Sjogren's World

Books & Book Reviews

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"The New Sjogren's Syndrome Handbook" 3rd Edition

by Daniel J. Wallace (Editor), Evelyn J. Bromet (Editor), Sjogren's Syndrome Foundation

 

"A Body Out of Balance: Understanding and Treating Sjogren's Syndrome"

Ruth Fremes, et al; (December 2003) 

Review by Care: Covers all aspects of living with Sjogren’s syndrome, emotional, physical and treatment options are discussed in easy to understand terms. It also lists resources for further investigation of Sjogren’s syndrome. An excellent book for all Sjogren’s patients and their families.

"The Sjogren's Syndrome Survival Guide"

Teri P., Ph.D. Rumpf, et al; (March 2003)

Review by Stamp: I really got allot out of the book SjS Survival Guide. It was so diverse touching many subjects from how to choose a Dr. to advice on handling the general public and family. It was also very easy to read yet informative on the many ways this disease affects the different parts of the body including the state of mind.

Review by Chloe: This book goes into detailed information on how to cope Sjogren's. The emotional aspects of this disease are far reaching and gives some very good advice for dealing with doctors and family. It could use a little more information on the neurological aspects, but the medical sections are well put together. It's a great companion book to the New Sjogren's Syndrome Handbook. Written by women who also suffer from Sjogren's, it's well worth the reading.

"Eve's Rib: The Groundbreaking guide to Women's Health"

Marianne J. Legato

"Thriving with Your Autoimmune Disorder: A Woman's Mind-Body Guide"

Simone Ravicz, PhD, MBA

"Nuances of Nasal & Sinus Self-Help"

Susan F. Rudy, , MSN, CS-FNP, CORLN

"A Delicate Balance: Living Successfully with Chronic Illness"

 Susan Milstrey Wells; (July 2000)

Review by Diana Bonadonna: This is a wonderful book to own. I have own this book for years and still pick it back up to re-read and I still find something new each time. The author has Sjogrens and so does several individuals that are profiled in this book. She takes you though the steps beginning with finding a comprehensive diagnosis to the way we look at work. We all know it is not a smooth journey. It is written in a language that is easy to understand and a tone that is positive and helpful.

"Understanding Sjogren's Syndrome"

Sue Dauphin; (May 2000)

"The New Sjogren's Syndrome Handbook"

Steven Carsons (Editor), Elaine K. Harris, et al; (July 1998)

Review by Chloe: This well written book by a leading doctor in Sjogren's Syndrome goes into great detail of the medical aspects of this disease. Chapters cover testing and each body system that can be affected. The one drawback to his book is in the neurological areas. There are also some very helpful hints as how to deal with symptoms as well as medications to help alleviate them. Recommended reading for anyone with Sjogren's.

"Sjogren's Syndrome: The Sneaky "Arthritis"

Sue Dauphin; (September 1988)

"The Official Patient's Sourcebook on Sjogren's Syndrome: A Revised and Updated Directory for the Internet Age"

by Icon Health Publications

Review by Care: A reference guide for patients interested in locating reliable medical information on the internet. This guide presents the “process” of locating information via the internet; it is not in itself a book on Sjogren’s syndrome. It does include a glossary of terms which can assist in internet searches.
It can be a valuable aid for those interested in becoming an informed patient. Since there is a scarcity of books on Sjogren's Syndrome, this guide can fill in the gaps.

"Numb Toes and Aching Soles: Coping with Peripheral Neuropathy"

Elaine K. Harris (Introduction), et al; (November 1988):

Review by Care: Many Sjogrens patients are plagued with pain due to neuropathy. This book explains what it is, what causes it and how to get the best treatment. I am one who believes that “knowledge is power”. Understanding the process of neuropathy and our treatment options gives us the power to deal with this cruel affliction.

"Sjogren's Syndrome Handbook"

Elaine K. Harris (Introduction), et al; (November 1988)

"Women and Autoimmune Disease: The Mysterious Ways Your Body Betrays Itself"

Robert G. Lahita; Hardcover

Review by Diana Bonadonna: I found this book very enjoyable. The author presents the information in a very easy to read form. Please don’t skip any part of this book. Read all of the autoimmune diseases profiled in the book. He shows why it is hard to come to a diagnoses and sometimes why it can be one of several diseases, this is why it can take years to find the correct diagnoses. Once I started to read this book, I could not put it down; I was surprised to find out that so many of the autoimmune diseases over lap each other. He does mention other autoimmune diseases while profiling the chapter topic. He tells it like it is, no sugar coating here. If he does not know why something happens, he tells so.

"Neuropsychiatric Manifestations of Systemic Lupus Erythematosus"

by Patricia M. Moore and Robert G. Lahita (Editors)

Newly added! "Living With Lupus: The Complete Guide, Second Edition"

Authors: Sheldon Paul Blau, M.D., and Dodi Schultz

Second Edition, Revised and updated.

Living with Lupus: The Complete Guide leads the list of reading materials awarded the Lupus Foundation of America 2005 Seal of Approval

—Lupus Now (LFA magazine), Summer 2005

I have not been diagnosed with Lupus, but there is quite a large amount of information in this book regarding Sjogrens and other diseases as the symptoms so often overlap and some treatments are similar or even identical. Although very technical, there is a lot of information covered in the book, including a history of studying Lupus, detailed drug interactions, crossover diseases, causes and treatments discussed for many of them, Lupus and pregnancy, exercise routines (for minimizing osteoporosis), excellent tips for finding and working with a physician and all along the way it uses quotes from real people that illustrate exactly the points being made in the text. Brand new studies are mentioned and old information is updated. There is a very nice glossary of terms in the back, including tests, and a thorough resource list for web sites and other places to obtain information and help.

—Jo/Spring, Summer 2007

This books starts out by describing the difficulty that can occur in trying to get a definite diagnoses and some of the criteria used in diagnosing Lupus. It discusses symptoms and possible causes of the disease including genetics. There are many case examples though-out the book that help show how Lupus symptoms can vary in each person and also how that can affect the difficulty in receiving the proper diagnoses and treatment. It gives an explanation of each of the possible medical treatments, based on symptoms. There is a nice sized section on how to cope with Lupus on a day to day basis and also includes alternative therapies. Sjogren’s and Fibromyalgia have been included in the section about Lupus-connected conditions, and it discusses overlapping symptoms. The index makes looking up specific topics easier and the glossary is a big help in understanding certain terms and abbreviations. I found this book to be very informative.

Quiger, Summer 2007

 

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