry. They have no idea what you have to withstand. Have you told them you have sjogrens? If so, you'd think in the education field, they would look it up and realize how hard you really are working to be there. I suppose the best that you can do is tell them the doctors are trying to stabilize your condition and there's nothing you'd like better than to be at work. Praying for you!
Title: Re: At Work Today
Post by: Katybarstool on May 11, 2010, 01:53:59 PM
Susan

My heart goes out to you. How dare they! Is there some way you could talk to them about Sjogren's, and ask them to make some adjustment to your work?

I will definitely pray for you.

God bless.
Kathyx
Title: Re: At Work Today
Post by: syng4hym on May 11, 2010, 01:55:17 PM
Go quickly to your doc and have FMLA papers signed so you can be out whenever you are sick and they can't do anything about it.  They HAVE TO save your job or one just like it for you.  You get 12 weeks/yr of FMLA. 
Title: Re: At Work Today
Post by: susanep on May 11, 2010, 02:02:21 PM
They both know I have sjogren's due to my rheumy last year sending them info about it, and telling them I needed reasonable accommodations, such as not having to be out in the sun, and not having to stand in the cafeteria more than 15 minutes before sitting down.

I did say before I left , I guess I should have had the papers filled out for the medical leave act, and the supervisor said, well if you need it, then said, but susan you have to take so much time at one time. I said, I know how it works.

susanep
Title: Re: At Work Today
Post by: Pisces24 on May 11, 2010, 04:26:02 PM
I believe you get up to 6wks per year on FMLA. Whether that is taken as vacation time or unpaid time is up the the work's policies.

When your are ill with something covered by the disesase on the FMLA, you have to see the dr who filled out the paperwork to verify it. I believe you and the dr then let you work know that you are out due to the FMLA covered illness.

I also didn't want to fill out FMLA paperwork because I didn't think I needed it yet.
BUT, I am very susceptible to infections and got the H1N1, 101temp, etc etc and work threatened to reprimand me if I didn't come in. My gp was soo ticked and astonished that he said I should go the FMLA route and filled out the paperwork. I have/had not missed much work either but my employer has rigid "time off" policies.

I don't know if they can just kick you out without a written documented warning. Check when the last time off you were out? Did you see your dr then? I may be not too late to have that time covered - I don't know.
But YES - get the FMLA paperwork done ASAP.
Title: Re: At Work Today
Post by: Patze on May 11, 2010, 06:40:26 PM
Aw Susan, let me send you some giant soft hugs my friend...

(http://www.freesmileys.org/smileys/smiley-hug008.gif) (http://www.freesmileys.org/smileys.php) (http://www.freesmileys.org/smileys/smiley-hug008.gif) (http://www.freesmileys.org/smileys.php) (http://www.freesmileys.org/smileys/smiley-hug008.gif) (http://www.freesmileys.org/smileys.php) (http://www.freesmileys.org/smileys/smiley-hug008.gif) (http://www.freesmileys.org/smileys.php)

Take care of yourself, and keep us updated, okay?

Patze
Title: Re: At Work Today
Post by: lynnmarie219 on May 11, 2010, 07:09:43 PM
Susan,

So sorry that you are going through this...I will keep you in my thoughts!

FMLA allows you 12 weeks in a 12 consecutive month time period and it doesnt matter what time incrememnts you take the time off in. I count my one day off when I go for my out of town Dr. appts as FMLA...it DOES NOT have to be an extended leave.....it just can not go over 12 weeks total in the 12 months. FMLA will protect your job up to that point.

Hang in there my friend....hugs to you....
 
Title: Re: At Work Today
Post by: susanep on May 11, 2010, 07:22:03 PM
I will let you all know what happens. I don't know what I would do if I didn't have you here to come to. I took a long nap, and a half of sleeping pill to relax. Even times I don't post due to my mind, I always pray for everyone here.

Thank you
God Bless
susanep
Title: Re: At Work Today
Post by: eyeamdry on May 11, 2010, 08:12:01 PM
Susan, I went through this 5 years ago.  Please follow through on the FMLA with your doctor and make sure you take care of your responsibilities. 
Once this is brought into being, they have to back off you as long as you're doing your part.

If you follow the FMLA, and some months down the road you find you have to file for disability, this could possibly make all the difference in the world.  I don't know for sure, all states, employers etc are different.  Find out if your employer has short term disability.  What I ended up doing was going on to short term disability through my employer then on to Social Security Disability.  I don't mean to mean that you can do any of this, but if I did not have all my ducks in a row, I'd have been out of luck.  Everyone told me that I wouldn't be able to get social security including the eye doctor who messed up my eyes.  They were wrong.
Title: Re: At Work Today
Post by: Suzy on May 11, 2010, 09:09:13 PM
Susan,

I am so sorry that you are dealing with this. My heart goes out to you. I just want to march in there and tell them what's what! >:( This should fall under some sort of anti-discrimination law! Geesh!

Keep your chin up.

Suzy
Title: Re: At Work Today
Post by: harrigan on May 12, 2010, 01:35:17 AM
Susan, so sorry you are met with such difficulties at work.  Not sure how the law differs but here in UK your Head would not be allowed to have such a discussion with you 'tagged on' to another meeting.  You would have to be informed of the meeting to discuss your absence and would also be recommended to take in your union rep with you.  The treatment you received with 2 staff 'mobbing' you with concerns you were not prepared for is unacceptable and unprofessional.  So sorry you had to go through this.

Just wanted to let you know you are in my thoughts as you begin to sort through all this.  Be strong and remember - when the ignorance of others prevents them from understanding how much you have to bear, your family here understand and care.  XX Ailsa
Title: Re: At Work Today
Post by: susanep on May 12, 2010, 03:15:38 AM
Thank you so much everyone. I can't begin to tell you what it means to me  right now. I am up, and getting ready for today at work. I won't talk to those 2 again without a union representative. I am hoping for a private meeting with the superintendent, because she has known me since I began teaching 15 years ago. Well almost 16 now.

susanep
Title: Re: At Work Today
Post by: lynnmarie219 on May 12, 2010, 04:44:25 AM
We will be with you and behind you today in spirit Susan!
Title: Re: At Work Today
Post by: jstroble on May 12, 2010, 06:47:17 AM
Susan

 I will be thinking of you.  I had  a similar experience.  Definitely not fun!

Joyce
Title: Re: At Work Today
Post by: Bucky on May 12, 2010, 06:59:35 AM
{{{Susan}}},

What a way to ruin your work day, isn't it?!  I agree with Ailsa, that was really unfair that they caught you off guard to bring this subject up.  I would definitely get my medical information together and have it all ready.

I know this school year has been a challenging and difficult one for you. 

Best wishes as you go through the channels of defending your job while dealing with a chronic illness.

Hugs,
Bucky
Title: Re: At Work-Today Update
Post by: susanep on May 16, 2010, 08:04:07 PM
Friday I seen the high up person. Actually me, and my husband both. She was very supportive. She laid out the future at school how it was going to become even more stressful after one more year, but that whatever I decide she supports me.

She recommended after my asking her, that this week I call a number and find out what  I could expect if I retired normally or with disability. I felt better after meeting with her, and so did my husband. I also was honest with her too about my sjogren's and how ill I am.

At this time, we plan for me to work one more year, and then retire if we can manage. This might sound strange, but just knowing that makes me feel better.

Just thought I would update.

susanep :)
Title: Re: At Work Today-UPDATE
Post by: eyeamdry on May 16, 2010, 09:24:21 PM
Susan, thanks for the update.  Be glad you have a union (if they're of real help) and knowing a bit of the future can make things feel better, even it it's still a way off.  I'd like to say to remember though, not to say too much to others, they are not always your ally.  Usually they are not.  Lucy
Title: Re: At Work Today-UPDATE
Post by: susanep on May 16, 2010, 10:56:49 PM
Lucy yes I know what you mean, and my mother says that too. I have in the past found that out the hard way. I have always been too trusting.

susanep :)
Title: Re: At Work Today-UPDATE
Post by: harrigan on May 17, 2010, 01:01:31 AM
Glad you feel a little bit better and have some options to look into. Take care XX Ailsa
Title: Re: At Work Today-UPDATE
Post by: susanep on May 17, 2010, 11:08:29 AM
I am at home so sick today. Wheezing, coughing, sharp pains when I swallow, etc. I am sure this is going to go over great when I go in tomorrow. I am so tired of being persecuted for being sick. Just so tired of it. When I slept, I kept dreaming about someone coming at me, because I was home sick. That is just no kind of life.

susanep
Title: Re: At Work Today-UPDATE
Post by: Rhonda on May 17, 2010, 11:32:44 AM
Hugs Susan.   I understand what you ar going through.  Get the FMLA paperwork - it helps.  I did and am now filing for disability - life is too short to spend it so miserably.  Most people do not understand the fatigue we feel, much less the other symptoms...  Hang in there.  Know we are all here for each other.  Good luck.
Title: Re: At Work Today-UPDATE
Post by: harrigan on May 17, 2010, 01:31:42 PM
Susan, you need to rest to get over this infection, without feeling persecuted even in your sleep! Poor you.  It is clearly upsetting you if your dreams are filled with images like that. Hope you can call in all the support you can from Union and medical experts.  Hugs XX Ailsa
Title: Re: At Work Today-UPDATE
Post by: Harmony on May 17, 2010, 01:34:07 PM
Hi Susan,

So sorry you are having to deal with this. (Touchless Hug). Please think about the FMLA as others have posted. I had no support from my employer concerning my illness and I worked for the Chief of Neurology at a major hospital!!!! It literally only took two days from start to finish as far as being accepted for FMLA.

Good luck to you.

Harmony
Title: Re: At Work Today-UPDATE
Post by: bjnc on May 17, 2010, 02:39:07 PM
I'm praying for you, Susan.  Please keep us posted.  Take care of yourself, and allow your body the rest that it needs right now.

Becky
Title: Re: At Work Today-UPDATE
Post by: Patze on May 17, 2010, 06:37:04 PM
Hope you feel better Susan!!!  And here's sending you some giant soft hugs my friend....

(http://www.freesmileys.org/smileys/smiley-hug008.gif) (http://www.freesmileys.org/smileys.php) (http://www.freesmileys.org/smileys/smiley-hug008.gif) (http://www.freesmileys.org/smileys.php) (http://www.freesmileys.org/smileys/smiley-hug008.gif) (http://www.freesmileys.org/smileys.php) (http://www.freesmileys.org/smileys/smiley-hug008.gif) (http://www.freesmileys.org/smileys.php)

Take care of yourself -

Patze
Title: Re: At Work Today-UPDATE
Post by: susanep on May 17, 2010, 06:41:49 PM
Thank you everyone. I won't be going in tomorrow. I have a sub. My temperature has been over 100. I  have taken a breathing treatment.  I won't die for them. Can the FMLA help with what I have already missed or do I have to file it first, and then if I need it?

susanep
Title: Re: At Work Today-UPDATE
Post by: eyeamdry on May 17, 2010, 07:09:03 PM
I don't think it can go retroactive, but the sooner you get the paperwork, the better.  Then they know you're looking out for yourself.
Title: Re: At Work Today-UPDATE
Post by: Harmony on May 18, 2010, 11:28:39 AM
Susan,

It is not retro-active. Take care.

Harmony
Title: Re: At Work Today-UPDATE
Post by: susanep on May 18, 2010, 02:29:14 PM
Me and my husband both went to the doctor today. We both are sick. They took my temp and it was 101.4 , and it still is. They did give us both one of those strong shots, plus prescriptions. My husband went to the pharmacy just to find out on his, he was cut off his medical help as of yesterday.

He has some calls to make tomorrow. Pray for him too. This whole thing is not fun, but I know we are not the only ones going through it. What will be will be. God's Will Be Done.

Thanks Everyone for your sweet hugs, kind thoughts, prayers, and lots of encouragement.
And, BACK AT YA!

susanep
Title: Re: At Work Today-UPDATE
Post by: susanep on May 18, 2010, 10:32:51 PM
I know I am probably just being a mental pain right now, but I can't seem to get my fever down. I got a rocephen shot plus augementin, and using everything else. I don't usually have a fever above 99 . But, it keeps staying at 100.4, and on its way up.

susanep
Title: Re: At Work Today-UPDATE
Post by: Reanne on May 19, 2010, 04:38:21 AM
Susan,

I am so sorry for everything you have been through lately.  I think the stress adds to the illness.  Hang in there girl.  Did the doctor say to come back in if you didn't get better?
Title: Re: At Work Today-UPDATE
Post by: susanep on May 19, 2010, 10:34:51 AM
My fever finally broke this morning. Thanks for all your prayers and well wishes. I will go in to work tomorrow. I only have the rest of this week, and we are out for the summer. I never ever have missed during the last week of school. My body does what it wants when it wants, so it's not like I had a say so over this.

susanep
Title: Re: At Work Today-UPDATE
Post by: Katybarstool on May 23, 2010, 07:28:24 AM
Hi Susan

I've been offline for a week or so, so missed all your posts until today. How are ou feeling now?IS school over for the summer? How's our husband doing?

Hugs
Kathyx
Title: Re: At Work Today-UPDATE
Post by: Patze on May 23, 2010, 09:13:35 AM
Hi Susan,

I'm with Kathyx, how are you doing?  How is the hubby doing as well?


Patze
Title: Re: At Work Today-UPDATE
Post by: lynnmarie219 on May 23, 2010, 12:14:55 PM
Hi Susan,

How did the rest of your week go? Are you out for the summer now?

Let us know how you are doing...Ive been thinking about you!   
Title: Re: At Work Today-UPDATE
Post by: beverley on May 23, 2010, 12:44:32 PM
Dear Susan,

Have just caught up with this thread and am horrified by what you have been going through.  I know first hand what a spiral of despair you can get into and how this in turn has a dreadful impact on your health.  It must be even worse with your husband poorly as well and all the extra stress about medical charges etc.  I really hope that you are able to sort out your employment or retirement.  I have been lucky.  I am now able to take voluntary redundancy and then a reduced pension from September because I am retiring three years early.

Retiring on disability as a teacher in the UK is quite tricky.  You have to provide lots of evidence and prove you couldn't work in anything - not just teaching.  That would be very difficult as I am not on full pension anyway and have to work.  I imagine you are in a similar situation.  Would your pension be reduced?

I am thinking of you Susan and hoping that you feel a lot better and clearer about your future soon.

Best wishes,

Beverley 
Title: Re: At Work Today-UPDATE
Post by: livewssj on May 24, 2010, 02:03:37 PM
Hi, I have also been through this over the past 6 yrs and lost jobs... from missing too many days and being sick.Not knowing I had sjs until 6 months ago.
I finally filed for disability...
I also tried to ask for accomodations and they did not give it to me.. i was let go at the end of the year instead.
I continued working and looking for work every time I lost a job. I needed to take care  of my son and he depends solely on me.
I realized now that I have ahard time cooking,clean, food shopping,driving etc....
I cannot handle a job anymore..
All the pain and symptoms are just debilatating.
Hope and pray that God will work something out!
Title: Re: At Work Today-UPDATE
Post by: susanep on June 10, 2010, 04:07:33 AM
I am so sorry, but just today seen there were more kind posts on this thread. You have been a great help, and very kind. I am out for the summer, and never made it back to school the last week. I have been sick since then.

I pretty much plan on filing for disability. I just can't continue on. I have to believe it will somehow work out. I don't know how we will get any medical care until approved. If I continued what I have at work, there would be no money to live on.

susanep
Title: Re: At Work Today-UPDATE
Post by: Carolina on June 10, 2010, 05:40:06 AM
OMG Susan!

I am just reading about this.   I want to go to your school and knock some heads together.

And ALSO tell some idiots that they are on very very thin ice, legally, ethically, and morally with this sort of harassment of a person who is sick!

Teaching is THE MOST EXHAUSTING and stressful job in the world (well maybe there are a few worse, but not as common as teaching).

I went back to school and got an MBA, because as much as I loved teaching, and as fantastic as I was as a teacher, it was a killer in terms of stress and just plain physical exhaustion.   And this was when I was in my 20's, 40 YEARS before Sjogren's.

Funny thing is, I wound up teaching at a college at the very end, going from administration to both administration and faculty to please my boss, the president of the college, and THEN doing all of that AND starting up a new program at a new campus!   

But I never ever ever could have done ANY of that now, with my hyperactive Sjogren's, Interstitial Cystitis and Peripheral Neuropathy.

Please keep us posted on what happens.

Kisses

Carolina