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"The New Sjogren's Syndrome Handbook" 3rd Edition
by Daniel J. Wallace (Editor), Evelyn J. Bromet (Editor), Sjogren's
"A Body Out of Balance: Understanding and Treating
et al; (December 2003)
Review by Care: Covers all aspects of living
with Sjogren’s syndrome, emotional, physical and treatment options
are discussed in easy to understand terms. It also lists resources
for further investigation of Sjogren’s syndrome. An excellent book
for all Sjogren’s patients and their families.
"The Sjogren's Syndrome Survival Guide"
Ph.D. Rumpf, et al; (March 2003)
Review by Stamp: I really
got allot out of the book SjS Survival Guide. It
was so diverse touching many subjects from how to choose a
Dr. to advice on handling the general public and family.
It was also very easy to read yet informative on the many
ways this disease affects the different parts of the body
including the state of mind.
Review by Chloe: This book
goes into detailed information on how to cope Sjogren's.
The emotional aspects of this disease are far reaching and
gives some very good advice for dealing with doctors and
family. It could use a little more information on the
neurological aspects, but the medical sections are well
put together. It's a great companion book to the New
Sjogren's Syndrome Handbook. Written by women who also
suffer from Sjogren's, it's well worth the reading.
"Eve's Rib: The Groundbreaking guide to Women's
Marianne J. Legato
"Thriving with Your Autoimmune
Disorder: A Woman's Mind-Body Guide"
Simone Ravicz, PhD, MBA
"Nuances of Nasal & Sinus
Susan F. Rudy, , MSN, CS-FNP,
"A Delicate Balance: Living Successfully with Chronic
Susan Milstrey Wells; (July 2000)
Review by Diana Bonadonna: This is a wonderful
book to own. I have own this book for years and still
pick it back up to re-read and I still find something
new each time. The author has Sjogrens and so does
several individuals that are profiled in this book. She
takes you though the steps beginning with finding a
comprehensive diagnosis to the way we look at work. We
all know it is not a smooth journey. It is written in a
language that is easy to understand and a tone that is
positive and helpful.
"Understanding Sjogren's Syndrome"
Sue Dauphin; (May
"The New Sjogren's Syndrome Handbook"
(Editor), Elaine K. Harris, et al; (July 1998)
Review by Chloe: This well written book
by a leading doctor in Sjogren's Syndrome goes into
great detail of the medical aspects of this disease.
Chapters cover testing and each body system that can be
affected. The one drawback to his book is in the
neurological areas. There are also some very helpful
hints as how to deal with symptoms as well as
medications to help alleviate them. Recommended reading
for anyone with Sjogren's.
"Sjogren's Syndrome: The Sneaky "Arthritis"
Dauphin; (September 1988)
| "The Official
Patient's Sourcebook on Sjogren's Syndrome: A Revised and
Updated Directory for the Internet Age"
Icon Health Publications
Review by Care: A
reference guide for patients interested in locating
reliable medical information on the internet. This guide
presents the “process” of locating information via the
internet; it is not in itself a book on Sjogren’s
syndrome. It does include a glossary of terms which can
assist in internet searches.
It can be a valuable aid for those interested in
becoming an informed patient. Since there is a scarcity
of books on Sjogren's Syndrome, this guide can fill in
"Numb Toes and Aching Soles:
Coping with Peripheral Neuropathy"
Elaine K. Harris
(Introduction), et al; (November 1988):
Review by Care:
Many Sjogrens patients are plagued with pain due to
neuropathy. This book explains what it is, what causes
it and how to get the best treatment. I am one who
believes that “knowledge is power”. Understanding the
process of neuropathy and our treatment options gives
us the power to deal with this cruel affliction.
"Sjogren's Syndrome Handbook"
Elaine K. Harris
(Introduction), et al; (November 1988)
|"Women and Autoimmune
Disease: The Mysterious Ways Your Body Betrays
Robert G. Lahita; Hardcover
Review by Diana Bonadonna: I found
this book very enjoyable. The author presents
the information in a very easy to read form.
Please don’t skip any part of this book. Read
all of the autoimmune diseases profiled in the
book. He shows why it is hard to come to a
diagnoses and sometimes why it can be one of
several diseases, this is why it can take years
to find the correct diagnoses. Once I started to
read this book, I could not put it down; I was
surprised to find out that so many of the
autoimmune diseases over lap each other. He does
mention other autoimmune diseases while
profiling the chapter topic. He tells it like it
is, no sugar coating here. If he does not know
why something happens, he tells so.
Manifestations of Systemic Lupus Erythematosus"
by Patricia M. Moore and Robert G. Lahita (Editors)
Newly added! "Living With Lupus:
The Complete Guide, Second Edition"
Authors: Sheldon Paul Blau, M.D., and Dodi Schultz
Second Edition, Revised and updated.
Living with Lupus: The Complete Guide leads
the list of reading materials awarded the Lupus
Foundation of America 2005 Seal of Approval
—Lupus Now (LFA magazine), Summer 2005
I have not been diagnosed with Lupus, but
there is quite a large amount of information in
this book regarding Sjogrens and other diseases
as the symptoms so often overlap and some
treatments are similar or even identical.
Although very technical, there is a lot of
information covered in the book, including a
history of studying Lupus, detailed drug
interactions, crossover diseases, causes and
treatments discussed for many of them, Lupus and
pregnancy, exercise routines (for minimizing
osteoporosis), excellent tips for finding and
working with a physician and all along the way
it uses quotes from real people that illustrate
exactly the points being made in the text. Brand
new studies are mentioned and old information is
updated. There is a very nice glossary of terms
in the back, including tests, and a thorough
resource list for web sites and other places to
obtain information and help.
—Jo/Spring, Summer 2007
This books starts out by
describing the difficulty that can occur in
trying to get a definite diagnoses and some of
the criteria used in diagnosing Lupus. It
discusses symptoms and possible causes of the
disease including genetics. There are many case
examples though-out the book that help show how
Lupus symptoms can vary in each person and also
how that can affect the difficulty in receiving
the proper diagnoses and treatment. It gives an
explanation of each of the possible medical
treatments, based on symptoms. There is a nice
sized section on how to cope with Lupus on a day
to day basis and also includes alternative
therapies. Sjogren’s and Fibromyalgia have been
included in the section about Lupus-connected
conditions, and it discusses overlapping
symptoms. The index makes looking up specific
topics easier and the glossary is a big help in
understanding certain terms and abbreviations. I
found this book to be very informative.
Quiger, Summer 2007